Thanks guys. I hope 2009 brings good times and healthy days for all of you! I'm feeling very hopeful :)...
Hey everyone! As many of you know, my husband was diagnosed with crohns but it turned out to be colon cancer - only discovered during a resection surgery last month. And the abcess he had drained in...
hello I saw in a response to a post about surgery that you had surgery for crohns and colon cancer. I'm curious about this, as my husband had surgery on the 9th for what we thought was crohns but...
Thanks Randy. I appreciate your input!! We'll ask the doc about the prednisone card. I figured, since he was off it we didnt need to worry about it anymore. I shoulda known!...
hello again My husbands surgery was dec.9 and today (dec.25) was his first day taking NO prednisone!!!! Yay!! He is feeling pretty good, but we've noticed a few things: --Night sweats --Some pain...
thank you everyone!! I really appreciate it. I know that I am asking questions about something less familiar to all of you so I appreciate any response at all! Ivy - I reached out to a local cancer...
hi all As many of you know, my husband (justin, 34yrs) had a resection of his large intestines on December 9th. This is when we discovered that he had colon cancer and not crohns. It spread to 1...
okay, we are home now. Right before we left we got the test results. So, they removed and tested 26 lymph nodes... 1 had cancer in it. Good news and bad I guess. I was really hoping they got it all...
hey everyone As many of you know, my husband justin's crohns diagnosis changed to cancer after his resection surgery on Tuesday morning. They ended having to go into him twice - once for the first...
I was able to get some sleep last night, I just stayed in the hospital with him. Thanks for asking gail :) It's strange. I'm only 27 years old and was finally adjusting to the crohns diagnosis... I...
justin is doing great. He has been out of bed to walk around and has even had a few bowel movements (all liquid and a few accidents, but still good news) he was able to eat some cream soup and...
The tumor was in the stricture that the colonoscopy couldn't get to. All in all, about 6 to 8 cm. i'm nervously awaiting the results from all the tests they are doing and hoping with all my might...
thank you all so much. It brought tears to my eyes to read this thread and all your responses! We just talked to the surgeon. She said the liver, kidneys, and other organs looked good and she's...
his name is justin and we are in portland or. Thank you so much for your prayers. It means so much to us. I am just telling myself that we caught it in time and they removed everything. I just told...
well, the surgery is over. Turns out it's cancer. I'm so scared. I just hope they removed it all. I don't typically ask for prayers but he's only 34 years old and we were just about to start a...
thank you all so much!! Nanners, you are probably right about the pred. While he has been feeling ok on a lower dose, Im sure it's still enough to keep him feeling better and without it he'd be in...
hi all My husbands sugery is Tuesday. I have mixed feelings because he's actually feeling pretty good lately. I mean he's only going 1, maybe 2, times a day. He's down to 10mg of pred. Probiotics are...
hi mike. It's great that you are looking into probiotics - they have really helped my husband. If you search this site for probioics you will find many threads that debate the issue of which ones to...
thanks all! We had an early morning (up at 3:30 to catch our flight) and a long day but it's been great! His fever is gone! He feels much better and was able to enjoy a wonderful thanksgiving dinner...
Thanks blossom! Please everyone, keep your fingers crossed. He's not feeling great, but at least the high temp is gone. Now he just needs to work up the energy to pack! We'll be back on tuesday and...
Thanks both of you! I appreciate the responses. As of about an hour ago his fever was back down to "almost normal" (whatever that means!) He's still feeling achy and not 100% but, then again, 100%...
Hello My husband has been feeling fine lately. Good BM - 1 time a day. Some pain when he goes, but getting better and normal stool. No cramps. More energy. Etc. Well - he woke up this morning feeling...
thanks for posting. My husband was recently diagnosed with chrons but it's only in his large intestines and part of me still wonders if it's UC. Anyway, he's having a portion of his sigmoid colon...
