I'm in Denver and I was in the same spot. I go to the ER when the pain is so bad that I can't take it anymore. My dr won't give me pain meds because he feels that if I'm in pain he will fix the...
Hi tired and weak, I'm 31 and feel your pain. I have been on multiple crohns meds and have had 2 resections in the last year. I just had a resection 9 weeks ago. I have been hopeless and tired and...
Hi Everyone, I have been battling crohn's for a while now- since high school. I had a bowel resection 14 months ago where 14 inches of disease was removed. I then had a colonoscopy 10 months ago and...
My daughter is 22 months old and when I conceived her I was on CIMZIA and stayed on it throughout my pregnancy except the last trimester. I worried the entire time and even had an obstruction, but in...
Hi Everyone- It has been a while since I have been on. I have been searching for anything about Cimzia and pregnancy or nursing. I am currently 10 weeks pregnant and I only know that cimzia has not...
Hi All- I haven't been on here in a long time. I have been reading, but not posting. I don't know what to do. I had a baby two years ago. I have been in a constant flare for most of the two years. My...
I am thinking of you. I had my baby girl one year ago and did the same questioning. She is the greatest joy along with my son and I LOVE every minute with them. The joy of my kids is one thing CD...
I just recently started taking immodium due to a difficult boss. I was scared I would be constipated. Funny huh? I took two extra strength after my first loose bm and I didn't go until the next day...
Great Job!!!!! I have a passion for education, being a teacher, and everything is harder with CD. Nice work. Kgirlie...
Hi All- As most of you know I have CD with a perfectly healthy husband, whom I adore. Yesterday he woke up tih a tummy ache a the big D. He whined and said I don't know what to do for this. I said...
I struggle working full time and I do not have an understanding boss. I am a teacher, so I need to cover my class during emergencies, but my fellow teachers are wonderful. I figure if my boss tries...
Thanks, that does make me feel better. My mom keeps telling me to let it go, and for my health I will. I will take note of it and then I will put my notebook away and let it go. I am starting to...
I got the results of my small bowel follow through. It showed that my disease has spread since feb. My boss is being a jerk because she thinks I should be better. The probelm is I am better, but I am...
My biggest ahng up on the Imuran is the safety of prenancy. My dr said there are risks for birth defects and with my other two kids I wasn't on any meds. That is probably part of my problem, but I...
I just had one last Wednesday and I think it is one of the better tests. Me guy said it could last hours, but I told him I am quick. From drinking the barieum to finished x-rays is about 30 mins for...
Oh all the pain we go through to have a few good days. My thoughts are with you. I have another cade treatment coming up in one week. Good luck!!!!! (((((HUGS))))) Kgirlie...
Wow you have been trhough a lot. Here is a BIG hug (((((Lmills))))). I have had similar issues, minus the dangerous pregnancy and have similar fears with going back to school. I don't have much...
That is what I am afraid of. I feel like since remi is working, it would be easier to switch over to Humira. I don't know what to do. I can see pros and cons to both. I just want to get better....
Hi Everyone, I am still in my flare and remicade is only holding two to three weeks, so my dr asked what I wanted to try next humira or imuran. I want humira because the remi is working, just not as...
Hi, I am the mother of a three year old boy and my baby girl is almost 1. I can totally relate. Now that I have my two kids I can see a pattern with me. I get pretty sick while pregnant, have the...
I have to say I LOVE this program. It is the only reason I can get remicade treatments. I have already been reimbursed for my first two treatments. They send you a debit card and put the funds on...
Hi Jen- I had severe weight gain (70 lbs in 12 weeks). It is a nasty drug. Maybe you are tapering too slow. I went 15 to 10 to 5 to 5 everyother day and then done. It probably wasn't too smart, but I...
Hi All- I have been flared for a while. Started remicade in April. I have had four doses and it is helping for only about two-three weeks. My dr said I should try something else. She wants me on...
Hi Jen- I don't have advice, but I have been experiencing the same symptoms. It is tough, but I continued off the pred and I am just dealing with it because it is bound to get better. I take zofran...
That's interesting about remi. Could that be a side effect? I am begging to go on Humira because I can't miss work every six weeks for an infusion. I also only feel better for about two - three...
