My wife was diagnosed with Crohn's when she was 16 years old, that was 29 years ago. She's had three bowel resections, her latest one was July 2018 and it was a small bowel rehabilitation surgery....
My wife was diagnosed at age 15 in 1989. She is now 43 years old and still dealing with it. Ups and downs, but I wanted to tell you this. We met each other in 1997. We were married in 2000. She gave...
Just another update in case anyone is following this. There was a different surgical group. This group is the intestinal transplant group. Although they don't believe my wife is in need of a...
I cornered one of the nurses from the surgeon group and asked why the differences of opinions. She said that both groups will work together and plan out the best approach...both from a crohn's...
My wife is facing a surgery. This will be her third in 28 years. She's doing well, but she has a stricture that has been giving her problems and all parties agree that it is time to start planning....
This happened before with Remicade and we were switched to Humira. It's now starting to happen with Humira, so I think our days with Humira are numbered. What other options are out there? I read...
My wife tried the pen, but didn't like giving it to herself and she did not want me to do it. So, she gets the regular shot and takes it to her PCP and they do it for her. She likes that better than...
The best thing you can do at this point is make sure you find a specialist in Crohn's, not just a GI IBD doctor. My wife and I found a doctor out of Pittsburgh who practices only Crohn's/Colitis....
Hi. My wife has Crohn's. She was diagnosed at 15 in '90. She got butchered when they did exploratory surgery because they had no idea what was wrong with her. When they figured out it was Crohn's, my...
They believe it was in the small bowel area. It was on her upper left quadrant of the gut....
It amazed me how Humira completely cleared her most troubled areas (it looks 100% healthy now), but it didn't help another area. They are going to release her today. She has no pain, bowel movements,...
My wife had exploratory surgery in 1989 and was diagnosed with Crohn's, they ended up giving her a resection then. She had an up and down battle with Crohn's for years, then she finally had a 2nd...
My wife has CD and IBS. My wife is in remission right now from the CD, but she still has to watch what she eats. If she cheats from her diet, she'll pay the next day. Milk and ice cream is her...
My wife has moderate to severe crohn's. She was in the hospital for 3 months during Christmas of 2006 and New Years of 2007 while I was at home with our 2 and 4 year old kids. I lost my mom to...
ZenaWP - How long ago did your stop Remicade treatments? When my wife went through this, we thought it was the same thing. To me, it was ironic that this pain started while she was on Remicade. She...
My wife was put on Remicade after her resection of some small bowel. After she recovered and released her, they put her on Remicade as a preventive med. After 7 months, she developed terrible joint...
Don't be alarmed with Lupus. It's not really Lupus, just Lupus-Like symptoms. And when you get off Remicade, it goes away. It takes a few months to go entirely away, but it will eventually....
Between the two, your most likely to reject the Remicade because it contains mouse proteins. Not a bad thing, but your body is more likely to detect the mouse protein as an intruder and attack it,...
My wife had terrible joint pain and it was from the Remicade. They sent her to the Rhemuatologist, tested her for a few other things including Lupus. For her, it seemed to be mostly in her hands and...
My wife's crohn is active in the same areas, and for her it is always consistent in those areas. Even after her first surgery, where they attached the cut section, it became active in that same area...
My wife has been on 6MP for 6+ years. She had both our kids on that drug, so for us, it's a wonderful drug. Any type of chemo can cause some form of leukemia, so they have to label that as a side...
A noisy stomach by itself is a good thing, at least for my wife. As we were told, that means it is working. A noisy stomach that causes pain is a bad thing, always get it checked because it will...
Hi Ladybugs. Did they increase your dose of Humira for the fistula or put you on Humira to help close the fistula? My wife had surgery to remove a blockage. After the surgery, her crohn's was all...
Yes, she is still on it. She had really bad joint pain while on Remicade, so they switched her to Humira. No problems since she's been on it, probably 10 months or so. Well, until this fistula...
My wife had a resection done in February of 2007 and was placed on Remicade/6MP. She developed a reaction to Remicade and was placed on Humira/6MP around the summer of 2007. She has been sypmtom free...
My wife is having a real hard time mentally giving herself this shot. She was doing it, but it seems that the more she does it, the harder and harder it is mentally for her to do it. I offered to do...