About to pour my self a bowl of bran buds and fruit. Thanks for the advice. In the past fiber has always been the enemy, but in this case I think I need to embrace my new friend. I have a ultra sound...
Okay here it is. The last 3 weeks I have had severe constipation. I push and push and push and when I do go it comes firing out like a torpedo. There is some red blood.. could be a hemi I know that....
I am pregnant and I have Crohn's disease. My father showed signs of Crohn's when he was in his 60's..very rare. Now he has a bag. It all happened for him in 2 years. He is healthy now with a bag. I...
Toronto, Ontario, Canada...
Sorry i have never postponed mine. Hope things get better...
Has anyone gone from taking Humira to Remicade? If so what was your dose schedule. My GI had me on 2week injections of Humira for 6 months . We then decided it was not working and to go on remicade....
At little of topic but why did you stop Humaria and go on Remicade? I did as well because of the evidence for pregnancy. However the longer I was on Humaria I found I was reacting to it....
Thank you for letting me know it get's better. I have increased the remicade to 6week intervals instead of 8 to see if that helps. Yesterday was the first day I took the immuran at double dose. Next...
Sally you sound just like me. I was relieved to receive a phone call from my OBGYN to confirm the blood test and to let me know I was still pregnant. Our symptoms sound exactly a like. Thank you for...
Unfortunalty it takes time ... let the remicade run it's course. Are you on steriods.. they do a quick fix for most until everything else starts working...
I just ate a small bowl of ice cream and a spoon of chocolate icing... what the heck! Sometime you just have to give in. I have been trying Gluten free for over a month, lactose free, junk free.......
Hello everyone I know there have been many people who have gone through a pregnancy with Crohn's. I am only 5 weeks this time around. Last year I miscarried at 11 weeks and I am scared for another or...
I hope to get Pregnant in the next couple of months and I will be staying on Remicaid so I am very interested in hearing about how you are feeling. I am a Pharma Rep and have done tons of research on...
It was a colorectal surgeon. i just had it put in two days ago. I will give it a month before I even try. I am so lucky to have such a great husband : ) I didn't realize it would stay in that long......
Thank you so much IVY and Spiders. I feel like I made the right choice now, knowing that if I did not have a Seton in it may not heal properly. Priority no. one is get prego. And I think the seton...
Hello everyone. I just had a seton put in my fistual yesterday and thought I would post to see if anyone else needs to chatt about this. I failed on Humaria and I start my first remicaide infussion...
Has anyone gone off Humira and gone on Remicade. If so how did you make the transition from one to the other. My specialist did not seem to know and I think she is taking a guess on this one. Since I...
I do the shots every two weeks and alternate between leg and belly. It sucks going in but then the pain stops. The next day is the worst for me. The area swells up and is sore to touch. The third day...
This member posted a copyrighted article written by columnist Dave Barry. It dealt with Barry's colonoscopy adventure. It was published in the Maimi Herald if you care to read it....
I thought I would share in the guilt comments. I concur! I made the decision to tell my coworkers, but they don't really understand the disease. I don't think people do unless they have it. My...
Thank you sooo much everyone. Gail I wrote down the names Bentyl and Levsin and will take it to the Dr.'s office today. This morning was a little better than the last few so I will keep my fingures...
I am on Humira and have not had any side effects. I just took my fourth injection tonight. I was also in remission for 4 years but since Oct 2007 I have been in a flare up. I would recommend that if...
Hello everyone I need to hear that things are going to get better. I read the forum probably 3 times a day and search for some answers. I went to my GI's office today in the hopes of seeing her but...
not creative I can relate to your story. I have CD in the first 30 cm starting from my rectum. I am in the middle of a flair up right now and there are times I lay in bed considering surgery. Usually...
Thanks AzJonny I will look into this....
I will call my GI and try to get in earlier. It is a long weekend here in Canada so things are shut down until Tuesday. I took a muscle relaxer and it seemed to help a little. Baths seem to help as...
Well I am officially in a major flare up. And when I went in for a colonoscapy last week I have gone backwords in progress. The GI found I have 30 cm of CD disease which runs from the sphinter up...
Patientspiders I read your e-mail and I believe we have lived the same life the last few months. I had a miscarriage in March, I was just under three months. I am on Humira, prednisone, and an...
I will be doing my third injection next week. Let me just say there is no need to fret. The spring loaded pens are a breeze. In my opinion it is way less painful then getting a IV in your hand. I...
Thank you everyone. The information posted has been very helpful and I will continue to research my options. Things are getting better in some ways however I am starting to experience an increase in...
I went off the salofalk because it was the enema type not the pill and I only had to do it for 4 weeks. To be honest that is all I can handle. I found the enema salofalk exacerbates some of the...
My father just had surgery and he is recovering very slowly as he is 60 years. He was very healthy before CD hit with a dose of CMV to complicate the issue. Anyway my point is it seems to be a very...
My mother said she read in the paper that they were 10 years away from finding a cure for crohn's/colitus. Does anyone know of a resource which would support this fact. I have a question as well....
These are the times I am glad my real name is not disclosed. I have a fistula located between the anus and vagina area which is starting to bother me. I just went to a walk in clinic this weekend...
When I was first diagnosed with CD the Dr. told me to not eat read meat. Then 8 years later they said you could eat meat just no dairy. Times have changed and we now know a little more. Nothing we...
Mornings are my worst. I used to never eat breakfast. I lost 5 pound in a week so I am forcing breakfast now. I always said to my husband I would eat breakfast it I did not feel sick first thing in...
I was born in Canada and currently still live in Canada. I also work as a sales representative for a Pharmaceutical Company. Gail is quite right, Canadian’s pay high taxes for our health care and we...
This is great feedback, thank you everyone!!...
Sway Thank you very much. I try to keep the faith and trust that he is in the best care, but I must admit I do worry when things get a little complicated. I really appreciate your summary on your...
Yes he was on Imuran which is a immunosupressor. The drug he is now on is Ganciclovir. When he is more stable they will be putting him on a pill form of this drug called Valganciclovir. What did you...
Hello everyone. My father was just diagnosed with Crohn's disease 2 years ago. He says he caught it from me... . Even when he is sick he has a sense of humour. Dad has been in the hospital for 2...
Hello everyone. I am currently sitting in the hospital beside my father and thought this was worth a shot to see if anyone could help. My Father was diagnosed with Crohn's 2 years ago (he jokes and...
I have never hear of this remedy. Do you just put straight corn starch on your skin?...
I probably could put it off since I am TTC however if I do get prego then I would like to go into the pregnancy as symptom free as possible. The specialist did confirm that there is no absorption or...
Thank you for you message. This give me more confidence in sticking with it....
I am about to start a 4 week daily regime with Salofalk Enema's and would like to hear some success stories to keep me motivated during this treatment process. I have tried this in the past and never...
I had great success on remicade however it was for a fistula which eventually closed somewhat. The fistula did not go away completely however it no longer effects my life on a daily basis . I would...
Correction I think the proper name is Salofalk....
Being a new member I think that is a great idea. I have a question about Salofalk enema's which I am sure has come up in the past....
It is a lot to take and having people to talk to who understand what you are going through can help. The fact that you are on this forum makes me believe you need someone to talk to and this way you...