The people who have all these side effects are the ones who usually abuse it. If you use it as recommended, the side effects should be minimal....
Do you have any testimonies/links to any patients that haven't had to re-dose for 2 years or more? I've read several blogs of patients using hookworms and they all had to re-dose around the 6--12...
It takes a few months too see any benefit with the antibiotics. Most people who I talked to who used them said it took about 4-5 months before they noticed significant improvement....
That sucks to hear. So I'm guessing the RMAT's not helping?...
Copaxone is actually in phase II trials for Crohn's right now. Good to hear your MS is stable though....
http://www.eurekalert.org/pub_releases/2009-07/muhc-tae070909.php ...
Ok, it's called OPC-3. I searched for it in Youtube and there's even stories about it on local news stations (even The View lol) so that gives its some credibility, but at the same time, I don't...
I have a good idea about which product it is, but I'm not sure if the mods will let me post the name. It sounds too good to be true, but I might just bite the bullet and give it a shot. Not much else...
That's really strange about the GVHD. As far as I know, GVHD only occurs during stem cell transplants when the immune system is knocked out by chemo, not from adult stem cell infusions. This is the...
There's nothing going on right now. No word on when the new Phase 3 trial will start. So much for it being fast-tracked by the FDA. This drug looked like it was going to be the next big breakthrough...
I wonder why he prescribed Rifampin instead of Rifabutin? Most of the RMAT studies use Rifabutin instead. Anyways, I hope it works for you. I've read posts from people having remission of up to 10...
I'm thinking about it myself. One of the members who used to post on here has been on hookworms for over a year now and he's in remission - no symptoms of Crohn's. Even Humira didn't work as well....
Really interesting article. There are also links to a couple of videos with patient testimonies on the right side of the page. http://cbs5.com/health/hookworm.treatment.therapy.2.1016319.html Also,...
I haven't had it done, but I've heard of people having no problems for years after having it done. Are you experiencing more problems since going on Anti-MAP therapy?...
Well it depends what your defintion of remission and cure are. I'm not saying there's one cure-all but there are different cures for cancer whether it be by surgery or chemo or radiation. Sure some...
You can try contacting Dr. Chamberlin in Texas to get on Anti-MAP therapy, or he can speak to your GP about the protocol who can then prescribe it to you....
There's no cure for polio. It can be prevented through a vaccine though. There've been plenty of diseases that have been cured. Don't forget most cancers are cureable. Even Juvenile Diabetes is very...
Ask them why they can't come up with meds that don't have death or other diseases as side-effects?...
stirling_dad, I'm assuming you were on the Anti-MAP protocol? How did it go?...
How is the anti-MAP antibotics going so far? Any improvement? Side effects?...
Maybe try to get in contact with Dr. Shafran, Dr. Chamberlin, or Dr. Saleh Naser, although Dr. Chamberlin prescribes Levaquin now instead I think....
It caused a flareup for me too....
There's also a doctor in Texas who prescribes the antibiotics - Dr. William Chamberlin. Jay, Are you only going to be on the 2 drugs or will you be adding anymore later on (Clofazimine)?...
Yellowfin, Do you realize how much money the company that finds a cure first for any disease will receive? What about the HPV vaccine? Why would the pharmaceutical companies try to prevent cervical...
Yes, well the article only talks about[b] severe cases...so that doesn't help those who don't fall under that heading. How would you feel if I received a cure for crohn's b/c I have severe disease...
Nobody said it's the end all solution. Not all Crohn's patients have it. However, studies show MOST patients do. I think it's worth a try. Read this article:...
http://www.sciencedaily.com/releases/2008/11/081107143750.htm Read this....
Imuran works on the immune system, it's not a topical med like Asacol....
CD is not a genetic disease. There's a genetic component to it but it's not a purely genetic disease like Hemophilia or Cystic Fibrosis or Sickle Cell Anemia. If it was genetic, you wouldn't be...
Jay, Excellent news. Please keep us updated. I have an appointment next week with my GP to convince him to put me on them....
Warning: This viewpoint may offend some people. Gladbag, it's great to hear that you're doing well, but that's not really a future I look forward to - having most of my intestines removed. Sorry if...
Nobody knows really. There are some blood tests and culturing techniques, but they're not widely available. The majority of Crohn's patients have been found to have MAP in their bodies, so they're...
Well they're much safer than the alternatives like immunesuppressants or anti-TNF drugs that give cancer, MS, lupus, psoriasis, TB, deadly infections....
I'm looking into trying it right now actually. No other meds have worked for me so far. I've tried to get lots of doctors to prescribe it, but they won't do it. If you're in the states, I know...
Hi v.scho, I'm just curious where you heard the 70% figure since the phase III trial isn't over yet. Did the NIH say that? Anyways, please keep us updated if you get into the trial....
It's an IL-12/23 inhibitor. I've read accounts from patients who have Psoriasis that it's almost like a cure for them, causing close to 100% clearing in the majority of them, and like another poster...
I'm sorry for offending you, but how is giving HGH any different than anabolic steroids? You do know there are a ton of side effects with HGH and it's illegal for "bulking up", right? HGH will cause...
No responsible doctor will give HGH to a kid who wants to bulk up. He should be put in jail. Your son is only 16, he's not even done growing. Why don't you just go ahead and give him anabolic...
'Broken' bacterial sensor doesn’t detect harmful bacteria in the digestive system..."Studies like this one give us a better understanding of key pathways and pathogenic mechanisms involved in Crohn's...
New genetic markers for ulcerative colitis identified http://www.eurekalert.org/pub_releases/2009-01/uops-ngm010209.php ...
Did Dr. Borody mention anything about Prof JHT's anti-MAP vaccine?...
I don't think they're trying to repair the gene, just increasing the protein that the gene produces since it's low in Crohn's patients. It's like the IL-23 gene which is found to be mutated in...
Study sheds light on cause of bowel disease But I gotta add: I subscribe to the idea that our societies have become so "clean", our kids don't get the exposure at young age to all the "bugs" around...
http://www.lifescript.com/Health/News/Reuters/2008/11/11/Iron_in_water_supply_linked_to_bowel_inflammation.aspx "According to Aamodt's group, these findings can be 'explained by increased oxidative...
Wow, thanks Keeper! I'm buying this right away! I have a stricture in the TI and no treatments have worked so far. It's worth a shot!...
Thanks for the link Keeper. So it looks like the inflammation causes the dysbiosis, not the other way around....
http://news.bbc.co.uk/1/hi/health/7679347.stm "A shortage of naturally-occurring bacteria is thought to trigger the inflammatory gastrointestinal disorder by over-stimulating the immune system."...
They found out the hormon is estradiol, I believe. It's in clinical trials for MS right now. Hopefully Crohn's is next....
http://www.medicalnewstoday.com/articles/125715.php A new study reveals that specific types of bacteria in the intestine trigger the generation of pro-inflammatory immune cells, a finding that could...
I think this drug could be more effective than the Anti-TNF's. I've been following it for a while. It's about to be approved for Psoriasis. It's pretty much causing 100% clearing in patients with...