Were your three treatments initial doses? If so, it can take some time for Remicade to get in your system when you are flaring bad. I would definitely try to get your pain under control until you...
Are you any medications? I'm on Remicade and have drug induces Lupus. I was feeling a lot like you were only no fevers....
All day, everyday! :) I do have low Vitamin D but even since my levels have risen, still tired. Brain fog is what's driving me crazy...Frustrating!...
Welcome! I'm sorry you're not feeling well. Are you getting treated for your Crohn's? Just know that you're not alone in this journey. Maybe some more info on your treatment plan and others may be...
Thanks T. The pain hasn't subsided so I'm headed to the GI today. Hopefully I'll get some insight....
Sit outside, take short walks, go visit family (my family lives very close to me). I've also gone to the library, picked out a book and picked a table near the bathroom and read a few chapters...
Hi all! I have Crohn's disease and on Remicade infusions every 8 weeks. After the last two infusions I experienced horrible joint pain. And now I'm having upper stomach pains leaning more on the...
I was just tested for antibodies for Remicade. It's called Anser IFX. I just had my blood drawn yesterday and hope to get results in 3-5 days. I was having symptoms that leaned towards me having...
I'm the same as n.student. I ache all over, all the time, worse in cold and coming off prednisone. I also have Remicade induced Lupus, and low vitamin D which can also contribute to my already aching...
When I walked my team name was "April's Crohnies". You could always do "Kevin's Crohnies" or "Kasper's Crohnies". :)...
I feel that way too when I'm feeling well...like maybe I'm making a bigger deal out of it then it seems. But don't! It's your body and the one feeling like crap. Three years ago I had the worse flare...
I know exactly how you all feel! The funniest piece of advice I've received, out of MANY, was from my dad. He told me just to eat cheese...cause cheese will slow my bathroom trips down or "plug me...
My GI wants me on a low fiber diet and use fiber supplements. I guess it's more gentle on the digestive track. I haven't started any supplements yet to see how my gut reacts. Right now I'm in...
I've searched and didn't find what I was looking for so I'm posting... /community/emoticons/smile.gif I've been having terrible anxiety about death lately. Not only my own, but my family. In 2010 I...
I was on Remicade and had a flare. My then GI took me off and I tried other medication. Then a few years later I was in another flare and my current GI put me back on Remicade and I've been flare...
I've had at least one flare in every season. My worst flare to date was in July/August. My Vitamin D levels are always low. I'm on 50,000 IU's 3x a week....
Thank Roni! I'm hoping it's my nerves and not the start of something. I see my GP tomorrow so I'm going to talk with him about it. Thanks again! April...
I also have Crohn's Colitis and have been on Remicade (this time) for two years and it's working well. Trying Remicade again was last resort for me due to being on everything out there, including a...
Hi all! I've been dx with Crohn's disease for 12 years. I'm not current'y in a flare, I'm on Remecaid, and been under some stress (good) due to getting a promotion and getting married in 2 weeks....
Hi all! I've had Crohn's Colitis for 12yrs. and it seems that everytime a flare starts it's differnet than the last. I'm having pain that comes in waves, sometimes to the point where I get light...
Don't apologize for your pity party! I'm sure we all can say we've had one...I know I have. Taking anything new is scary, especially when you hear horror stories about the side effects and don't know...
Oh Prednisone! The Love/Hate realtionship us Crohnies have with that drug. I agree with Nanners...it will help get your symptoms under control letting you enjoy your vacation. I think you're on a low...
I wondered if he had some type of digestive disease after they annouced he was hospitilized twice in two weeks. It's good to see he's not letting it stop him!...
I don't have any real advice except to be sure you stay relaxed. Being tense can make it worse. Good luck and I hope you start feeling better....
Thank you for your replies. I've been feeling icky for a few weeks now. I always feel that I'm making a bigger deal out of things then what they are. I went to the ER about a month ago cause I was in...
I have the same issues. I've been seeing my Rheumy for a few months now. My ANA was elevated and my Rheumy did say at first that it could be my Crohn's elevating my ANA but I've had a CT and it...
