I have lupus with cd, its a pain to be honest, i get coldsores/scabs all over my face its so deppressing aswell....
Yh your right i need to keep on top of things, u lot seen to be very organized. Iv have blood tests every week. Im at the hospital in the morning so im going to make a few notes and ask the dr....
yh im always forgetting things, like my dad will ask me to hang the washing out, and ill say yh 2 secs ill do it, and i completely forget just simple things like that really. Iv had infusions to make...
i went on holiday just before i got diagnosed with any illnesses, and caught salmonella from the food in the hotel, it was the worst thing i have ever gone through....
And also my stomach is so big i look as thought im 9 months pregnant, its not water in the stomach because i am checked for that regularly, i also have a spleen twice the size it should be. is this...
Iv told the doctor plenty of times he just tells me its all related to my illnesses, i take prednisolone. omeprazole, asacol, zinc, iron, vitamin k, mycophenalate, magnesium and spironolactone...
Im always out of breath all the time, simple things like making my bed or just walking upstairs or even down makes me huff and puff, im like an old woman....
My hair falls out all the time, the doctor told me not to worry, i used to have really really thick hair now its so thin...
I have night nurse if i cant sleep it totally knocks me out...
I used to get cold sores all over my face, it was awful....
Hi everyone, thanks for all your advice, just had to dig an old letter out with my diagnosis on, they are: Auto-immune hepatitis systemic lupus erythematosus haemolytic anaemia crohns disease varices...
no in from the uk...
We have asked and they always said that they dont no, and that i could of been born with it and only recently found out. I was actually diagnosed with it at the age of 14 which was strange for me. It...
Ever since i was diagnosed with liver disease they have never been able to tell me how or why iv got it, my dad was a terrible alcoholic before i was born, me and my mum have been talking about it,...
Its just me panicing i think, everythings under control at the moment, and i am only 18 and thats why i panic....
I have the same thing right behind my right eye, i find nothing works for the pain, i just have to try and lie it off...
Because i have cirrhosis of the liver along with a few other chornic illnesses and because im so young and iv been told my liver isnt doing to good, reading the awful things that have been happening...
These forums scare me at times....
A couple of nights ago, my mum who has breast cancer wasnt to well at all, so at 2 in the mornin i rushed her to A&E where we sat paitently waiting for at least 2 hours which doesnt bother us as its...
oh yh it is, i had all these when i was young, back then i didnt no the names of anything, i just used to scream and demand they wernt doing it, but they always did. I remember it tasting like...
whats the small bowel folloe thru xray? isit that were u drink that liquid and they watch it travel thru ur body?...
i have quite a few done, they dont hurt at all and to be honest they didnt bother me one bit...
Im doing fine thanks, nothing i cant cope with or im not use too! been given a new drug called retuximab (not sure on the spelling) that seems to work wonders for me....
Hiya im new here just thought id introduce myself, im 19 but was diagnosed with crohns when i was 14 along with liver disease, lupus and a few other bits and bobs bit of a funny combination eh! And...