Hi JP1- I am interested to see what people post. I can't offer an opinion as I have never been on Humira, as of yet, but I started Remicade three months ago and as I can feel my CD improving, my...
Thanks for your kind words. I have an appt for Tuesday and I am going to try and go twice a month. Then I shouldn't stress too much about the money. I am excited, but a new dr is scary. It will be...
In the past three days I have been talking with my friends and one said I am angry at this DD, one said I worry too much about things I have no control over, and one made me promise to get into...
Wow, what a thread. You know when it is so hard to hold on and wait for one more day... I am truly blessed. I have a great husband, who seems to be struggling right now with my DD, and two beautiful...
Wow Texan, you are a brave, strong woman. I am so impressed and inspired by you. Keep your chin up and remember this is a blessing. You will find an even better job soon. We crohnies are tough and we...
Oh, Sarita, I can relate. It is so exhausting being sick. Not only on us, but on our hubbies too. I hope they have answers for you. I begged my dr to get me better by now, and again I am going in...
No, but I put on 70 lbs from the prednisone, so I probably sneezed or something. It went away today for a while and then came back. I think something is brewing, but it better go away fast because I...
Thanks for your responses. I called my dr and he said he didn't think it was a reaction. He said it sounded like a pulled muscle. It probably is. I will just rest and try not to move much. I guess I...
Hi All- I had my fourth remicade infusion last Wednesday, 7/2. I haven't been feeling well, which is typical, but I have this pain on my left side of my body. It hurts to move. It feels like I have a...
Just tonight I went into a handicap stall that said, reserved for disabled people, so not use if other stalls are available. Well, I'll tell you, go on prednisone, gain 70 lbs and you won't be able...
Celey- I think we have the same life right now. I went off my depression meds 'cause I ran out of money. I got my rheumy appt for Aug. 24. It takes forever to get in where I live. I have horrible hip...
I don't want to be discouraging my mine is going on 11 months and it has been debilitating. Good luck to you. I have had crohn's a while and this is my second major flare. I tend to have my worst...
Thanks for the info. It was again, great info and it really has me think about my options. I think I will give it more time and see how I feel. I will start marking when my symptoms come back so I...
Hi Kay, I hate jumping through their hoops. I would double check and make sure your dr marked chronic condition and make sure everything is filled out. If it doesn't apply to you put N/A so they know...
Thanks for the advice. Matthew- You had a lot of good things to tell me that I didn't know. I am only on remi right now. I stopped prednisone a week ago. I am not on 6mp because my dr didn't know if...
Hugs to you Roni! I struggled with my last pregnancy and was so happy to have my baby girl. I am thinking of you. My prayers are with you. Kgirlie...
Hi Everyone, I feel like I only post when I have issues. I LOVE reading and learning and I hope this hasn't been posted. I checked the remicade thread, but didn't find what I was looking for, so here...
Hello, I just started remicade myself. I was in a flare for about 6 months before all other meds failed and it came down to remicade. I was worried because once I started remi I knew I would be on it...
My thoughts are with you. I have insurance and I called a rheumy and I can't get in until September. Better than nothing I guess, but just three more months of suffering. I absolutely feel your pain....
Thanks for your replies. Ides, I am calling my dr to get a referral of a good rheumy. Sometimes I feel like it's all in my head and I should count my blessings, but on the other hand I want to raise...
Hi Camjames, Remicade is my miracle drug. I have had three infusions and was able to wean totally off my steroids. I went into treatment (remi) not expecting to feel better. I actually didn't notice...
Hi All, I need some suggestions. I am in a BAD flare, going on ten months, and I have a few problems. I gained over 60 lbs in three months due to the prednisone, hard on my self esteem too. I am now...
That sounds like me. I have my third remi treatment today. I sleep for about two days and then I feel great. Remi is MY miracle drug. Good luck to you. I am pain free also, yeah!! Now if I could only...
I'm glad you got in. I know the wait can be long. Good luck and I hope they can get you feeling better....
Ne ne, You met for one hour and she had a diagnosis? Or had you been seeing her for a while and after her full work up she came to that conclusion? I'm sorry to be nosy, but that seems odd to...