I have not used this prep....
I second what Ivy said. I don't have anything bluish going on. Some red though. Good luck!...
My directions always said no red or purple, pressumably, as someone else pointed out, red is involved in the dyes. Remember, better safe than sorry. They tell you to not eat anything this color...
I've talked to my doc about these options, too. I'm currently in a clinical trial for Low Dose Natrexone, but if it doesn't work out, my next option s either Remicade or Humira. No contest for...
I've had a capsule endoscopy, but my insurance covered it, so I have NO CLUE how much it costs. Could you call your gastro and ask? Claudia...
I take 4 pills of Asacol, 3 times a day (12 a day) and haven't had side effects from it. I definitely notice if I don't take them. I've been on Asacol for about 2 years. Claudia...
I did not tolerate Pentasa well at all. My GI said that some Crohnies just don't react well to it. had severe D when I took it and was taken off of it within 2 weeks and put back on Asacol and had...
Is there a risk of disease transmission doing this? I mean, is it considered a "bodily fluid" and how would they test it? I'm glad doctors are thinking out of the box. It's not for me, but good luck...
I am nauseaus when I'm hungry about 75% of the time. As far as the preps, I ALWAYS get violently ill. My next colonoscopy is in Feb and my GI is going to let me try prepping with the LoSo prep this...
I drink an "Ultra Mega" vitamin shake from GNC in the morning!...
Im the mother of a 2 year old and I truly hope he doesn't have Crohn's like me! I can't imagine scoping a three year old!!!!! I did know about the blood test for Crohn's and understand it is...
I was an Elementary Education teacher for a few years before I moved away from Florida. There are not many teaching jobs up here, so I started in the social work field. I am currently working 24...
Ah yes, Flax seed. A caring co-worker of mine decided that since Im a vegetarian, I should be using flax seed. I was EXTREMELY ill for many hours after I put it in my lunch. Obviously another form...
Crohnie, I read your initial post more thoroughly and I see what you mean about the genes. It's a very interesting question! I know there is a lot of research taking place about embryonic stem sells...
I think stem cells are the KEY to curing many many illnesses. Stem cells are basically blank and can turn into any kind of cell. This is from the National Institute of Health: "Stem cells have the...
I'm sure that is what I took last month when I began the LDN clinical trial at Penn State. The questions are SOOOOOOOOOOOOOOOOOOOOO redundant! 5,000 dollars...and I thought the pharm companies were...
I took tetracycline for an issue long before I was diagnosed with Crohn's and did not have a good reaction to it. It's probably just like everything else, some people respond well and others don't....
First of all, it sounds like you need a new doctor! No doctor should think that you're just being lazy and don't want to work. I was a teacher for a few years in Florida, now I'm doing social work...
I haven't heard much about OSU, but I have heard wonderful things about Cleveland Clinic. If I hadn't gotten into the Penn State study, that would have been my next stop. I'm about 3 hours south east...
I did not tolerate 6mp well at all. I was on 50 mg, then bumped up to 100 mg. I ended up taking myself off of it due to the EXTREME joint pain. I contemplated cutting off my hands because the pain...
Very painful. Acular, which is an NSAID eye drop works for me. Yours much be MUCH worse if even the steroid eye drops aren't working. I know how painful mine is, so I hope you find something that...
I've been on Zoloft since my father passed away last year. I started off on 50 mg, went to 100, then back down to 50 and now I take 25. I can't seem to get all the way off of them without wanting to...
looks promising...
Jolly Ranchers are what get me through preps. The only prep I've done that hasn't made me violently ill is the magnesium citrate. Best of luck! Claudia...
I know the white sleepy stuff well....good stuff! Good luck....
First of all, blood with the poo is common. It can be due to a few different things. As far as food, my friends and family are used to me being difficult, as I not only have Crohn's, but I'm a...
I am currently in graduate school and it's ENTIRELY online. It's the ONLY way I would have been able to continue my schooling....
I took 6mp for several months and it wasn't the drug for me. That's not to say that it won't work for you! Your doctor must feel that the benefits outweigh the risks. Talk with your doc and ask him...
6-mp is an immunosuppressor. It absolutely effects your immune system. I was in 6mp and it made me MUCH sicker than the Crohn's itself. I hope you have better luck than I did! Claudia...
I suffer from arthritis due to Crohn's. Sometimes it can be exacerbated by medications, too. If you're tapering off of pred, you may be beginning to flare again. My understanding is basically,...
I have been on 4, 400mg pills, three times a day for a few years now. As someone else has said, it's a pretty "benign" drug. I've never noticed ANY side effects from it. My only suggestion for the...
I had no period the ENTIRE time I took 6mp....
Reef, thanks for pointing out the smaller number of people used in the Phase 1 study. It inspired me to look up the differences in clinical trial phases. The amazing thing to me about LDN is that it...
Mike, I understand your frustration with the idea of some miracle, magic drugs. We all get frustrated with our disease. Mine is severe and I do have high hopes for LDN. Some people just don't respond...
Well, they are both 5-ASA compound drugs. I take 400 mg x 4 pills, 3 times a day - the maximum dose. I can't imagine a doctor caring about taking a total of 5 pills a day that are 5-ASAs..not when I...
I was on 6 mp and it was hell. I did experience severe joint pain which was initially attributed to the 6-mp because something about uric (sp) acid crystalizing. Anyway, I had HORRIBLE headaches, was...
I go to get labs done Friday to check my b12 and if it's low, I'll start with b12 shots. Judging by what you guys are writing, getting these shots can be life changing. I feel like I could sleep for...
I absolutely will not use artificial sweeteners. I do understand your issues with food. I'm a vegetarian who's not supposed to eat fresh veggies...so I eat bread, pasta and rice a lot. I try so hard...
I don't know how much the dosage was when I had it in an IV, but orally, I typically take a 40 mg taper dose....
Well, it's probably NOT really for Crohn's patients, but it said, "I'm speeding because I really need to poop." I laughed out loud..enjoy, Claudia...
So funny to read this...I TOTALLY had that woman pegged for Crohn's. I just knew that's what it was. I kind of chuckled when they ended up saying it was the gall bladder. I've had my gall bladder...
I have 'em too and my first gastro didn't know what it was and made me go to a dermotologist. My gastro now knew EXACTLY what it was. Claudia...
I'm currently in the LDN clinical trial at Penn State. I had a colonoscopy LAST week and will have another one after 3 months on the placebo/LDN and then ANOTHER after 6 months (the first three...
I was on 6-mp for about 3 months and it did not work out well for me. It made me sicker than the actual Crohn's...hair loss, blinding headaches, nausea, and extreme fatigue. I know many others...