Interesting question, I have never thought about it that way. My biggest fear is Cancer. I have a strong family history of stomach cancer and it scars the H*** out of me!! I have had two maternal...
Could it be low electrolites especially Potassium. When my postassium is low I get burning, tingling, and numbness in my legs. Just a thought????...
Hey all, I have osteoporosis and I am only 40. While I know 40 is not young, it is pretty early to have osteo according to my GI. He feels it's due to chronic use of steroids and family history. I...
That is so awesome! What a really cool thing to do, you must work for some really caring docs. How about adding some books that deal with "having a chronic illness/living with one", and the info on...
Thanks Lyn, You are always so supportive and helpful to everyone, your daughter is lucky to have such a wonderful Mom. many thanks, irish~...
I had to quit a job I loved SO much due to this stupid disease. I was an Elementary School Counselor. It was my dream job, and they were no less than wonderful when I became very ill, but the kids I...
I HAD a hystorectomy at age 34 and no one could ever convice me that the two are NOT related (in some WICKED way), or one doesn't make the other worse. However, I could never get my GI or Gyn to...
Hi Keeper, I noticed on your post about "Flare symptoms" you said you get sinus pressure/congestion. I have that too but have never connected it being related to a flare. (I have never really been in...
Just curious, we've discussed the low potassium but do you guys struggle with other vitamin/mineral issues as well. I have chronic low potassium and B12 even with supplements but the others such as...
Koko08 thanks for replying, it really does suck. I am having the same problem as you Sinus is triggering the migrane. I am having about 1 bad migrane a week. It takes me 3 days to get over it. I am...
Hey! I usually post on the Crohn's forum but, the last 6-8 months I have developed this new thing called "Anxiety". So, a bit about me! I have two children ages 17 and 12 and a wonderful husband. I...
Hi I started having "headaches" ie: Migranes/sinus headaches" about a year ago. I thought or still think they have something to do with the meds I take. I have tried Imitex and it didn't help. Now I...
HI I usually post on the Crohn's site and sometimes th Arthritis site, now I'm here. The last few weeks I haver been having what I believe are panic attacks. I have a lot going on right now, my...
PLEASE go straight to the ER, you are probably so dehydrated an I would be your electrolytes are very low and that is so dangerous. I have been there are I know, you need to go straight to the ER and...
I NEVER had a migrane in my life until being Dx with this awlful disease. However, I think that since being on Remicaide I have had them more frequently. In fact, not only more frequently but more...
Wow. I'm not sure, could itching be caused from arthrits???? Good question?? Thanks all who replied to this post. I will just sit and wait.. MRI of both hips is scheduled for 8/15.......
My doc did some bloodwork and I just received copy in th mail. It was a Basic Metabolic Panal. My Potyassium was low (always is) but so was eGFR what exactly is that????? And, what does low mean?????...
Hi I'm new to this forum, but a regular on the Crohn's forum. I am 40 years old, married to a wonderful man and a Mom to 2 children; ages 16 and 12. I was a stay home Mom until my kids started school...
Yes, the arthritis thing is really just hip and back and occasionally my knee. The interesting thing about that is my knee is the only joint I have swelling in. Although, I guess it would be hard to...
Hey Ducky Actually, I have been doing pretty good. My complaint has been terrible hip and lower back pain. I don't understand why he wants to change my dx either. My PCP said some docs just like to...
Thanks Nanners, I plan on calling in the morning to make an appointment, NO really I am! I have thought about it all afternoon and talked with my hubby and he even offered to go with me. What do I...
Wow you really are the ROCKSTAR!! I feel really sorry for myself and then I see how much you all go through and you still have a great sense of humor. It makes me ashamed of myself. Many thoughts and...
I was really glad to find this post, as I have many of the same issues with food. No matter how good I feel, I am always analyzing everything I put into my mouth; at times fearful of food. My family...
That's a good question. I asked him the same, he said it's because my colonoscopy showed "chronic inflammatory bowel disease unclassifiable to either Crohn's or UC." However, my old GI had 35 yrs...
Thanks Ideas and Sherry!! I guess I'm in "waiting" until the MRI. They are doing both hips for comparison. I dread it.......
