Hi all, I was diagnosed with CD in 2003. In Jan of this year I was hospitalized due to a bad flare. I was having horrible pain and diarrhea. I was given pred to help get the inflammation under...
Does anyone have issues with diarrhea and nasty cramps with their monthly period? I've been in remission now for 4 years, thanks to Remicade. I had a baby 10 months ago and my period has shown up...
I've been on Remicade for 2 1/2 years. It has given me my life back. I haven't had any side effects from it. It was scary to me at first too. I think any new drug can be scary. Fortunately I have...
I'm in the same boat as you. I am 29 though. I'm taking calcium, a high dose of Vit D, prescribed by my doc and just started on Fosamax. It stinks to think we have to think about osteoporosis as such...
Try sitting on a heat pad. That seems to work for me. Or a hot bath. Hope you get some relief....
My nurse always asks if I have an active infection before she starts the drug. Talk to your doctor, get his opinion....
Congrats! I'm so excited for you! You have given me piece of mind!! I hope you continue to do well!! My first baby (a girl) was 5 lbs. 14 oz. I wasn't diagnosed with Crohn's until she was 8 months. I...
I started Remicade last April. I was very scared. I haven't had any side effects and am doing SO much better. I feel better with every treatment. I wish I would have started it to begin with. I...
It is frustrating for some of us to have our own family not "understand" the disease. I've tried very hard to make my parents understand and they just won't. They think because I look fine and seem...
Congratulations! I'm 27 wks and on Remicade. I get a little nervous also about the drugs, but everything is great so far. It's good to hear all the success stories that people have!! It gives you...
Hi mirandadawn! My GI has me taking ferrous sulfate (iron), vitamin C and Calcium. I also take a Rx vitamin D. I'm on prenantal vitamins now because I'm pregnant, but before I took a multi-vitamin....
Congrats!! It's so reassuring to see that everything is ok!! Good luck!...
I would go pay the money, eat a little of everything and if possible take home what you don't eat for left overs the next day. It is frustrating to not be able to eat as much....
Thanks Stef. It does makes sense to go full term as long as things are going well, which so far so good. Like I said, I'll discuss it more with my GI at my next infusion. I appreciate your input. I'm...
Hi everyone! I'm 20 weeks pregnant. I was talking with my OB last week discussing due dates. I will get a Remicade infusion at 30 weeks and then again after I deliver. Obviously if I was to keep in...
Sorry to hear you're not doing well. Like you, I went on Imuran thinking it would put in remission and it didn't. I started Remicade last April. I've been doing really well since. I had a partial...
Kaycie - Thanks for your input. I've noticed in the past when I was flaring that my symptoms seemed worse around my period. Crohn's is very interesting!...
Thank you Stef!...
I started Remicade in April. I haven't had any side effects from it. In fact, I've felt wonderful!! Good luck!!...
Sorry if this topic has already been talked about . I'm having a hard time finding an answer. I was wondering if the Remicade moms breastfed while on Remicade. I've read that it's not good to...
Glad to hear you are doing well! Hope it continues!...
That's great! Thanks for your post. It gave me some hope for the future!...
Sorry to hear you've had such a hard time. Maybe you should find a new GI...someone who will actually take care of you. Answer to Kittikatt- if I call first thing in the morning and don't hear back...
Anyone experienced vision problems? I went for my yearly eye exam today. The last few months I've noticed a change in my right eye, or at least I thought. I was looking forward to getting a stronger...
Sorry to hear. Hope you get things figured out....quickly....
Yes, Remicade has helped with my fatigue. And, I'm also taking iron supplements. I still get tired, but it's not every stinking day that I'm dragging....
Thanks! For some reason I wasn't responding to the Imuran and that's why I started Remicade....
Yesterday I had my 3rd Remicade infusion. Talking with my doc afterward, he said I could stop taking the Azathoprine!! YEAH!! Two less pills to take and now more blood work. I've been feeling soooo...
Yes. I can't stand the sight, smell or thought of food when I'm flaring. That's one of the first signs I get....
Way to go!!...
My iron is really low also. I take Feosol Ferrous Sulfate. I take 2 pills a day, one at breakfast, one at dinner. They are small triangle shaped. They don't cause any stomach irratation, at least for...
I had mouth sores when I was first diagnosed. Canker like sores that hurt really bad. They could be a sign of a flare. Call your GI and let him know. Good luck!...
Just wondering if anyone who is on Remicade has had mood swings? I've had two infusions so far. The last week I've been really moody and crabby. I was wondering if it could possibly be the Remicade?...
I've had two infusions so far and am feeling great. I noticed a difference a week after the first one. I think it depends on the person. Good luck!...
I understand your feelings also. We've been trying for awhile for another baby. We have a 5-year old daughter. It can get you down. However, I haven't been as healthy as I thougth I was. I started...
Glad surgery went well and you are feeling ok....
Yes, keep taking your meds. Good luck on Friday! The worst part of the colonoscopy is the prep....
I just had my 2nd infusion and am feeling great! Yeah!! I was scared a first too, there are some pretty scary possible side effects. I haven't had any. It's a simple process. A good time to read and...
Welcome!! I've noticed my menstral cycle has been out of whack when the disease it not under control. Which in my case has been awhile. I've started Remicade and feeling great. Now just waiting to...
So sorry to hear you're having trouble again so soon. Hopefully the Remicade will get you feeling well again. I just had my second infusion Tuesday and I feel great! Good luck....
Glad you're doing well!...
I felt less pain and more energy a week out. Good luck with your second infusion!...
Like wednesday2007 said...don't be embarrassed. It does happen to all of us sometime! Take it easy the rest of the day, tomorrow will be better! I just had my second Remicade infusion today. Have you...
I've had those same things. Very loud gurgly stomach, lots of terrible cramping and pain. 3 weeks ago I had a colonscopy and there is inflammation causing a blockage. Apparently Imuran didn't take...
Sorry all! I think I hit new post rather than reply. I was wishing the two having sugery luck!...
Good luck! Hope all goes well!...
Good Luck! Hope all goes well. ** I Put a title to this for ya **...
I too had my first Remicade infusion (April 8th). Wednesday, the 16th, I woke up feeling really good. I thought well maybe I'm having a good day, but I've felt really well since then. No abdominal...
I also think it's the prednisone. It totally messes with you. Up, down, crazy, hungry, puffy... you know!! /community/emoticons/smile.gif Good luck and hang in there!...
LOL!! Good luck Lucey!...