I agree that there's only cause for concern - not alarm - thus far but it will be interesting to see what happens next (WHO raised its pandemic warning level to 4 which is unprecendented in modern...
Although last fall's flu shot was not made with swine flu in mind, my understanding is that it's possible that the H1N1 strain used could be cross-protective with swine flu..again, tests will soon...
Given that most of us are on immunosuppresant meds, I worry whether we are more succeptable to viruses such as the swine flu. It's true that so far US infections have proven to be mild but that's not...
Hi Gachrons, My CD is in the terminal ileum and, after two resections, all of my flare-ups are at anastomosis site. My med free years, no surprise, followed the surgeries. Throughout my med free...
After many years of being med-free, I think I'm also beginning to agree that the disease can be active even when we are in the so called remissions... I'm coming off a flare earlier this year and...
Funny thing after having been med 'free' for several years and relying primarily on a low residue / SCD diet (used pred on a few occassions and tried, initially without success, 6mp), I'm now back on...
I wanted to post the same question. I've been on 6MP for 2 months and still get nauseos at times. I'm curious how what percent of people saw this go away with time. In a way, I don't understand why...
feel the same way! I tried SCD for a while and it seemed to help (but still got obstructed a few times).. Now I tried to stay low residue as much as possible and avoid grains and sugar (easier said...
Started taking 75 mgs of 6mp six weeks ago and definetely experienced fatigue and dizziness. Told my GI about it and he said we should monitor this but still wants me to increase dosing to 100 mgs....
I agree it doesn't make sense to drop the Humira dose if it's working but if I remember correctly there was a clinical study that showed equivalent efficacy at lower doses...(for those who can't...
I know exactly how you feel...I'm tapering off prednisone at 5mgs now and can feel the discomfort coming back (too early for 6mp to kick in ...) I also have a 'mild' form of the disease but it's...
haven't had any for 20 years....too acidic for my stomach and get lots of hearburn.......
I do worry about cancer but I remind myself constantly that the odds of other cancers are small (even if greater than the general population for bowel cancer and lymphoma)....As many have said,...
I'm a 46 year old father of three (12 yr old girl & 8 yr twin boys) living in the Boston area...Diagnosed with CD at 28 although clearly had it for a while at that point. Two resections with multiple...
Interesting topic...Prior to my second resection, the docs thought my recurring obstructions were caused by scar tissue on the region of anastomosis and / or by adhesions somewhere else. I know my...
Hi LBJ, I'm sorry you have to go through this.... I experience a bad flare-up two months ago and, despite initially fighting it, ended up at the ER within a week (was released the same day - which...
I'm about to go on 6MP as well so it's great to read this thread. It's amazing that such an old drug can be so efficacious for CD and good thing also that blood monitoring can help identify those who...
Nanners, How did you modify the low residue diet? I'm curius because I've found 'low residue SCD' diet to work for best me...(with some cheating here or there, of course...)...
thanks Jason. I like your analysis on lymphoma vs. surgery risks.......
Thanks to all. This and the other recent thread on 6MP certainly makes more comfortable with the drug...I agree the lymphoma risk is there for CD to begin with and other drugs as well (just concerned...
Thanks. That's very useful info; your positive experience certainly makes me feel more comfortable with trying this.. Only question is how did you end up at 50 mgs? My doc wants me to start at 75 and...
Hi All, I'm fairly new to the forum and have found it extremely useful to see how others cope with CD...Although I was diagnosed with CD in 1990, I've never met a fellow cronie before! In light of...
Good points. My doc wants me to start on Remicade because he's got more experience with it but I would feel more comfortable with Humira due to humanized antibody, ease of administration, cleaner...
Has anyone tried Humira first and then failed and moved on to Remicade or something else(Cimzia, Trysabri)? I'm trying to figure out whether there's a solid argument to try Humira as first line...
Lirpamh, Thanks. That does make sense...I understand that Remicade has been approved longer but also think Humira's side effect profile is somewhat better...Sorry to hear that Cimzia didn't work....
Thanks Mellie I think the issue on Humira vs. Remicade is that Humira has been proven to work in some people who don't respond to Remicade first..Unfortunately, no studies are available that show...
Hi Sr5599 I think I'm getting an ulcer from prednisone as well - on omeprazole now... Just got a flare-up two weeks ago and my doc wants me on remicade....Were you given a choice between Humira or...