DD-I've also been SO tired lately. And it's even worse when I'm PMSing. Somedays I get home from work and I go lay in bed or on the couch. I believe it's the disease too. I have the running nose,...
...what symptoms do you experience to make you say "I'm flaring"? Or what constitutes a flare for you?...
I've been on Humira and Cimzia (as a trial, flared almost right away). I'm not real fond of my GI so I'm going to see about getting into another one. I really don't want back on prednisone...I had a...
I've been on Remicade this time around for about 1 1/2 years. It was last resort before surgery. (I've been on everything else that's out there!) It seems to be working ok. I've been having lots of...
Thanks ivy for the warm welcome back! I haven't heard of that trial but I'll look into it. @njmom Thanks so much for your advice. I just want to have some options when I talk to my GI. The...
I'm not concerned with the diarrhea or upset stomach cause I already deal with that on a daily basis with my Crohn's. My concern is the anxiety and mood changes. I didn't have those symptoms (most...
@rslnight Yes, I've been on Humira and Cimizia (I did that as a trial.) Remicade is working for my Crohn's symptoms but this is the second time around. I was on it for 4 years, off for about 3 years...
I do take it with food but with my Crohn's...upset stomach and diarrhea is going to happen whether I take it with food or not. Mental changes, mood swings, anxiety is listed as unlikely side effects...
@dunny2 Thay's my concern...am I tolerating it if it's causing Lupus? Thanks for the luck...I need it! @ Dana Drug induced Lupus is caused by hypersensitivity reaction to a medication. The drug may...
Good morning! It's been awhile since I've posted. Things have been going ok. Life has seem to got in the way of my HealingWell posts. /community/emoticons/wink.gif To give you a quick history...I was...
Hi all! I usually post on the Crohn's board but Lupus is new to me. I've searched this site to see if I could get some answers before I posted but nothing was showing that I felt answered my...
Oh another thing...when you lose hair to medication it almost always grows back once you stop taking it (or when it's totally out of your system.)...
I'm also expericencing severe hair loss. And it's an awful feeling! /community/emoticons/sad.gif I stopped taking prednisone end of September, beginning of October after being on it for 4-5 months...
I was on it for 4 years about and stopped in 2005 (just started back on it due to a flare that I couldn't get under control.) The only things I've experienced are risk of infection and my veins are...
Thanks Nanners! I've had my gallbladder out and haven't had pain there except for the last few months or so. My GI and I are assuming the cysts are why I'm having the pain. I'll just have to wait it...
Hi all! I haven't been on here in forever so I hope everyone is doing well! I've been feeling well with my Crohn's except I was having some pain in my upper and right side of my abdomen. I had a CT...
MAG, thanks for your response. Right now I'm on Methotrexate. I've been on both Remicade (4yrs.) and Humira (1yr.) On both I built up a resistance and they quit working. MTX seems to be working...so...
Hi all! I had my colonoscopy today and the GI said there was no inflammation (YAY! /community/emoticons/smile.gif ) but there was scarring in the colon. I haven't had any surgeries so the scarring is...
I'm right with you Becca! I've been using them for a couple years now and LOVE them! I would get them no matter the cost....
Still feeling icky and probably even more after my MTX shot tonight so I'm keeping Saturday simple... -clean, clean, clean! My place seems always a mess! -watch neice and nephew -spend time with...
Nanners- I'm glad you gave me both sides. I think that's why I'm having such a hard time because I don't want to interfere or be a burden on their lives. I would definitely ask...my mom jokes about...
Jean- I know my mom and dad really wouldn't care I just feel bad intruding on them in a time that they should be enjoying an empty house. I really appreciate all the advice and encouragement. You...
Hi all! I'm feel that I'm at a crossroad here... I haven't been feeling well and let's just say I'm frustrated! /community/emoticons/mad.gif I want to get healthy which I haven't been in many years...
Today wasn't too bad Crohn's wise...Thank God for pain meds! :) I'm just struggling back and forth about what to do about moving out. I'm praying but how do you know when He answers. I don't think I...