To give you a little bit of my history.....I had a allergic reaction to Humira after my second dose on the 20th of March. I had a very itchy rash basically all over. I was prescribed predisone and...
My GI doctor did a in office scope to confirm my rectal-vaginal fistula. Then they scheduled me for a colonoscopy and then scheduled me back in to have a seton placed. My doctor is very thorough when...
It is so great to finally hear what symptoms other crohnnies have. I also have perianal crohn's. The itching drives me crazy. I have had a fistula repair on the left side of my bum and the scar...
Fallcolors- Thanks for the input. I'll try anything. Today was a good day, but the hives for some reason get worse at night. It seems that when I finally get to stop for the day... the hives just...
No- I did not have to have an abdominal incision. Since my fistula wasn't very far up - they just did it vaginally/rectally. When theypulled the muscle down to cover the fistula they attached it...
I had a vaginal fistula and was on Remicade for almost a year. My fistula never closed. I had surgery last July. I have to say it was the most painful surgery I have had. I had to have a skin graft...
I have just been taken off Remicade for several reasons but 1 was 2 wks after an infusion they finally tested the Remicade levels in my blood and found no trace. I had felt like you... 2 wks after an...
princesscolon- I feel guilty every day. I have 2 very active kids - son (ages 14), daughter (age 7)and a husband that travels. It bothers me to have my kids always saying "mom's sick". I would love...
Fallcolors- Today I am on my 9th day. I actually got about 4 hrs of much needed sleep last night. It seems so weird now that the rash comes and goes during the day. Even though you sometimes can't...
Started the Predisone yesterday. I'm taking the Predisone, 6MP, and Hydroxyzine for the itching. I rash just keeps coming. It seems to get worse in the evenings. I have not slept for 2 days. Every...
I was diagnosed with Crohn's Disease and had a vaginal fistula all within 2 months. I had a seton put in then they took it out to see if the fistula would heal, it didn't so they put the seton back...
After a year long bout with Remicade and 6MP and then trying Humira ( severe Allergic reaction)and the 6MP- I am left just taking the 6MP. I try to take mine at night before bed with a snack(crackers...
Thanks for the info. I just made a surprise visit to my doctor today to show her that I was still breaking out. She acts so surprised with my reaction. She finally put me on Predisone instead of just...
I am glad that during the Remicade and a very horrible surgery my rectal/vaginal fistula is repaired. I do not have many crohn's symptoms just lots of fatigue and now this irritating rash. Have you...
4 months after starting Remicade than last October I started having severe joint pain. They finally did a blood test after I tried and tried to tell them I felt like I was not responding. Two weeks...
Now what was I doing....... ...
trying The Makers Diet, but this would be a huge adjustment for my family. Thanks- ...