Hi atomicpunk- I'm 27 now but first started having CD problems when I was 18 (didn't know what it was at the time). I went through this trial and error medication process while going to school. After...
Back when I was on the flagyl, pentasa, 6MP, prednisone coctail, I had a lot of problems with numbness in my fingers and toes. Not sure which med or combination was causing it. Once I stopped taking...
I guess I wonder what's worse... having a low WBC or being resigned to the couch on account of Crohns severely dropping your hemoglobin (among other things)?...
I had the same problem... kept getting sick with about one week left to go... GI noticed the trend and up'd the Remicade dosage....
Thanks. Did they ever give a reason as to why the remicade was doing that?...
Hi y'all - I have a new chronic issue showing up every time they do a CBC before I get my remicade IV... my white cell counts are abnormally low... over a full point. I've had problems with...
Here's the update... GI's solution... double the remicade dose. Try that out for eight weeks... if that doesn't work... add 6mp back in the mix... if that doesn't work... maybe try switching from...
Hi I run 1/2 marathons too! Getting ready for one coming up in Lincoln (sounds like you're familiar with the place.) I usually eat at least a granola bar before I run or a handful of cheerios. I also...
Hi I should have clarified. They do a blood test every time I get an infusion. Generally the routine is two or three attempts to get the stupid IV in, draw blood (while the nurse complians about the...
I have an appointment to actually meet with the GI in person after my next remicade session. (Sometimes I wonder if the GI actually exists or not... there's usually a middle man nurse whenever I have...
I've been on and off pred several times since being diagnosed. The only time I experinced side effects like the moon face and hair loss was when I was on a 60mg dosage for two months....
Howdy It's been a while since my last post. I'd been feeling great for a good bit of time, but now "my tummy hurts" again, and I could use a bit of advice. I've been on remicade for about 8 months...