Hi Everyone, This was my first not much fun experience. I am used to my Crohn's pain, but this was far different. When eating, almost after the first few bites, pain at the top of and an overall ache...
Earlier this week I took a breath test and was positive for SIBO. I started taking Xifaxan which does seem to be helping. I've also been doing some research which mentions that I should also change...
This one is for Filgotinib. Has anyone actually gotten the drug and improved? What to expect? Thanks!...
Straydog thank you so much for your input. I have made my list of medications and other notes. I can't help but be a little nervous. Fingers crossed!...
Hi Everyone! I got a letter from my insurance about my "second level appeal" for the IV Ig treatment next week. I can join by conference call. It states the committee may ask me questions. I have not...
Well, I am still waiting for insurance approval. We are on our second appeal. Thankfully my doc is not giving up! Has anyone had luck talking to their case manager? Thanks!...
UBTough thank you. I am still waiting for the precert, etc. They didn't know if it would be approved, etc before my next Entyvio dose on 5/8. It would be great if I could do it from home at some...
Thank you Straydog & UBTough. I just found out yesterday they will be using Gamunex. I do not know what the dosage will be, though I have read it is usually based on your weight. It will be...
I had a great run with Humira. Not so great with Stelara & Enyvio. Now my GI wants to try IV Ig. Has anyone tried? Good/bad experience? Thanks!...
Unfortunately my experience has not been good. From the start, I noticed severe fatigue and an odd cough, which seems to be from drainage/something "just sitting" at the back of my throat. I have...
Does anyone know how many dilations can be done before surgery is recommended? i had one done back in June and started Stelara in July. My GI scheduled another colonoscopy next month to see if the...
I too have had a hard time getting the injectable B12. This has been a problem for the last two years whether it is my GI office or the pharmacy (CVS & Walgreens). I was able to get it for a short...
Lanie, thanks for your reply & info. I wasn't certain how long to wait after exercising to check it. This gives me more to research before seeing my PCP. Changing WHEN I take the Azathioprine & the...
At my recent work health check, I was told my fasting blood glucose was high (112) & recommended I get an A1C test. This was the first time this has happened so of course I automatically suspect my...
I also found the thigh to be extremely painful (one time did it for me!). I let Humira sit out at room temperature for about one hour. I also take Benedryl & Tylenol 30-45 minutes beforehand, and...
Senokot S worked great for me for the most part but in my quest to reduce number of pills, whether prescribed or over the counter, I found that eating 1 TBS of finely ground flax seed every other day...
According to my last colonoscopy, there are NO signs of active CD! The first time since diaganosed in 1988. I have been taking it since it was FDA approved for CD in 2007. That being said, I am now...
Do you have your appendix? I had a mass/hard knot in that area which prompted exploratory surgery and being diagnosed w/CD. Mine was a result of scar tissue that had formed on my appendix from the CD...
Since my CD has been under control/inactive (thanks to Humira), I now have the constipation problem. A BIG change from diarrhea & upteen bathroom trips a day! I tried using the Benfiber, etc, but...
I know its not recommended while CD is active, but what about when its not? Anyone tried this? Does it help? I've seen it recommended for those trying to lose weight. Just wondering!...
Hello Friends! I apologize for the late post... /community/emoticons/smile.gif ...
I take my shot on Friday nights anywhere between 7 & 9 PM. I can feel it "kick in" after a couple of hours. It makes me very tired and will last through part of Sunday. By Monday I'm ready for...
Thanks for the replies. Yes, I also take azathioprine (100 mg day) & Humira (biweekly). I did see in the patient info that Pentasa can cause joint pain, though that is considered somewhat rare....
My doctor told me on Nov. 25th, that I could stop taking Pentasa (4 X 500 mg per day). After a few weeks, I realized that I have not had any joint pain. I hurt everywhere it seemed, elbows, knees,...
For the past year my CBC has shown my liver profile to be steadily increasing. This didn't start happening until my azathioprine was increased from 75 mg day to 100 mg day. I'm still not in...
Before anyone gets a hysterectomy, please talk to your GYN about Novasure http://novasure.com/ My GYN recommended this for me. My periods became worse every year. I didn't know if it was the period...
Finally! I did post earlier about night sweats and humira. They are terrible! Plus, they have no rhyme or reason as to when they happen. When I first started humira, my dose was 40 mg every two...
Hi CT, Thanks for your response. The 6-MMPN is: -
I'm very confused about these results. The Prometheus results shows the 6-TGN @ 111. The reference range is 230-400. My AST/SGOT is 44, reference rang is 0-32. My ALT/SGPT is 48, reference range is...
Geez, here it goes again. Tendenitis is back in my elbows. I just got the steriod shots in them ~3 weeks ago. I've just started having this problem less than 6 months ago. My GI doc says it is...
I've been having problems w/tendenitis in my elbows for the last few months. Has anyone else had this problem? My CD is inactive. I take Humira and wondered if that could be part of it?...
Kitt, My medications have not changed except for Humira. Curley, The Pediatric Support Group meeting was a success and will just get better. Mark is feeling better. He and Stan came to the meeting to...
This sure is a bummer! I called the 800 # to ask about night sweats and humira. The suggestion was to talk to my GI....like that's going to help me any! Don't get me wrong, my GI doc is wonderful,...
Curley, I'm sorry about your dad. I looked for you at the program last night. I knew something was up....take care....
Humira makes me really tired also. I take my dose on Fridays after work. I can feel it kick in after a few hours. I hate doing the dose on the weekend, but need those days to get my strength back....
Thanks for the replies. Keah, My Crohn's does seem to be doing better. The spasms are gone. I've had mild cramping, but not terribly bad. I'm wondering if I need a higher dosage of Humira. I don't...
I was wondering if anyone has experienced having night sweats after they started taking Humira? I don't remember noticing this problem after my starter pack. I am now on 40 mg bi-weekly. Thanks!...