Hello again! I have a little update. First, beave, I have seen 2 ENT specialists. The first one only gave me antibiotics and cracked jokes. So, I went to a different ENT, who operated and gave me...
Thank you so much for the suggestion!!! I just googled ACV and read all about it. I'm going out this morning to buy the liquid and pills. I don't think I want to drink the vinegar, but breathing the...
Hi everyone, I haven't posted here in years…I'm not sure why. I'm back now because of sinus problems. As I sit here typing, my teeth are throbbing from sinus pressure. I finished a two week dose of...
I really hope surgery goes well for you and makes you feel better. I have not had to deal with a fistula or anything like that, so I don't know how you are feeling exactly, but I can understand...
I have had my three loading doses and my next infusion is Jan 27th. I don't feel very well right now. I guess I should call my GI and let her know. It just doesn't feel like I'm getting better. I...
I have pain on my right side too. I also take Tramadol, but I have Oxy too for when the Tramadol isn't enough. I had a bowel resection in 2007 and had a very bad infection after surgery that left me...
You can ask your doctor for some Bentyl. It's an antispasmodic. It helps me with spasms anywhere in my intestines and rectum too. I do feel pretty drugged up sometimes when I take them, but not all...
My infusion went really well today. It took about three hours and I spent the whole time chatting with the nurse. She was awesome! I came home and took a nap and I actually feel pretty good. I have a...
Thank you for the great advice and good wishes. I have a good book I'm wanting to finish and a packet of info to read regarding my daughter's high school graduation...cap and gown, announcements,...
So, I'm kind of nervous about my first infusion. I'm not sure what to expect. I've been on a long journey of bowel resection, infection, undiagnosed pain, hysterectomy and now CD flare up. I guess...
I got a half black lab/half springer spanial puppy last October (when I was feeling better) and I would take him with me when I had to go to the bathroom since I couldn't let him have the run of the...
Have you checked your blood pressure? Endocort raised mine and gave me headaches. I don't know if high blood pressure can make you feel stoned, but it's worth looking into....
Oh boy, I know how you feel. I only had one child because of this disease, so I feel guilty about the "only child" thing, but she seems ok with it. Now, that she is 18 she understands so much and is...
I had the same experience with seeing a new GI last Friday. I was given the choice of Remicade or Hurmira. I chose the Remicade. I am afraid to take it too. My GI also gave me prenisone to take and I...
I think because you are aware of how your tummy feels, you will know the difference. I did. Because I was so aware of my tummy, I felt my daughter move very early. Even now, I can tell what each pain...
Yes, I feel defective too. I feel like I can't be the mom I want to be or the wife or the friend. I'm not doing some of the volunteering that I love because I don't have the energy right now. I feel...
Thanks for the answers here. I really appreciate it. I read that Humira works well when/if Remicade stops working. I have not read the same thing about Humira. Maybe it does though. I'm leaning...
I saw a new GI today and I really like her.....even if she does want me to take the evil pred for a few weeks. I'm not responding well to the Asacol and I'm running out of options. She would like me...
Back to the vet thing. My vet thinks my dog might have colitis. I told her that he did go on the crohn's and colitis walk with me and she tells me.....wait for it...wel,l colitis isn't contagious!...
I tried that once when I was 21. I was convinced I'd get better if I just went on a liquid diet. I didn't want to go on prenisone again, so I ignored the pain. My intestines ended up rupturing and I...
I had to find a new GI and I told him upfront that I will not take Prednisone. Besides the physical side effects, it makes me crazy! I don't mean a little mood swing here and there either. Crazy! He...
You always make me laugh! That's better then morphine! You would pass by me on I-5 or I-205 on your way to Eugene, but I live closer to Portland. I would have loved to see you again! Next time, ok?...
Thanks for your comments. Yes, I have been having quit a go of it and I agree the withdrawals are horrendous! It's been over a week now that I've been off of them, but I still am not feeling like...
Hi all, I heard from Randynoguts that I was mentioned in a missing you post, so I thought maybe I'd give you all a little update. Let's see, where to begin....I had a bowel resection in February...
