I use the Wal-Mart brand. I find that it works just as good as the brand name and is 1/2 the price. I call it my "recreational drug". LOL...
Just remember, everyone is different. With that being said, I have seen a big improvement in my symptoms. The only side effect I have noticed is that I am super tired the rest of the day after the...
I have been on Remicade for 3 years. The numbness in my fingers comes from low B12 levels. Have you had this checked?...
I have type 2 diabetes. Long acting shot in the AM plus 3 short acting shots durintg the day. I recently received a cortisone shot in my knees for OA. I really need these shots to walk. My glucose...
I have been on Remicade after Humira for about 2 years now and the difference is remarkable. Remicade has given me part of my life back. My GI also has me on Imuran. While it doesn't work for...
I am on both Remicade and Imuran. While it has given me a lot of my life back, I am tired a lot. I usually have to take at least a 2 hour nap each day. I retired early at 60 years old because I could...
Call Remicade on the number listed on their site. Ask about the Remistart program. I pay only $5.00 per visit for the infusion and the Remicade is covered by them. All you have to do is send in...
I had to put mine off for 2 weeks due to a bad cold. I was running a temperature and they would not give it to me. I didn't notice any difference....
My GI has always had me go on low residue diet a week before the procedure and liquid diet 24 hours ahead of it. I've never had a problem and the prep the day before is a lot easier....
I also take monthly B12 shots. I have had Crohn's for 25 years and have developed Pernicious Anemia. This comes from the intestines not being able to absorb it from food. The intestines are missing...
I think the stats say we are at a slightly higher risk for cancer. But, with all the colonoscopy's we have they would find it a lot sooner than that of the general population. Just my opinion....
Thanks to everyone for the info. I will give Remi a try. It seems that the serious side effects are rare and the benefits are strong....
Thanks scifigal2k. I know I should stay off the internet but I feel I should be informed. I don't want to go into it eyes closed, so to speak. I did read those stats and yes they do make sense. If it...
I am getting ready to get my first infusion of Remicade and the side effects are scaring me A LOT. I've had Crohns Colitis for almost 20 years. Asacol didn't work, neither did Imuran. My GI wanted to...
I have been on it for over 1 year now and I haven't experienced any of the side effects. I have had CD for 20 years and I find that this drug works best for me....
I had thyroid cancer in 1975 but was not dx with Crohns until 20 years later. My 31 yr. old son had thyroid cancer 2 yrs. ago but no Crohns. I don't think there is any connection for us but everyone...
I have several reachers. They are marketed as "Gophers". You can buy them in almost any store. They work great. They are about 3 foot ling and has a lever on the handle that opens and closes the...
I had mine removed in 1975 and things were a lot different then. But, my son had his removed 2 yrs. ago. The surgery was only 1 hour, he was in the hospital 2 days and out of work for 14 days. His...
According to my doctor and pharmacy, they can no longer manufacture it because of some kind of shortage of the ingredients. My doc switched me to Nascobal 500 mcg nasal spray. I take tjis once a week...
I had cramps in my legs too. So bad that they would wake me up and also all day when I am working. My doctor checked my Vit.D levels and they were very low. I've been on a mega dose for 3 months now...
I have no thyroid due to it's removal and I still have some of those symptoms. It was removed 38 years ago. Make sure your doctor has you on the right level of meds. Also you may want to get your B12...
You might want to Google Pernicious Anemia. I have had Crohns for 15 years and Pernicious Anemia for almost all of that time. I can't absorb B12 so I have to take injections monthly....
Just a question. I have mild to moderate Crohn's. Has anyone taken Glucosamine for their achy joints? I have researched it online and found some good things about it and my Doctor said to try it. I...
I normally post on the Crohns site but have been on this site looking for other info. I have Crohns disease and was hypothyroid. They removed my thyroid in 1975 due to a malignant tumor. Also, I have...
The storm is raging as I type. Still have power, hope it stays that way. I live in Norfolk, Virginia. The beginning of the week we had an earthquake and now a hurricane. Talk about an active week!!!...
I am one of 5 children. Neither one of my parents have it. I also have 3 children, 35, 30 and 27. None of them have it. Seems like I'm one of 3 cousins that have it....
I had to change my PCP because my previous one moved out of state. My first question to her was, Have you ever treated a Crohns patient. She said yes. Then she asked me how to spell it!!! I quickly...
I was DX in 1996. I believe the events leading up to that year were my triggers. I lost my dad in 1990. He had 2 uncles who were almost the same age as he was. They both were also like fathers to me....
I too have pernicious anemia. If the condition is not treated, it can result in permanent nerve damage. One symptom I had was tingling in the hands, fingers and my feet. My doctor explained it as in...
I work in a bowling center with 40 lanes, spring break this week so we are really busy. As I sit on my "throne" I hear a voice saying, "Courtesy flush please". Even the automatic air freshener didn't...
3 of us in my family. We are all cousins, but each of us is in a different generation, all in different degrees of severity. 1 dx when 13, 1 when 30 and me at 42....
I think what you are seeing is the shell of the Asacol. I have been taking it for 8 years and see the same thing. It has been discussed on here before and I hope someone will come along and explain...
Have you tried Vaseline? Most of the time that works for me and is inexpensive....
Yes, almost everytime. And it seems to get worse if I'm active and walking around like in a store shopping. I'd be interested to hear anyone who has a cause for it and a way to stop it, if any. I've...
Yes, everyone is different. I have been on Asacol for 10 years with no side effects. :yeah:...
Norfolk, Virginia. :yeah:...
Yes, I was taking Metformin and the side effects, at least for me, never did go away. The D was awful.My doctor said it would lessen as the meds got into my system, but after 30 days, they never did....
Ragbag, I have had excellent results with Asacol. I have been on it for 10 years, although I have a mild case of CD. I have not noticed any side effects, other than a slight backache when I first...
I don't know if anyone else has tried the hullless popcorn. It doesn't bother me, it's a little more expensive than regular popcorn and comes in regular and cheese flavored....
Have Crohn's, Pernicious Anemia, Thyroid removed, Type 2 Diabetes. Now, I've really depressed myself!!!!...
Crohn's, pernicious anemia, thyroid cancer-it was removed 30 yrs. ago, high blood pressure, type 2 diabetes, arthritis, vertigo, kidney stones. And with all these ailments, I feel lucky to be a part...