Thank you! She is the pickiest eater ever. She pretty much will only eat 3 or 4 things. She has a G-tube and gets extra nutrition that way, but I can't imagine trying to limit her diet any more. I'll...
My 6 year old had Ulcerative Colitis, diagnosed at age 3, s/p colectomy and J-pouch surgery. She's been on allinia for a year or so but now we can no longer get the medicine and she has been feeling...
Thank you! Did you have your J-pouch surgery as a separate surgery than your colectomy? If so, did you see a GI between surgeries?...
For those of you with UC that have had colectomies, do you still see a GI? Is it common to see a GI still after the surgery? My daughter had a total colectomy with temporary ileostomy in August and...
My daughter has a temporary ileostomy and has been having flares of her rectal stump every now and then. Could her diet have anything to do with those flares, even though the rectum is not connected...
Thanks for your help! Do you know if corticosteroid suppositories have the same side effects as oral steroids do? When my daughter was on Prednisone orally she had some awful side effects and I'd...
Has anyone else dealt with this? My 3 year old had her colon removed and a temporary ileostomy done in August. Things were great for a while, but now she's having uncontrolable bloody discharge from...
Thank you for your advice. Unfortunately, the discharge is now full on blood, no poop, and a good bit of blood at that. So the surgeon's nurse thinks she most likely is having a flare in her rectal...
Thanks! The surgeon did tell us. I just wasn't sure what frequency of it was normal. I assumed it wouldn't be very often, but it seems to be happening a lot more lately and becoming more frequent....
When my 3 year old had her colectomy surgery done, the surgeon told us that some rectal discharge is normal. But lately she's had several (4 or 5 in as many days) loose stools from her rectum with...
I don't think she's really old enough to know what chewing 20 times really means. She can count to 20 but I don't think she can chew at the same time and do that every bite. I'll just keep an eye on...
Hi there. My 3 year old daughter with UC has had an ileostomy since August. At preschool today, she accidentally ate 6 kernals on popped popcorn. How will I know if these get stuck? Is there anything...
Also, when I say leak, I mean it leaks round the edge of the sticky round part that goes over the stoma, the back of the bag. I'm sure there's a technical term but I don't know what it is....
Hi there! I'm kind of new to this. My 3 year old daughter had a total colectomy with ileostomy done about a month ago. In the past week or so we've been having a leak almost every day in the same...
My 2.5 year old daughter has been on Remicade since February. Unfortunately it has stopped working for her, but it has definately been used on kids. I second the dragonpack board. There are lots of...
My 2.5 year old was diagnosed in January (at 2 years old). It is very rare in children this young. I would just watch it and see if the blood continues. It could just be constipation or it could be...
Thank you for your responses! How long did it take the hair loss to go away (fall out?) on it's own?...
That's good to know. She's blond too, but the new hair is darker. Thanks!...
My 2 year old daughter that has Crohn's is tapering off of Prednisone and has about 9 weeks on it left. In the past few weeks, she's started getting dark visible hair all over her back, the sides of...
Thank you! They were going to have her on oral methotrexate as well. But the doctor just called and said they want to hold off on the methotrexate while she discusses my daughter's case further with...
My daughter had her 2nd dose of Remicade yesterday and we met with her GI. The doctor wants to take her off of her 6MP and put her on methotrexate instead, because of the risk of lymphoma when on...
My daughter is my first child. She has always been in the less than 10th% for weight and height. She has no other problems right now that are usually associated with TS. It was found that she had...
Broomhilda- Thank you! I answered you in that post to me below! Debbie- I felt that same way. Just mad that she had yet another thing that she'll have to deal with in her life, like her life won't be...
We had a long wait to get into the GI doctor too. We made an appointment, but ultimately we decided we couldn't wait that long so we went to ER at the children's hospital. You are lucky you had a...
We are going to be seeing a psychologist who deals with this very thing. Our first appointment is tomorrow so I'm not sure what she'll say, but she worked especially with GI patients and families....
Hi Becca! It is nice to hear from another mom of a toddler dealing with this! My daughter had bloody diapers for about 6 months and our pediatrician didn't know what to think. We finally out of...
Thank you, Roni! I will definately look into those diets for my daughter. She is symptom free right now so we are very thankful for that. Being 2, she is naturally a picky eater and that has only...
Thank you! I will definately look into joining the ccfa as soon as possible. I would love to meet other parents of children with Crohn's and get their perspective on things like potty training, etc....
I just saw this! Sorry! Yes, my 2.5 year old daughter has mosaic Turner's Syndrome. From what I have read, Crohn's is more common in TS girls. I haven't been able to find anyone else out there with...
My 2 year old daughter was recently diagnosed with Crohn's. She is going to be receiving HGH in the next few years because she has Turner's Syndrome which inhibitis growth. We read that study about...
Thank you all for your replies! Thank you for that site too! My daughter is 30 months old. She was diagnosed 3 weeks ago and has gotten one Remicade infusion in the hospital. Her second infusion is...
My 2 year old daughter was recently diagnosed with Crohn's. She was in the children's hospital for 2 weeks. She is currently on prednisone (weaning off it now), 6MP and remicade. I know it's very...