Hi there, I am a Mum of two and have mild Crohn's. I can't fully understand I guess as my disease is at the moment reasonably managable and for that I am extremely grateful. When I was diagnosed the...
Hi there, I found that the Prednisone made me incredibly fatigued but I couldn't sleep. No matter what I tried. I also had headaches, dizziness, my appetite increased and my hair fell out in huge...
Hi laudy, I think I was about 9 or 10 when I first started having symptoms but it was always mildish. I would wake up with pain in the night, the doctors just tols us tht it was growing pains and to...
At the moment the GI said he is happy to not treat it as my symptoms are only mild. I was on 6MP for a while about a year and a half a go and if it starts to get any worse, he said he would start me...
Hi there, not sure if I'll be mch help but when I first got sick, I was the same. pretty much could only tolerate the same foods as you listed. Still had pain etc but not as bad as if I ate other...
Well, I've just had the results from my last set of scopes. Have been waiting for two years for a proper diagnosis now. It looks like I definately have Crohn's disease but the great thing is that...
Hi guys, I contacted admin but unfortunately this forum doesn't allow for me to ask for anyone's story. Thankyou so much for your enthusiasm though and I wish you all a wonderful motherhood journey :)...
So glad that you're doing well :)...
I didn't get past about 4 days on Imuran. Nausea, headache and then a really itchy rash. Turns out I was allergic to it. My GI put me on a really low dose of 6MP after that. (Low incase I had another...
My apologies :( I didn't realise I was going against the rules. Sorry if I have offended or upset anyone. My only reason for posting here was to try and help others. I have seen in years gone by...
Truly sorry, but asking for people's personal information is not allowed here. ***Can you please get permission from Admin before posting your request? (Also, if you have a blog, you may post it in...
HI everyone. Just though I'd ask here about something that has been bothering me a bit. My Crohn's seems to have settled into a bit of a pattern over the last two weeks. I seem to get pain in the...
Hi there, Thanks for all your replies. Lovely to feel part of a caring community. I"m pretty lucky with my daughter as she really is such a happy little thing. SHe seems to sense when I'm not well...
Hi everyone, Sorry to vent on here but need to get it out I spose lol. My story so far is that I was diagnosed with Crohn's in November. Not too sure what it all means anything but have damage in my...
Though I didn't have flu symptoms I felt very sick as soon as I started taking Imuran. AFter four days, I developed a rash and had to stop them. I"m now on 6 mp. Only a low dose to start with incase...
PS congratulations to you two Mums...
Hi everyone, thanks so much for your replies. It's so great to hear good stuff. I had a chat to the phamacist and he just said, to get better first, get on top of the Crohn's and then think about...
Hi there, I had a little one in April 08 and it was after that my symptoms really started to kick in though not diagnosed till late last year. Have just started 6mp and trying to get into remission...
Thanks everyone for all your replies and sorry for not replying to all. Yep fibre seems to be a bad one for me too as are onions, tomatoes, oranges, wholemeal or seed bread and chocolate...though...
Hi everyone, Sorry if this has already been covered but have been a bit worried. I'm due to start 6mp however after doing a bit of internet searching, I keep seeing the word infertility coming up....
Hi all, thanks again for your messages and advise. Sorry to bring up an old post but thought I'd let you know what is going on, incase anyone out there is having the same trouble. Nanners, you were...
I"m so confused. Foods that I have put down as no no's give me a flare one minute and the next all is fine. I don't know whether to fo dairy free, gluten free... My GI said that there's no diets etc...
I think you have summed it up UC21 'All we can really do is hope... If my crohn's came out of the blue, then my remission can come out of nowhere as well....' I really love what you have said there...
Jackie77 I've just had a similar reaction (hives) to Imuran and I am also allergic to sulfa based drugs. Waiting to see what meds I"m going on next......
Thanks for all the messages. I ended up at emergency last night as the rash had gotten quite bad. Looked like I'd been sun burnt really bad with lots of welts and itching. Have had to stop the Imuran...
Well, after only 4 days on Imruan I developed a nasty itchy rash along with the nausea , dizziness and headache. So now I have had to stop them and wait until I see my GI next week. Was really hoping...
Hi there, I don't know if this helps or not but I've recently started taking Imuran and my GI said that I can't get pregnant just yet. Not because of the medication but because of the Crohn's. HE...
Hi UC21. I"m sorry you are feeling this way. I'm sure we all have and sometimes do though. I am only new to a Crohn's diagnosis and this forum but hope that i can help in some way. I had the same...
Hello, new one here too. Glad you found the forum. It really does help, such caring and funny people here...
To be honest, I almost don't recognise myself now because of the moon face. It's strange and annoying. HOw long did it take after you stopped the prednisone for it to go away Grandpato?...
Just read that Roiboss tea can be really good for Crohn's, also lots of fish. WOndering if anyone has had any luck with these. Also, would fish oil tablets be as good as eating fish? I've never been...
ps hope the next date with the Hottie goes fabulously ;)...
Oh how good to be able to vent. I've only been on Prednisone since November and am nearly of it now. At first I thought I would get away with no side affects but then it all went pear shaped. Major...
I have the same thing with the Prednisone. It's getting better though as I wean of it so hoping that it will settle as soon as I stop taking it altogether....
Thanks Nanners, I think I will try again today taking it this morning and see how I go and if it's still not good I will switch to night time. I just get worried with the dizziness, when I'm on my...
Artist Guy that's great about the bike ride. Must feel good to be able to do it again. At the moment, I'm a little house bound. I try to take my daughter for a walk in the pram but usually don't get...
I'm trying not to have any at the moment. It's hard as I love the stuff but think the gas in it doesn't help me out. Plus I've cut out caffeine other than a little bit of tea. But if you can enjoy it...
Hey thanks for all the advise. Greaat to hear from you all. NIceCupOfTea, I have heard that Imuran can increase the risk of melanomas. A bit scary so have loaded up on the sunscreen and have my het...
THanks everyone for your welcomes and replies. Glad to be apart of this forum and also apart of a commuity that understands. I start the Imuran this morning so will see how I go. I think it's just...
Hi all, Just recently diagnosed with Crohn's and needing a little guidance. I feel very confused by all of it at the moment. Seems silly when the basis of it is, you get stomach pains and you go to...