I have had Crohn's for 25 years and during that time have had about 6 abdominal surgeries which included 2 strictureplasties and 3 resections of my small bowel. I am currently on Cimzia and have been...
Yes, when I have flare-ups or problems I sometimes become quieter or more impatient with my family. I just had a major surgery on May 18 where they primarily widened a couple of strictures and mainly...
I have terrible veins too. I had Remicade every 8 weeks for 3 years and right at the end it literally took almost 2 hours or more for them to get the IV in before they could give the drug to me and...
Yes I can right now. My stomach just feel tender and a little bloated....
I was in the hospital for 3 days in January with a partial obstruction. That was my shortest stay on record in years. I am supposed to be on a low residue diet, but had been drinking fresh fruit...
I had a really bad flare-up last year that landed me in the hospital for 3 weeks. I went it with a partial obstruction and then developed c-difficile or had that before I went in I am not sure. I was...
I was on Remicade for 3 years every 8 weeks and just switched to Cimzia in September. So far it has been fine. The first 3 injections were every 2 weeks and I was having major fatigue afterwards. Now...
Thanks. I am hoping my renewed focus on my diet will help with the fatigue too. I am 45 years old and noticed a big change in problems with IV's for quiet a few years. They always put a PICC line in...
I was on Remicade for 3 years which helped me but was just switched to Cimzia in September. The Remicade IV's were becoming major problems as I have no veins.. Anyway I have had one sinus infection...
Hi I am a regular patient at the Mayo also. I havent been on Humira but was on Remicade for 3 years and just switched to Cimzia In September. On Remicade it was taking 2 hours for them to get the IV...
I have a sinus infection and just started taking antibiotics tonite. I am due for my next dose of Cimzia on Nov. 14...Will I be able to still receive this dose or will it need to be delayed? I also...
I will be getting my monthly dose on Nov.14th. I started out in Sept. and the first time was two injections every two weeks for 6 weeks and then once every 4 weeks after that. My GI enrolled me in...
I did get it straightened out after several calls between Cimzia and Aetna. My Cimzia case manager called Aetna and apparently they are having a problem showing the correct info. from the Cimplicity...
I am to have my 3rd dosage this week. I have had nothing but problems with Aetna as far as misinformation, etc. I am enrolled in the Cimplicity program and have 3 free trial doses. Aetna tells me...
I had strictureplasty done on 8 different areas in my small intestines in 2001. I havent had any surgery since. I have had blockages but some how have been able to avoid surgery but not...
The hospital risk management department ending up handling the situation. This was at a top hospital in the Phoenix area so things can happen anywhere....
In 2001 I was in the hospital and had Phenegran for nausea put in my left had as an iv and it infiltrated. My hand was swollen and had a red mark on it. It was iced over and the swelling went down....
I chose Cimzia since I wouldnt have to adminster it myself (per Mayo GI) and it only has to be given every month and not every 2 weeks like Humira. It sounded better to try. I would have a hard time...
I guess they have a home health nurse to come and give them to me monthly. My GI said I could do them myself in 2 years? (kind of like Humira)..The nurse coming today said it takes 30 minutes to mix...
I will be taking my first shot of Cimzia today too. I talked to the GI nurse yesterday and she said it wasnt necessary to take Tylenol and Benadryl like I did for Remicade. She did say I could if I...
Thanks for the info. I had a choice of switching to Humira or Cimzia and chose Cimzia. I didnt have a chest x-ray just the TB test. I like that the nurse will be coming to my home to give me the...
I have been taking Remicade very 8 weeks for almost 3 years and I am starting Cimzia tomorrow. If it works I will be getting 1 injection a month by a home health nurse. I am a little nervous but I...
Remicade infiltrated into my arm today. I had to stay in the hospital for 1 1/2 hours afterwards with the my arm elevated and warm compresses on it. It is still swollen and has red streaks near where...
