Living in New Zealand where we are on a fault line and often have earthquakes I have always been worried about "The Big One". I have a medium sized suitcase on wheels that I leave in my car boot all...
I have lots of gas too and sometimes it is especially bad - lift the wallpaper off the walls bad. If this happens while we are out shopping or with other people, I get really embarrassed so my...
I have been on 6MP for a couple of years now and I have suffered from very similar fatigue as you Chronicallyill from the very beginning without let up. I take it at night but still have the bad...
Hi Downunda, I'm in NZ too. I was on the SCD for 5 months and made my own yoghurt. Apparently the Kambrook yoghurt maker is the only one you can use to make yoghurt because you need to 'cook' it for...
Just thought that i would update you on where I am at with this. It looks like I wont be going ahead with treatment because the infusions deposit the bacteria in the large bowel and my Crohns is in...
I average 6-8 most days but when flaring badly it can be as many as 20-30....
My doctor recommended a baby cream too - he said to make sure it is one with Silicone in it as this protects the skin. I have used this for 3-4 years now and it is brilliant. :yeah:...
I have two sons - 30 and 26 and neither show any signs of Crohns, however I have a sister with Crohns, another who is not diagnosed but is likely to have it and an auntie (my Dad's sister). We also...
I just love coffee and can't stand tea but have found if I drink coffee I get immediate D. Now I limit myself to a couple of decafs a day and that is ok, any more than that and I am running to the...
Hi All, I am 51 and live in Christchurch, New Zealand. I was diagnosed with Crohns in 2005, 3 weeks before I left to go to my son's wedding in Sweden - at least a 24 hour plane journey from here. I...
Hi Everyone, I just wanted to update you all on where I am at with the Fecal Transfusions. I have just returned from my trip to Sydney to start the first step on the treatment. I had blood tests and...
Hi Dragonfly I know how you feel, my husband and I have not had sex for months and months mainly because I am so scared of gas (mine is absolutely foul) and D. No matter how we tried to do it, there...
Thank you everyone, you have helped me put things back into perspective, this is not something that I can help and if people don't understand that, then too bad. I can face them after all I think the...
I work part time now because of pain and severe D and not knowing when it would hit but I have always managed to make it to the toilet in time. I have always been afraid of an accident. Well today it...
Jodi we must be twins! I have had tendonitis for years, really bad for a couple of years in both elbows, shoulders, hips, hands, fingers. I was born with abnormal hip joints and sockets and need hip...
Well I have had my consultation and I am going to go ahead with it. I need to go to Sydney for 3 days for blood and stool tests, then they decide if they can help me. This will cost about $1100 AUS....
Hi Kishkes I also have herpes but I am not sure what strain. I have had it for over 25 years and since I've had Crohns it has been flaring almost constantly. I am on very heavy doses of Aciclovir but...
Hi Angie I am from New Zealand and a friend of mine is undergoing this treatment. I have researched it and it seems they have had some amazing results. I am actually having a consultation tomorrow to...
I am very anaemic and tried the iron pills but they gave me terrible D. I tried iron elixir too but the doc said it doesn't contain enough iron in it so he has put me on iron transfusions every 6...
Hi sorry if this is a bit graphic. For about 3 months I have had a lump under the skin by my anus, it feels quite long and is the thickness of my finger, I can feel it for quite a way and would be...
Hi I have had tests and have an allergy to lactose, deficiency in B12, calcium, Vitamin D, folic acid and Iron - have had infusions to put the iron levels right. Once I stopped using lactose I...
Hi I most definitely have the shopping disease as well as Crohns, arthritis, migraines, lactose and gluten intolerance, gallbladder probs, Ankylosing Spondylitis and strange bone growths. I'll be...