I feel as if I've been AWOL for a very long time. It's nice to know that I have been missed. Sorry, I couldn't meet up with you on your drive, maybe next time. I guess I'll post an update on myself....
I have a love/hate relationship with pain meds. I am going thru withdrawals right now from Fentanyl Patches and Oxycodone. It's the hardest thing I have ever done! And that's saying allot since I've...
I too have popped a rib out for no reason. Oh, I may have coughed or sneezed or some other normal everyday thing, but it seems silly to hurt yourself just doing that. The last time I popped my rib...
Oh sweetie, don't think of yourself as being vain. You are just normal. No one likes to see these horrible changes in our bodies. It's hard enough feeling terrible on the inside and then seeing...
I know it's easy to say find a new doctor, but I know that's not always possible, so I won't tell you to do that. Maybe if you are very specific with your doctor about your pain he or she will give...
I feel so needed and appreciated when I can help someone else especially when I'm not feeling well myself. I feel bad when all I can do is get my daughter to and from school, but then I can come here...
It's been a really hard lesson for me to learn as to who my real friends are and who just claim to be my friends when I'm feeling well. I know some people just can't be around someone who is sick and...
I just read all the posts here and I'm so happy to read a good story with a good ending. It just proves how valuable this forum and the people here are. I just love everyone here! Hey, Crohn'snme, I...
Thanks for the joke. I know I needed to laugh!...
I'm a 5'7" female and right now I weigh 140. I'm really happy with this weight and I'd like to stay right here, but I'm afraid that I will keep gaining. For the last two and a half years I've been...
I know how you feel when you see your daughter worrying about you. It does hurt. It has been a hard year, but you are right, I am a fighter and I haven't given up yet. Thank you for saying that. I...
Thank you so much Lyn. I really need some encouragement and kind prodding. I do have a school right beind the house and hearing the kids outside playing does cheer me up. I have a teen daughter too...
Thanks Lyn. I have been thinking that maybe I should get outside and walk even if it's only for a short one. So far, I have found excused not to. When I have been tired day after day, I did wonder if...
Yes, it all happened after my 40th birthday. A few weeks after I turned 40 is when I had surgery and this whole mess began. I've been telling people that since my 40th year was so bad, I'm calling...
Hahahahaha! Nice one, Matthew!...
Becky, thank you so much for your post. This is so encouraging! I have dealt with Crohn's Disease for years and years, but I've never been on pain medicine for so long. This is all new to me. It's so...
Thank you for your ideas. I did just have some blood work done this year. I was wondering if my thyroid was ok. It is ok. I did not ask about my iron. I will ask when I go in next month. I do give...
Thanks Kitt! I've peeked at the Chronic Pain forum too since they are very familiar with the Fentanyl Patch and supportive as well. I'm hoping that when I'm off of all pain meds I might get a little...
Thank you for the hugs and prayers. This got me thinking that I don't get as many hugs as I used to when I was working and out and about. Maybe that's my problem. I'm having hug withdrawls. :) Thank...
Just a note regarding the Hashimotos...I too have Hypothyroidism and even when my tests came back in the normal range I told my Doctor that I was still tired and he increased my thyroid dose a little...
I don't know the answer to your question, but maybe you can ask your pharmacist if this Rx is the same or if there is some difference. I know I've had problems with generic meds made by different...
I am glad that you called. I know if I had any issue and I didn't call my GI he would be very unhappy with me for waiting. I learned the hard way that the earlier you take care of a problem the...
Hi all, I haven't been here for awhile. Lately, I've been so tired that I just can't do much of anything. It's very depressing. To let you know what's been going on with me...Last February I had...
Hi Randy! It's been a long time since we've chatted. I love your post. I read it to my husband and he just didn't get it. I could barely read it to him because I was still laughing. I remember the...
Ok, this makes sense. When I chew gum it makes me feel all bloated and crampy and I always chew sugar free gum. This doesn't happen all the time, but often enough to make me think twice before I grab...
I have mentioned this to my doctor, but he doesn't know what is causing this spike in pain. In fact, he doesn't know why I have any pain at all. It's so frustrating. That's why I'm trying to figure...