Thanks for the replies. Beave - My new gastro seems to think that celiac disease will only show up in those places where an endoscopy and colonoscopy haven't reached, so your comments are...
Hi everyone! It's been awhile since I've posted, so I wanted to catch up with everyone. I went to a new gastro who did the Prometheus tests. After 34 years of progressing through dx's of nothing, to...
If you are having nausea and vomiting, then you should go to the hospital. While it's not uncommon for CD's to have chronic constipation - sometimes lasting 7-14 days - if there's vomiting going on,...
A fissure is a tear in the rectum. They tend to hurt a LOT. If you're not having severe rectal pain, then hopefully, you just have hemmies (internal or external). I have internal and external hemmies...
My advice: -BE PUSHY. -Look for another dr. if you're not getting answers from your current doctor. -Don't let the lack of a diagnosis get you down. -Don't let the lack of a diagnosis make you give...
Glad Bag - I agree that the U.S. health care problem is a very complicated, intertwined mess. It's sad so many Americans are forced to order drugs from Canada, or do without, because they can't...
There's no question that having CD can make you broke in the U.S.. I have insurance, but the medicine co-pays have gotten so high that my meds alone are costing me over $800 per month - and I'm not...
Has anyone had the Prometheus blood testing done (the IBD testing done by a California lab), and if so, did it tell you anything? How did your gastro react to it or change your therapy based on it?...
I would love a copy too....email [email protected] . Thanks!...
Hi Nanners! As a long time Chronie who used to travel a lot on business, here's some tricks I've learned: 1. Carry on extra underwear, TP and wet wipes. You'll probably never use them, but just...
I am so sorry for your loss. There's not much more I can say, since nothing matches the pain of losing a child. I hope you believe that she can still feel your love for her. At least I believe that...
Thanks for reply, pray4healing. I haven't seen the doctor since it started, but I have my usual appt. next Wednesday with my primary physician. I still have one of the 'burn' marks - this third one...
This weekend, I filled my Colozal and the pharmacist said the computer was showing that a generic will soon be available. That surprised me since Colozal is newer than Asacol. They've both worked for...
I think, from what I've read now and seen pictures of on the net, that it's erythmea nodosum. The pictures certainly look the same as what is on my thigh. Fortunately, I have some old Lidoderm...
My doctor just put me on Amitiza (lubiprostone) - a newer med for treating constipation. I've been taking 1 capsule twice a day for about 2 weeks now. So far, it hasn't seemed to be any better than...
EmmyT - Thanks for reply. Still calling all crohnies with skin conditions/side affects....has anyone experienced burning rashes on the upper thigh? What are the 'skin conditions' associated with...
Are you taking any anti-nausea medication or GERD medication (like Nexium, or Reglin or Compazin or Phenergrin?) It seems like the doctors should be doing more to control your nausea. If they could...
Happy New Year everyone! I have a question for the long term crohnies. I've never had any skin conditions related to Crohns, but in the last few weeks, I've had a weird skin problem with my left...
I have to agree with Nanners. Long term Crohnies could probably win a 'how many pills can you swallow at once?' contest. I take 28 per day, including supplements. In the morning, I take 12 at once,...
I've worked in the IT industry for 25+ years. I'm currently a data archtect. I would highly recommend information systems/programmer/analyst, etc., as a career, if you have any interest in computers....
Best of luck to you. You will be in my thoughts and prayers. Please let us know how you do and keep coming back to this forum....
Thanks for the replies. You could be right about the potassium and iron. I'm always low on both of those, so I've been taking supplements lately, but taking them sporadically. I didn't take any this...
Sometimes, I feel like I can't swallow - like a panic attack sort of feeling. I don't know if your son is experiencing a 'panic attack' sort of response, where he feels like he must swallow...
In the morning, I make sure I have plenty of extra time for the bathroom, just in case. So the D and cramps are worse in the morning, but the pain and fatigue is always the worst at night....
I have chronic gastritis and Crohn's, but I'm able to take Nexium. I don't know if gastritis can cause D - it just gives me intense stomach pain and nausea. I know some people who have taken Reglan...