My husbands diagnosis: 1. Oct 2007: CT scan shows inflamation, doc said it was diverticulitis and to stop eating seeds 2. Pain continues so another CT scan may 2008 shows increased inflamation 3....
thanks pb4!! It seems that, since everybody is different, experimenting with different probiotics is a good idea. I also think mixing it up and using different kinds is smart. Right now we are...
primadophiluis reuteri and primarophilus bifidus by natures way. Originally went with bifidus but read a few other posts by pb4 and decided to try reuteri as well. My husband has crohn's and this...
hey everyone Thanks for the responses! Bammer - niether of the surgeons we've seen have been reluctant to do the surgery. In fact they haven't questioned it at all but I just figured it's because...
sorry I don't have answers either :( But I just wanted to say hi and welcome. I'm in a similar situation -my husband has crohn's and we are hoping to start a family soon. This forum has been so...
interesting Bammer - That is VERY similar to my husband. Surgery is scheduled to remove 6 - 8 inches of his sigmoid colon. Do you think that's a total coincidence or is there something different...
the doc thinks it's scar tissue because there was a stricture so narrow in the first colonoscopy that he couldn't get the scope through and after several weeks of 60mg of prednisone it didn't be any...
that's interesting Fitzy. We've been trying to figure out why things were so great there. I assumed it was the new probiotic he started, and he wondered it was because he only drank bottled water....
wow. lots of great information! Thanks for posting...
Hi all As some of you may know from my previous posts, my husband was diagnosed with Crohn's a few months ago and it has been a scary ride for both of us. Initially he felt HORRIBLE. (well, our dog...
ski bum - it's good to hear your choice of meds. I don't know how I feel about starting with humira when there are other options. our GI doesn't like the idea of pentasa but he's very aggressive and...
thanks very much for sharing. I really appreciate it. It's so helpful to hear what others have done....
hey everyone My husband is having surgery soon - a resection of his large intestine (sigmoid colon area) due to a stricture and what is likely scar tissue. The GI doc wants him to start meds right...
gerrard did have almost 2 ft of his intestines removed and I, for one, am inspired by him. Also - every time he scores a touchdown this season $10,000 is donated to the ccfa. I think it's great. He...
thanks gail. I learned a lot by reading through this....
I absolutely 100% agree with fitzy! Not sure how long this post will be around so I thought i'd "gently" express my opinion while I can. Very much anticipating the November 4th results. Healthcare...
wait - bifidus is bad? That is what our GI doc recommended because the crohns affects his large intestines. Mk, I think there are different probiotics that treat different parts of your intestines so...
Hi wantstohelp I am in a similar boat. My husband was just diagnosed. At first it didn't hit me how big a deal this was but after spending 5 days in the hospital for an abcess draining, and then...
So this is strange. I did a basic google search and sure enough, calcium causes kidney stones. Now that I think about it - I knew that! Just never put two and two together when the dr recommended it....
at the hospital, my husband and I were told that he needed to take an extra calcium supplement in order to prevent kidney stones. The GI doc there said people with crohns are more likely to get...
just thought I'd post an update: My husband did go ahead and drop to 20 because 1) he wanted to be on a lower dose and 2) because the doc said it was important to drop to 20 so he would heal from the...
I have a friend who is in medical school and she has heard that they are actually trying to "clone" whatever it is about being pregnant that stops the crohns. It would be some type of drug that would...
Yeah, I have heard that about cipro. Our doctor didnt warn us about any negative side effects, nor did the pharmacist! I'm glad I do my research and check this formum! He's on the antibiotics for two...
hmmm.... It's so interesting. So hard to know what the right thing to do is with this disease... The surgery, the meds, the diet... I could over analyze and research til I'm blue in the face, but...
Hey everyone. Thanks for your responses. I agree - seems pretty crazy to me. BUT - we asked several people at the hospital, all who checked with our GI and he really wants to move to 20mg. He put him...
hello My husband has been on 60mg of prednisone for about 2 months. He is in he hospital now because of an abcess. The abcess has been successfully drained and we are leaving today (looking at a...
My husbands GI doc told us that they make a B12 nasal spray that works well. I'm going to try and find some of that! I started another thread about it, but didn't get much response....