Thank you again everyone! Yes Heidi, the explanation of the stoma and hip bone makes perfect sense since I a fairly thin as well (too thin for what I'm use to right now. Hoping that changes a little...
Thank you everyone!! All of your answers are helping more than anyone else can! Blueheron- there aren't enough words to thank you for your response and link to your blog. I am (was) a very active and...
Thank you so much for the replies. All these answers are putting me a little more at ease. As you all know, it's a scary change bu I know it will be worth it in the end! I appreciate you all taking...
Hi Rita, thank you very much for the quick response, I really appreciate it. I won't be able for the j pouch but hoping for at least an ostomy with irrigation through the stoma so I won't have to...
I am 26 and have posted a few times on here. I thought my appts were going steady to get me in for the colostomy sergery but due to timing I will be going in Monday morning to the ER to check in and...
You are definitely not alone! Most people can tell you where all the good food joints are... I can tell you where all the good and bad bathrooms are!!...
Hi Camy, Unfortunately after several treatments, I am unable to use remicade. However, when I was on remicade, it worked wonders for my Crohn's and for the fistula that I had at the time. It actually...
I think everybody is different. In my situation, the inflamation has not gone away. It just gets better or worse, but never gone. The doctors should be able to tell you if it was in the same area of...
I am so sorry to hear what your daughter is going through and it brings me to tears. I was diagnosed with Crohns at 10 and completely understand everything you are going through with her. I was in...
I have re submitted in that section, thank you!!...
Betsaronie, Thank you for the positive notes and Info. It nice to hear this from someone else my age and similar situation. I was always the positive kid who fought through this quietly but I just...
That is awesome that it was pain free & simple. I had to take the shots in my stomach. The first several months were fairly easy to just do on my own but after that each shot started to sting more...
I have a billion questions going through my head but my GI's and Surgeons don't really have any answers for me that are real life. I am a 26 year old female. I was diagnosed at 10 years old and have...
Thanks Zenawp. I wish neither of us had to deal with this, but its good to hear from someone going through the same side effects. I have never had hot/cold issues with the 6mp, it only started with...
Thank you to everyone. Because I am on a double dose, I cannot do it weekely. Unfortunately, one shot doesnt do enough for me, even if it is Every week. I have another appt with my GI to go over the...
I currently take Humira. I was getting one shot every 2 weeks but about a month and a half ago we began 2 shots every 2 weeks. I am at that point with my Crohns that I cannot even get out of bed some...
Umm, I was a little young while on 6mp to have understood the effectsin this situation, however, Mood changes and Mood Swings were a definite side effects while on 6mp. Although I tried to hide what...
Throughout most of my life I have been on Prednisone and no major side effects. However, when mixed with the Entocort or Pentasa, Hairloss was a major problem. I lost 90% of my hair. Due to a bad...
Everyone is going to be different... I was having problems for 2 years when finally diagnosed. Most of mine will last 10 mos with a few months break... but some flares are only a month or so before a...