hey i saw that you have UC..i have crohn's and I just started having severe headaches/migraines too...i asked my doctors if they were related and they said no, but it makes me wonder!...I always...
Hi everyone, I've used this site before as a person who suffers from severe crohn's disease, which is much better than it was a year ago!! (35 day hospitalization, 3 units of blood, pulmonary...
Thank u :) I'll be talking to one of the nurses today once they call me back...I'm going to be asking ALOT of questions! If I know what they plan on doing, then I'll be so much more relaxed! It's...
Thanks for the info! When I had the PE I didn't really have alot of pain. What I remember was that I couldn't breath and I was forcing myself to take a breath in and out because it felt like my body...
Hi everyone /community/emoticons/tongue.gif I haven't been on this site in a long time. To make a long story short, when I was last in the hospital with a flare up I had a pulmonary embolism. They...
i had the 3 loading doses and it still wasn't working..it wasn't until my 4th or 5th that i really thought it started to work...i just had my 6th one last week and feel almost pretty normal.....
i just got diagnosed with crohn's this summer and over the past couple months have started to suffer from ovarian cysts..never had them before!!!...i dont it's directly related to the crohn's but i...
has anyone ever heard anything about remicade destroying women's ovaries? i just posted about how im having ovarian cyst problems and extremely painful periods now...my mom is a little worried...
Well not only do i have to now worry about the pain that comes with my crohn's (occasionally now, thank god!)..but now i have more to worry about! i went to the ER last night for excruciating pain in...
this is sooo weird because I was just talking to my mom the other day about how she read crohn's in the duodenum is very rare..and i of course have it lol..but what was scary was that our doctor...
yeah..my mom is filing a complaint with the board and sending the same letter to him...people like that should not be practicing medicine! as for the fleet enema..it has definitely helped lol..but im...
yeah i know he means well...he just doesnt know alot, or well anything about crohn's...he's told me numerous times when i was in the hospital for a month that he's not a specialist and cant comment...
ozonehole...so true lol...i always say i would never wish the pain of crohn's on my worst enemy...but my primary dr. really needs a freeking wake up call! thanks everyone for the support..i hope no...
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I honestly don't think it's caused by my emotional state...my GI said my bowels r just so messed up they aren't moving my poop around like a normal bowel should...he said it has nothing to do with...
thanks...yes we are looking for a new doctor immediately..i cant deal with doctors who are like that...if im going to be in the ER or hospital often I'm not dealing with that man!...
my mom got ahold of the GI...he said my intestines not working properly has NOTHING to do with anxeity or emotional issues and that he never said anything like that to my primary care dr... The GI...
I am soooooo pissed off right now!! I just got out of the hospital from a 2 night stay. I was having more diarreah and pain and was running a low grade fever...they found a cyst on my ovary and did a...
yes..im going to call my doctor monday..no improvement today..and i really restricted my diet today..so we'll see what he says! thanks everyone :)...
i'm on 75mg of 6mp...when i was upped from 50mg to 75mg i got soooo sick to my stomach that i could barely eat...now im on nexium and it totally has helped...i really don't know how i would feel if i...
Well i was just wondering what others on here thought..i never know if I'm overreacting or not :( I've been out of the hospital from my last really really bad flare for about 3 months now...and well...
I totally agree with eveyrone on here! When i was first diagnosed i was on 40mg of pred for 2 weeks and it was hell..nothing changed..i had bloody diarreah 10 to 12 times a day and was in so much...
okay i feel really bad for people who cant get knocked out for that procedure or because their doctors dont believe in sedating people...isnt that like against the law or patient rights or something...
my doctor made me split it up and take 15mg in the morning and 15mg at night...i think it really helped me not feel as wired as i would if i took it all at once...good luck :)...
I was just wondering if anyone else has experienced what I have...I will be going for my second remicade infusion tomorrow (already had the 3 loading doses months ago) and last time and this time i...
when i was flaring really bad the pain felt like someone took my intestines, chopped them up, beat on them, and then put the back into my body...yeah it sounds disgusting and painful, but honestly...
hey does anyone get really bad headaches after their remicade infusion? after my first dose, not including my 3 loading doses...i got a terrible headache..and i mean i felt like my head was going to...
i had bloody diarreah for over 2 weeks the day after i got diagnosed..it literally looked like i was just crapping blood...i didnt know anything else was in there lol...and i thought that was normal...
thank u!!!...
he put my on aciphex for now...i've been really sick to my tummy lately i could barely eat, so hopefully it helps soon...the aciphex will only help my the heartburn..i just have to wait to find out...
okay so i've been wondering what the heck has been causing me pain on my right side near my rib cage and a pulsing pain straight through to my back...i've posted on here about gall stones,...
my boyfriend was a jerk to me when i was in the hospital and using dilaudid (aka god's gift to earth lol) to control my pain...he called me an addict and still did when i came home on a pain patch...
i know this is supposed to be a post with positive feedback about prednisone..but unfortunately i was on pred for 2 months at very high doses (up to 120mg a day in the hospital) and i had no...
NostraHistoria, i went through the same thing...i started on 40 mg of prednisone for 2 weeks and it didn't work...i heard if it's going to work it will work within a few days...i started on remicade...
fightingcrohn's, i'm 21 and was just diagnosed with crohn's this august...my CD is moderate to severe..i ended up in the hospital a couple weeks after my diagnosis because of all the blood i lost and...
thank u all for ur input! very helpful! atleast i'm not the only person with this problem lol...
Just wondering if this has happened to anyone else...when i got diagnosed back in august and hospitalized after that, i got my period the first week of september and haven't since then..i saw my gyno...
i started just being really gassy all the time for a few months..then i started crapping out mucus like stuff...thats when i got ahold of my twin sister's GI (she has ulcerative colitis) and I...
my twin sister has ulcerative colitis and was dealing with what she thought was a UTI..turned out it was actually kidney stones..u may want to get your son checked out for kidney stones!...
Dont worry! it doesnt have to get worse before u get better! and im sorry u have a UTI..they are the worse! i got my first one a few years ago and was in soooo much pain :( it sucks when u have to...
i was the same way with dilaudid in the hospital...it went away after awhile and never came back..it's kind of like a mild reaction to opiates..one of the side effects of pain meds often is...
Kaycie, i totally know how u feel...when i got diagnosed i was in so much pain in the beginning and tylenol didnt work..when i got hospitalized a couple weeks following my diagnosis, i learned about...
conorconan1, dont worry u will get better and things will get back to normal! my life is finally starting to get somewhat back to normal..it's definitely much better than it was a few months ago! it...
they kept me on it because i was sick and not getting better...they just kept me on it cuz it wasn't like they were gonna just stop giving me meds and hope i would get better on my own..which is why...
i was on it for 2 weeks and showed no improvement whatsoever...i dont think it helped me at all and will only take it again if i try it for a few days...if it's going to work it will work within a...
i had the same itchiness when i was on dilaudid in the hospital too..i kept scratching my arms and chest...but i ignored it because boy does that stuff work great!!!! i felt like i was cured...
im actually not on alot of pills...only 75mg of 6MP (thats one pill) and 5mg of prednisone (that makes 2 pills), but i'll be off of it for good on Tuesday :)...and of course my remicade treatments...
i would go, pay the $35, and eat a few small bites from everything :) don't just fill up on one thing..that way u can enjoy a taste from each course :) i know how it is because before i was diagnosed...
i had the same problem and still do...i was just diagnosed with CD and had my first huge flare up with it and was told that the pain was probably my intestines or weaning off the pred...but im still...
thanks everyone for ur input! makes me feel alot less freeked out :)...