STRESS is the hugest culprit for me. As soon as I start getting upset about something I'm in the bathroom. Also, undercooked broccoli or eating more than a very small portion will set me off. Steak...
Can't relate to fatigue and Prednisone. I was on 40 mgs. and tapered down eventually but it was in December and my husband thought I was going to string lights on top of the roof of our house, it was...
I have had 3 setons, I think the longest one was in was about 9 months or so. The first two healed nicely on their own and were easily removed in the office without surgery. The last sucker they...
Just curious to see how many Crohnies can tolerate coffee out there. I have a bet about this with my husband!! :)...
Ask your Crohns doc about going on TPN - it stands for Total Parionatal(?) Nutrition, something like that. It is brutal to not be able to eat for the duration of your pregnancy but it will stop all...
Mine does feel like kicking/arms & legs. I guess I should call my doc. It's not constant but probably around 10% of my day. I've been dx now 8 years. It feels like a lifetime. 30 years for you,...
I had my 3rd seton in the past 4 years in October and I had to get it tightened twice (can you say OUCH?) but 8 months later after the 2nd tightening it fell out just recently and I too have a little...
Hopefully I'm spelling it right but after having a resectioning 5 years ago, lately I feel like I'm 5 months pregnant, not in size, but with movement in the area where the surgery was performed, the...
When I was 29 weeks I developed an abscess, went on TPN until I delivered my baby girl at 38 weeks. Nothing by mouth (except popsicles, hard candy and very little other options!!), received all...
It is a rubber seton. And the surgeon did describe the tightening as "cutting it out" technically like the ice cube example someone just said. Eventually "squeezing" it into the wall to choke it off...
I had this done last week and ZOWIE!!!!!! My surgeon said it would feel like getting your braces tightened, but I've never had braces and I wasn't prepared. I was taking Tylenol 3 every 4 hours with...
My husband has a severe flu bug (high fever/aches for going on 4 days now) that my doc is worried will spread to me (the Crohnie) and my 3 young kids (non-Crohnies). They prescribed Tamiflu for all...
I have been taking 6mp for 7 years now I believe and my hair falls out like crazy, but I've always shed alot, so not sure if it's related. I always wonder if I went off of it what would happen but of...
My husband is very patient and always understanding when I'm not feeling up to par. But when I am, it's really great because he will always be sensitive to how I'm feeling and if anything is causing...
Rant away Dodge Girl! Holy cow. I'm so sorry to hear about all you have been through. I've been trying to focus on the positives today. Things could be worse. This disease is in no way a fun time but...
Unfortunately I had a Remicade treatment ONCE 6 years ago before they knew that you needed to repeatedly receive treatment with Remicade or you would develop immunity to it. So Remicade isn't an...
I just had my 4th one and it's my 3rd drain installation in 3 years. Actually I would say my 3rd one never went away as I had thought (if I have to determine a tie-breaker.) I'm just kidding because...