Hi, I'm very sorry to hear about your son's condition. My son was diagnosed at 4, he's 10 now. If your guy responds well to the sulfasalazine, keep him on it and be very grateful that it's the only...
Hi, so sorry to hear about your daughter. It makes me think of my children. My 10 year old has Crohn's, was diagnosed at age 4. Definately take her to see a gastrenterologist and don't wait. She...
I always prefer the natural remedies, fruit and prune juice are good choices, water and other juices as well all count toward liquid consumption. Cantalope and watermelon are good to get things...
It's sooo heartbreaking esp when it's a child. I'm keeping him in my prayers. Remember, second opinions are important, being confident in the doctors also, if you're not confident, find another doc....
There is a prochymal trial in phase III that's recruiting patients. From everything I've read, including some who have been on past trials here on this site, it seems to be very promising and quite...
Has anyone had to contend with a c-diff infection? What were your symptoms? How do you think you got it? How did you get over it? How do you prevent it from recurring and spreading to family members?...
An obvious scam by the lowest life forms......
So glad to hear your daughter is recovering. It breaks my heart to hear about anyone suffering in the throws of this disease. IBD can be so merciless. My son, at 8 years, did develop DVT after 2...
Welcome, I am so sorry you're going through this. At this point I'm wondering why you weren't prescribed Azulfidine, it's the first line treatment for both UC and Crohn's. After his original...
For those who don't like spinach, my son gags at even the thought of it, I whipped up this dip, modified from a creamed spinach recipe. It only takes a few minutes to prepare. I served about 1/4 cup...
My heart goes out to you and your daughter. I know how difficult it is. You're not only battling the disease, you're also on a battle field of sorts with doctors and nurses for proper care. I know...
WOW! That's so encouraging! Thank you very much for responding. I know all too well how unpredictable and cruel this disease is. It's true it is difficult to tell if it's one thing that's helping or...
I'm curious if anyone has tried this yet. Does it work? It's currently in phase II clinical trials for CD (already been FDA approved for traveler's D). They say it functions locally in the intestine...
Thank you guys. I just knew it had to be CD related. I worry so much about the long term effects of CD on him. But I'm also very confident that better therapies are coming. JsMom...
I haven't been around for awhile because I've been dealing with my son's new diagnosis. Last February, I noticed some tiny white spots on my son's stoma. His surgeon thought it was perhaps fungus, we...
At my 9 year old's recent dental appt, the dentist immediately noted a lot if inflammation of his gums (deep red and puffy). Upon cleaning my son's teeth, the dentist commented that the amount of...
Hello Jake's Dad, You and Jake have been on my mind since reading your post. Although I'm still reeling a bit from my son's diagnosis, I felt compelled to respond to you. My son had a total colectomy...
Hi and welcome, I am so very sorry your 3 year old is going through this. My son, now 9, was 4 when diagnosed. It's heartbreaking, but there is lots of hope for relief. It's real important to find a...
bump. Is there a forum on Healingwell for those who have PSC? If not, is it possible to create one? PSC (Primary sclerosing cholangitis) is a threat to UC'ers and sometimes I notice others on here...
Thank you all so very very much! It is so comforting to have you here. Jsmom...
Hi everyone, just wanted to let you all know that my son, now 9 years old, had his rectum removed last month and is doing very well. (His colon was removed last July). Thank you God and thank all of...
Funny thread and educational!! If only the medical community would read these sites. They could learn so much!! My son had his colectomy last July at a very prominent, well known and respected...
Thank you Peggy, Cecilia, and Amey so much for your responses. I have been searching Google and Yahoo on the subject extensively. Lots of matches but they turn out to be discussions about the...
I've been reading some old posts and came across a recommendation to try short chain fatty acid enemas for rectal bleeding when the rectum is disconnected from digestive tract. I found article in...
VSL #3 worked for my son age 8 (diagnosed at age 4). His UC is particularly aggressive. Nothing else put him into such a great remission. And it happened almost immediately, within 2 days, but it...
Shaz, Peggy, Summerstorm thank you all for sharing your experiences and advice with me. Thank you for your time, thank you for the detail!! Thank you for being here!!! This forum is a great source of...
My son (8yrs) had subtotal colectomy with ileostomy done 7/07, we preserved his rectum for later j-pouch option, but UC in his rectum is constant and unresponsive to treatment, and so the rectum has...
I think it depends on the severity of disease. My UC is triggered when my immune system seems to go into overdrive as a result of physical (not emotional) trauma. My UC is not constant. My son on the...
My son's UC, he's 8, isn't related to food. We tried SCD, we tried everything. During his several hospitalizations, the doctors had him on bowel rest, no food, just IV saline, and he was still out of...
So sorry to hear about your son. My older son was diagnosed with UC at age 4 and he responded for about 2 years to sulfasalazine, but then it quit working for him. I was diagnosed with UC at age 34,...
In case anyone else is having to contend with a prolapsing stoma, I've found that what works for my son (8 years old) is to wrap an elastic belt around his waist. The elastic belt we use is about 3...
One way that I can think of that will tell you if it's blood or not is to use those occult blood tests. You may have used these in the past to test for blood in stool. You simply smear a little of...
I responded to Sulfasalazine right away, was diagnosed while pregnant in 1998. After I delivered my son (now 8 yrs old) my GI switched me to Asacol. I had no problems with the Asacol at all. I no...
Thank you both for your advice. My husband and I have been putting a belt on him and it's been working pretty well. In his case, the belt must be tight and cover the stoma completely, otherwise he...
My 8yr old son has a recent ileostomy (his surgery was July 9, 07). 2 days ago, it prolapsed and his small intestine is now protruding from the stoma about 3 inches. His surgeon had me take him to...