I was having skin rashes,the itchy from the tan colored wafers ,I switched to the white(no dye) wafers and that helped a lot .I use Convatec naturawafers and very little stoma adhesive....
I shower with the pouch off all the time ,27 yrs ,just dry the wafer really well and I'm good to go....
Yes, smells in my life are awful,since I have been on remicade for 9 YRS my nose has gone nuts....... I can smell things that are so vile to me I can gag on things other ppl can not smell. Bacon is...
I don't know but, does getting a new car battery fall in that worst b-day present ever catagory when you have cararacts on both eyes and can't drive, or last years gift which was nothing be cause he...
I wear a two piece system and I always shower with my pouch off,hate having to dry it. Never usually have any problems with it. Sue...
Hi Crohnielass ,Thank you so much for your reply, I'm quite desperate for some relief from all the itching ,weepy skin and the appliance only lasting two days,I hope I can order it through my...
Crohnielass -Question ????????? Using duoderm under your wafer, would that help if you are allergic to the tape part of the flange or could it make the problem worse. Any help would really help....
Navy ,I'm so sorry you are going through a very painful time with your crohn's right now, I hope and pray that you will find some relief soon, but I am also disturbed by your feelings toward this...
Stettler alberta, ileostomy done at the U.of A. hospital in Edmonton...
Hi Aimee, Sniper pretty much covered the procedure, simple day surgery, small incision and after that an ex-ray to make sure the port is in the right position. For 3 days after the port is implanted...
Hi Aimee, I too have bad veins and had a port-a-cath implanted ,best thing ever. It was so hard to hit the veins that I finally had one , mine is a Brad port , in was done in day surgery , I insisted...
Just a thought but why don't you try wearing a pouch for a few days on the spot that your nurse has marked for you and see how it works. Try wearing your normal clothes and add some weight in the...
Hi, Iv'e been on serax for over 6 yrs now as a sleeping pill, wonderful pill. Sends me to sleep every night....
Vette Guy, Thank you,Thank you ,Thank you, I too hate that 3 letter word, pouch just sounds , Oh so much cleaner and a nicer word. And on a side note Today marks the start of 23yrs with my pouch. My...
OK another one for Alberta ,Stettler the Heart of Alberta, just add me to the list ,LOL...
I have been on remicade 5 1/2 yrs. now and have had shingles twice in that time. First time i was not sure what this patch of itchy red dots were and when I went for my remicade infusion mentioned it...
I have one and I prefer the word Pouch...
I for one have had crohn's in my stomach, had been in remission for 12 yrs. Pain started in my stomach usually after I ate,bloated feeling and burping than my family said smelled like sour gas (just...
Angela101, My GI guy is in Red Deer , got to say tho he really isn't doing much for me , Lisa the girl that does all his booking for remicade infusions is more help than my GI. He once told me I had...
Randy , that is so funny ,you miss your to. I lost my in 2002 it was a pain at the time , had been deformed since 1987 but it was still there, now it's just a big old scar nothing there to pierce if...
Stettler , Alberta, Canada small town of about 5500pll midway between Edmonton and Calgary...
Hi ev1, well to start out with my daughter just got married last weekend, so all that running around doing the final preps for the wedding, a few extra days at work cause of ppl being on holidays ,...
Hi Little E , MY story a little bit different I had my surgery in 87 , 5 yrs to heal and many weird tings happened but after all that i enjoyed a 12 yr remission almost forgot i had even had crohns...
Hi Sparkn................I was told I wouldn't notice any change in my leg, but yea I do. The swelling is worse in the summer than the winter heat I think has a lot to do with the swelling, sitting...
Sparkn, so sorry to hear of your up and coming surgery, I myself have had this kind of procedure you are talking about. Way back in 87 when I had my perm. ileo done my rectum was removed at the same...
Hey Slice you might not want to hear this but my hole in the butt took 5 yrs, to heal,went in the hospital every 3 months and the surgeon scraped off the scar tissue hoping it would heal, but it...
Crohnie 8....... Hi ,I feel for you, I too have veins that can no longer be found for IV's and remicade every 8 weeks has done a toll on them.In sept. of last year I had a port-a-cath put in, It has...
sfgaintsjo, hi ....Just reading your post and about your sore spot......I'm thinking I know this ....I see your surgery was in aug of last year. Ok going way back here I had the same thing a sore on...
Hi Janet, I tried e-mailing you but it didn't go thru, not sure why , hope this finds you well and my story is almost the same as your's . Randy's right about the ET nurse and using ostomy pouches to...
I usually post on the crohn's board but Hubby got back from dr. yesterday and wham type 2 diabetes, we are in shock but not surpised he is over wt, smokes , likes sugar way to much and i have to...
Hi Nanners.......Please don't stress so much about your trip, i just returned from the dominican after a week and 3 days later enjoy another trip to Vegas. Speaking as a person who stresses over...
Hi Ev1.....I just got back from the dominican ..had a wonderful time... we left from Calgary alta. canada but in my carry on I had all my supplies with me ....pre cut wafer because I had heard you...
Merry Christmas Teddybear and a Wonderful New Year to you...
Today marks 20 years with my ileo ,where has the time gone .. there seems to be so much new technology now for this process ,shorter hospital stays, less scarring and more choices in appliances...
srgaintsjo.... I know excatly what you are talking about, this happened to me about 4 years ago, huge sore opened up on the top of my stoma , very painfully and wafer would not stick because of all...
Hi Ev1 I'm with Judy I always shower without my pouch iI just pop it off hop in the shower, if it spout off I just clean shower when I'm done no big deal. Iv'e have being doing this for twenty years...
Hi Sniper, Iv'e been on methotrexrate for 4 years,so i don't build anitiboties to the remicade.I started at 25 mgs. once a week for 12 weeks, then cut back to 15 mgs per week once a week...
Hi Johnny, I really haven't noticed any differance in out put same as before ,except maybe a little more bile in the morning more tint of green most likely from bile mixing in .As for waste being...
I have had a few blockages caused by food the first one was cause by eating coconut(big no no) very,very painful every thing backs up vomitting and cramping only releif was morphine every hour till...
Hi Johnny, I have had my gallbladder removed in nov.06 had total of 26 stones some large some small.Nine weeks after surgery I developed 2 very large abcesses in my abdomin that had to be drained one...
Hi flchurchlady, Iv'e had my ileo since 1987 Dec 9th after 5 years of surgeries to get everything to heal I enjoyed a long remission until year 2000 when I came out of remission. A tumor in my...
hi steviegirl i also have had that surgery musle (sp) from inner thigh to rectum ,mine was because of where my rectum would not heal. In 87 they would leave that open to heal, mine didn't that's why...