Thanks all. And LBJ, that would be great. update: I saw my PCP today and he had received correspondence from new GI. PCP said "some docs want a completely clear cut dx with absolute evidence of such,...
My new GI has proceeded to tell me he thinks I do not or did I ever have Crohn's disease but thinks I have Bechet's Disease?? WHAT????? ANYONE HAVE A CLUE????? HELP. I hate this I am just about ready...
Have any of you been diagnoised with Bechet's Disease. My new GI thinks that I have been misdiagnoised with Crohn's Disease but actually have Bechet's Disease. I am SO FRUSTRATED!!!!!!!! A new...
I am really glad you are feeling a little better, I was very glad you posted and hope you find the help you need really soon. Like I said before, keep calling those numbers EVERY day until someone...
hanks so much for responding Ginny. Yes, I was on the steroids for the Crohn's/ I have an app with the Rheumotologist in Sept. I have had a steroid injection into the hip and it did help however my...
I have been reading your posts and thought I'd pick your brains a bit. How exactly were you diagnoised? I have the same pains as you both.One of you mentioned a bone scan; are you referring to bone...
Is this a dx that can only be made by x ray or can an xray be normal and you still have Sacrolitis. I have terrible hip pain and lower back pain. My GI did an xray but said it's normal. I have been...
Hi I have never posted on this forum before as I tend to post on the Crohn's forum, but I know how you feel. I am having major issues with fatigue and I can't get into see Rheumatologist for 2 more...
OK, stop and take a deep breath. I don't know what state you live in but their is help out there. (I was a Social Worker before I got sick and had to quit my job; but don't hold that against me.)...
Thanks so much for the reply. I will let the doc knon, however since my doc retired and I got assigned a new one I detest him. He doesn't return phone calls, he wanted me to have blood work done last...
Hey all, I have been out of contact for a while but I'm here again as always. I have been on Remicaide for about a year and a half now. On Friday I had my infusion as scheduled (every 6 weeks), I was...
The EXACT same thing is happening to me. My GI retired and I got assigned his replacement and had a Colonoscopy and he says, "I see no inflammation or any signs of Crohn''s. OK, so #1 What IS wrong...
OK Sniper, I'll hold off a bit longer before diving over, but only a bit!! Medchrt1: I think the meds are really working for me, one thing I know has helped TREMENDOUSLY is using the enemas I can't...
I never had Migranes before being dx with Crohn's Disease, and I have had some MAJOR ones. Just another lovely side effect i presume!!...
THANK YOU, ALL OF YOU! I finally got a Rheumy app but I cannot get in until Oct. which completely sucks, but I can call to check about cancellations periodically. That, I will do!! Here's a bit of...
Thanks so much everyone. I made an app with Rheumatologist but unfortunately the first available is OCTOBER 24th. That SUCKS!!!!!...
LBJ way it is that they will "never know" is it because they don't see it? What were your docs reason's why? Did you have biopsies that showed inflammation, or did they see it during a colonoscopy,...
Thanks to you MMMNAVY and Nanners. Yes, I tested neg for Celiac. Is it normal to be UNDIAGNOISED?...
I am so darn frustrated that I could "drive myself over a cliff". Iposted a few days ago about some of this, but I just need some help here, it's driving me crazy. I saw my "new" GI last Monday, (old...
So glad to hear you got the Colonoscopy moved up! That is awesome, now let's hope and pray for some final answers. It's amazing how happy we can be about the oddest things. Think about it, who...
I feel so bad for you. I know exactly how you feel and it really sucks!!!! I think you should go to the ER. I'm thinking of you!!!...
I also had the blood test and it came back neg. and my GI said that it being neg doesn't mean you don't have Crohn's Disease. ????????...
I am so glad your app went well. I think I even feel a bit better about my situation. I'm completely with you on the "not understanding why there can't be a definative diagnosis". It's just crazy,...
Thanks everyone, I swear I just wanted to run home and get on the computer to tell you all so you could help me at least advise me of what to do next. Vicky: My words exactly, I've been on all these...
I do wonder if we have the same doc and I am so very sorry you are going through all this as well. It just STINKS big time. I know what you mean about having all those different emotions:...