Thank you for the reply. I had more back trouble until I got a better mattress, so your doctor may have a point. I still have back pain if we stay at a hotel or someone else's house. Lately, this...
I have no idea what your problem may be, but it sounds like you should go to your doctor ASAP. Or maybe even the ER....it sounds serious. Take care of yourself!...
Hello everyone! For the past 2 nights, I've woken up around 3am with my lower back up to the middle of my back feeling like it's in one giant spasm. Nothing I've done has relieved it (heating pad,...
Occassionally (like 2-3 times a year), I'll drink 1-2 glasses of wine. I used to be able to drink anything (well, not really, but I did anyway), but that was decades ago. Now I find that a mild,...
Welcome to the forum! I've never drank cortisicoids - they've always been in pill form for me. How long I take it depends on how long a flare up is...sometimes it's only for 6 days, sometimes it's 3...
I have never had trouble getting B12 vials - whether I was on once a week injections or once a month. I just changed insurance companies, however, and the new insurance company doesn't cover...
I was having this problem just last month during a flare up. I had some hydration therapy at the hospital and oddly enough, I stopped having to pee every 5 seconds. Gained 6 pounds in 15 hours from...
I second the opinion of finding a new GI immediately. There are many other treatment options available for Crohns and I can't believe your GI didn't tell you even had it. That's despicable. Start...
I've passed out numerous times from the cramping, sweats and pain while having D. In college, I cut my chin and needed stiches from passing out and hitting something. And I passed out twice in my...
Welcome to the forum! I just started reading this forum about a month ago and I've learned more from this forum than from any gastro. It's great to be able to complain to people who understand and to...
I've had mild to moderate Crohns for 34 years. Personally, my 'typical' Crohns symptoms (cramping, uncontrollable diarrahea, bloody stools, etc.) have improved over time because the medications have...
My pain is very similiar - varies from a constant ache to a very sharp pain in the left lower quadrant. Also can get sharp pains in the middle of the abdomen. Fissure pain too - which feels like a...
Sounds like a possible fissure, or tear, in the rectum. Fissures can cause extremely sharp pain - like someone sticking a knife up the rectum. Sometimes it's constant pain, but other times, it may...
7 to 11 days is not unusual for me. I take a stool softener, drink glycolax every day and use suppositories, but even with all that, it can still be 7-11 days before anything happens. The biggest...
irish63 - What is the doctor's name at OSU? I live in Columbus and have yet to find a decent gastro. Just curious....thanks!...
I've been on Entorcort 3 times over the past seven years and have never noticed any side affects. I think prednisone worked much better for me in terms of stopping a flare quickly, but the side...
It sounds to me like you're doing everything right - a real credit to your personal strength and endurance. Hopefully, an RA doctor can help you with the 'next step', whatever that may be. Keep on...
I'm sorry I can't be of much help since I haven't had problems with my SI joint - only my hips and knees. I too have been thru physical therapy and didn't get much relief. Many people in this forum...
I get b-12 injections once a month and take Slow-FE (iron), potassium and Acidophylus (sp?) every day. I need to be taking calcium for have bone loss, but I haven't found one that doesn't tear up my...
I don't know if this qualifies as a hobby, but I'm an animal lover - 4 dogs (2 boxers, 1 English bulldog and 1 Yorkie), 5 cats, 1 bird and 2 large, fresh-water fish tanks. I love taking care of the...
There is a gastro named Dr. Ramsbottom in my city....I'm not kidding....perfect name for those colonoscopies!...
Mishball2 - I take Nexium because I have gastritis (or so the gastro says....even though he also said it would go away, but 7 years later, it's still here...). So perhaps the Nexium hides the affect...
I've been told the same as belleenstein by a couple of gastros - that Asacol has a very short life span, so you need to take it 3 times a day to keep the gut under control. I've never had to eat food...
Belleenstein - Do you know the source of that recent study, or know where it is?...
I had the same problem with my gastro about a month ago in the midst of a flare up. His nurse was so kind - she said 'all you patients with chronic illnesses want to wait until you're having a flare...