Homeboy, it turns out his multi-vite does not have any potassium or magnesium. Wow I'm kind of surprised so thanks for the suggestion. His diet has been kind of restricted of things that would...
I realize this is an old thread but I'm hoping someone will see it and weigh in. My son with Crohns had c diff for the third time late July. They are doing a slow wean of vancomycin this time. About...
My son had negative PPD but suspicious chest x-ray before Humira. They suggested INH. Five years into Humira, he is fine. The worry is latent TB can be activated during therapy. The INH prevents...
We drive 1 1/2 hours. would love to be closer but aren't and afraid of the local GIs. Know someone who drives 8 hours to Mayo. Just wanted to warn you, you may not get a different answer if you go...
My son has had Crohn's since kindergarten and it did start with weight loss. He didn't complain of pain but said he was not hungry frequently. Then we noticed he wasn't growing. His GI symptoms...
I was wondering how long it took to notice a difference on the low FODMAP diet. I saw one explanation that said try it for one to two weeks to see if it works, but that was for IBS. I don't know if...
I think it may be worth checking out the Seasonally Affected Depression or other physical cause. I have SAD and I didn't realize it for years - I thought my life just sucked and I hated winter! It...
I have read that kids with younger age of diagnosis tend to have a more difficult disease course, but I've seen various definitions of "younger", age wise. I think they are trying to determine ways...
I believe that Cleveland Clinic does this, which is also a top notch hospital. It might be most efficient to have the local GI hunt down a consult, but otherwise just look at top hospitals web sites...
I had this exact problem when I moved from a big city to a very small city. First of all, there weren't really any of the type of job I had done. Everyone assumed when I found a "good job" that I...
I was referring to response and remission being better with top down vs step-up. Jury is still out on avoiding surgery....
If you haven't already discussed, I would ask your doctor if your disease is mild, moderate or severe. That may help guide you towards your medication path. I glanced at your previous post but didn't...
I just wanted to tell you that my mom works at a hospital and you should write a letter to the president or the one in charge of risk management, if you can find it. They do review these. When I was...
Noah, as the mom of a 13 year old boy with Crohn's, I wanted to say I understand what you are going through. I hope you have some people around you who understand. Unfortunately there will be a lot...
My son recently had resection surgery. He came home on Flagyl, started Pentasa two weeks later and started Imuran at his 8 week check up. He'll be on the flagyl for 3 months. I've reserached it and...
Tom, my 12 year old just had surgery, so here is what I know. With Crohn's, they will avoid surgery if possible because it does return. 80% of people have endoscopic recurrance within 6 months, but...
Sorry about your niece and the experience with the ped and GI. It absolutely is possible a child can have IBD. I know kids diagnosed at age 2. My son was 6 at diagnosis. And it is completely...
I assume they did lab work at the hospital. Did they check his albumin, hemoglobin, sed rate? Were those all normal? If you haven't had those done, that could be a starting point. Hopefully this is...
Immunosuppression causes your white count to go down. While this is needed in Crohn's patients, your doctor thinks yours has dropped too far. 20 mg of humira is a kids dose, and sounds like a...
Hi. My son was dxed with crohn's at 6 and he is now 12. I am going to be frank and tell you to follow the doctor's advice. This is very standard treatment for pediatric crohn's. I know it is very...
I just want to make you aware of one other thing that can cause these types of symptoms. It's called PFO, patent foramen ovale, I believe. It is a congenital heart problem that is not uncommon. My...
I cannot say whether your child has Crohn's or not, but I can say that a child can have Crohn's at a young age. My son was diagnosed at 6 but I know many kids diagnosed at 2 and 18 months. It's not...
My son is on Humira. We did not have any trouble with our insurance, except we had to get prior authorization. He had failed other immunosuppressants, but was never on remicade. After first...
Take your son to a pediatric GI. Please don't let this slide until he gets worse and it is obvious to the doctor. I know kids as young as 2 with Crohn's, and it seems those often are kids whose...