Hi everyone. Each pregnancy can be different with regards to UC activity and my doc kept trying to tell me that but it was hard for me to believe. In my first pregnancy 3 years ago I flared pretty...
My GI doc says after having colitis for 8 years a colonoscopy should be done yearly to look for dysplasia. Colon cancer is highly preventable and I'd rather have a colectomy for dysplasia than...
I've been trying to resist pred for a long time. My bro was on it for 10 years and it wreaked havoc on his bones. Now when my GI mentions taking a "short course" of pred, I'm always skeptical. I...
Dear Jake's dad, I'm so sorry for the diagnosis of T-cell lymphoma. The immunomodulators (Imuran) and TNF inhibitors (Remicade) scare me. There have been rare reports of hepatosplenic gamma-delta...
Well said, Judilyn...
Actually, he's very on top of the research and everything he recommended (5-ASA and folic acid to decrease the risk of colon ca. etc) I found out has been documented in research. He also does a lot...
My bro has CD and I have UC. His symptoms were very severe and after a decade of steroids is in remission with Imuran, Remicade, and Lialda. My symptoms are much more mild....
Hi RQ, I'm glad the conference was so informative. Dr. "V" is actually my IBD doc and he's really good.. I'm bummed I miss it. Thanks for the update! sb...
It looks like Chicago is more popular than LA ;) I signed up for the professional component but I think they are both in the same area so it'd be easy to meet up....
Hi everyone. I'm 18 weeks pregnant and started flaring in my 7th week of pregnancy. Took Pentasa, Canasa which helped a little. I switched to Lialda which I tried for a week however I was vomiting...
Anyone going? I think there is both a session for health care providers and also one for patients/families. It's March 29th, 2008 at the Millenium Biltmore Hotel. Here's the link (you may have to...
I just started it a few weeks ago. I was wondering the same thing about using it for an extended period of time. I previously read that it is used for induction of remission but didn't hear anything...
I personally do not think there is any rhyme or rule to UC and pregnancy. Some people are in remission during pregnancy and it's a wonderful thing and some have the opposite experience. I had my very...
Thank you so much for your kind words of encouragement. It has really helped me a lot. I'll keep you all posted! sue...
Kspace5000, Check out this website for phosphatidylcholine. http://www.phosphatidylcholine.net/ There are several different types/strengths, etc I'm not sure if its the retarded release formulation...
Thank you so much! You guys are so wonderful. I'm glad I can come to this forum for advice. I think that you are certainly right in that they prescribe it so easily. I already have osteopenia (and...
Anyone out there have an amniocentesis? I'm 31 and my AFP came back abnormal. I'm a little freaked out but I know these things have a high false positive rate. What should I expect for the...
What would you guys consider a short course of prednisone? A week or two? My GI wanted me to try a short course but I'm resisting it. My UC symptoms are mild right now and get worse with stress but I...
It's an interesting question because sometimes I feel the same way. I'm taking Canasa supp but I notice that when I take it regularly or 2/day I have cramping and even more mucous production (and...
Hi Ambrosia. It's funny that you say that your doc was surprised about the 2-3 hours inbetween bowel movements. I think those of us with UC sort of get used to a different baseline in terms of bowel...
Hi everyone... I switched from Pentasa to Lialda. Just a little background info...I'm 4 mos pregnant and the nausea is getting worse but I'm a little concerned that it's more than just the nausea of...
I see that you are on Imuran. In addition to folic acid/B12 deficiency, therapeutic levels of Imuran can also elevate your MCV (Red blood cell volume)....
17 weeks pregnant with #2.....mild flare (after trying to kill a two week cold)....on Pentasa Good Luck everyone!...
Hi everyone. Thank you so much for your responses. They are so helpful and thought-provoking. Quincy, I am open to trying the enemas again. Perhaps I just need more practice with it? I am supposed to...
Hi Quincy. THanks for your response. I've been taking Canasa for a few weeks now. I have left sided colitis (rectum, sigmoid, descending colon) diagnosed 3 years ago. I was in remission after the...
Hi everyone. I tried to post this question earlier but I don't think it went through...so I'm sorry if it turns out to be a repeat. I have UC and I've been using the Canasa supp to control bleeding....
LA/Beverly Hills area/West Hollywood area....
Congraulations on your pregnancy PSUDOC. I completely understand your concerns...as I had the same ones and still do. As long as you are gaining appropriate weight and not bleeding a ton you will be...
Hi Sarita- Sorry things seem so frustrating. I would be frustrated too. I'm wondering if you may need a second opinion from another GI doc. Putting you on a month of VSL for non-stop diarrhea just...
Congratulations expecting226! I wish I was near the end but I have a long way to go. I'm always so jealous of those women who tell me that they had wonderful pregnancies with no nausea/vomiting,...
Thanks everyone! I have to say, it's nice to be constipated (and not have diarrhea) ;) I think Zofran is a little constipating also....
What does it feel like to have a partial obstruction/stricture? I'm asking because I'm 13 weeks pregnant and at 7 weeks I started having a flare. Took Pentasa, Canasa and my bms are more formed...
Hi Sarita- I tried figuring out how to send a private message but couldn't...so here goes... I was actually in denial (and still am sometimes) when it comes to my IBD. I never talked to anyone about...
Hi Macgrl, Congratulations on your pregnancy! Thank you so much for sharing your experience. It does give me hope and ease my anxiety. I was diagnosed with my first pregnancy too so I kind of knew...
Hi Sarita. Hang in there. I know med school can be daunting especially when it's difficult to focus and you're not feeling well. My med school years were some of the most depressing years of my life....
http://www.aetna.com/cpb/medical/data/200_299/0249.html This link has more info about the serology markers. Basically the panel helps to distinguish Crohns from UC but it's a problem when you have...
Congratulations! I'm on my second pregnancy also. I have a 2.5 year old. The whole thing is exhausting but so much fun. I'm not sleeping well either...it's wierd, I now people who sleep like...
I so sorry Karen for having such a horrible boss. Some people are just evil. My advice would be to find a job in a better environment. I went through the same thing last year. My boss was horrible...
Thanks, Judy. I'm 13 weeks pregnant. Flared 7 weeks into my pregnancy. Between the nausea/vomiting of pregnancy, the UC flare with anemia, and lack of sleep, I feel like a zombie. Maybe it's just...
Thanks girls! I actually feel better hearing your stories of success. Best wishes!...
Hi everyone. I have UC and I've been on Pentasa for a few weeks (4000mg) and Canasa supp. Anyone have insomnia with the Pentasa? I'm also pregnant. I was sleeping like a baby before I started taking...
Hi everyone. I used to frequent this forum a few years back when I was diagnosed during my 1st pregnancy. I went into remission (or only had mild symptoms) for about 1.5 years. I recently found out...