I had Remicade on Saturday and then came down with a cold same night. I don't have a fever and am still congested. I have been feeling a little nauseous also but no abdominal cramping, sore throat...
They were going to do a colonoscopy in the hospital but didnt due to the pain stopped and I was able to go home a couple of days afterwards. I imagine I will probably have some more tests in store...
I know it is so frustrating. There like we dont believe it's your Crohn's and I am like well I cant eat and I have severe pain, and it is on the lower right quadrant of my adbdomen. I had lots of...
I was in the hospital 17days in Dec. I was admitted for partial obstruction that cleared up and still had ongoing abdominal pain on the right side. Test were run and I was told I had no active Crohns...
I have had pain on the right side off and on since Sept of this year. I was in the hospital for 9days in Sept. and 17 days in December. I have been on Remicade for 2 years , since Oct. 2005. I had a...
Yes, PB4 thanks for that info regarding the antibiotics and probiotics. I know they gave them to me at certain times in the hospital but I couldn't remember. The Florastor is 39.00 for 50 pills. Just...
Thanks for the responses. While in the hospital I was on Flagyl and also Vancomycin, both antibiotics. I still am on the Vancomycin for 11 more days. The Mayo Hospital has given me the probiotic...
I just got out of the hospital on Dec 17th after a 17day stay. I was discharged on a Probiotic called Florastor. I am taking this for 3 months and have read good things about it and may consider...
Well, my GI initially thought it was a superficial clot and ordered an ultrasound. It came back negative. I got a huge bruise where the pain was and then throbbing, but no more shooting pain. Today...
I went to the ER tonite and they did an ultrasound. It came back negative for a clot. I just put a heating pad on and will mention it to my GI tomorrow....
I am wondering that too. I am due for Remicade again at the end of this month. I took a nap yesterday and woke up with my leg hurting. I am currently taking Prednisone and will be tapered off it...
I started having some shooting pain in my right leg near the knee yesterday. I first thought it was a bug bite or something because it first felt stinging and then tender to the touch with a light...
Are you going to the Mayo Clinic in Rochester? I am currently being treated at the Mayo in Scottsdale, Arizona. There is also a Mayo Hospital in Phoenix. I have been treated there for Crohn's over 7...
I have been on and off Prednisone over the years mostly during major flares. I am currently on 30 mgs. and will probably start a slow taper from that when I see my GI again on Oct. 9th. I have...
Thanks for the feedback. It helps alot . I will try use sparingly and hopefully when I start tapering the prednisone I can not need them to sleep. It's like a vicious cycle. I think I slept a little...
Thanks for the idea with the hot milk. I hadn't try that before. I have tried the Sleepy Tyme tea. I may just try the Xanax if I need to until I see my doctor on Oct. 9th. I took Ambien and or...
For some reason I havent slept very well since I have gotten out of the hospital. I am to taper 30 mgs. of Prednisone when I see my doctor on Oct. 9th. I am wondering if the Prednisone is causing...
I finally took a sleeping pill about 240am and was able to sleep about 4 hours. Still not very restfully sleep but definitely better than 1 hr. If it goes on too much longer I will contact my doctors...
I just got released from the hospital after a 9day stay and during that stay I was on around the clock Morphine by IV and for a few days Ms Contin and the IV Morphine. I was sent home on 30mgs of...
I have just been off since this past Sunday when I was discharged. I am hoping the equilibrium thing settles down the most. I must have drank about 9 bottles of water today. I dont feel like eating a...
I was on around the clock pain medicine for 9 days, IV and the last few days before I was discharged, 60 mg MS Contin and then 45, 30 and none etc. IV morphine every 2 hours for pain and then just...
My last bad flare started after the Remicade for me. But Remicade had been wearing off and since I just got out of the hospital, my doctor is going to up the dosage in October higher. I couldnt eat...
I have had back pain from Crohn's , it is usually when my abdominal pain is so bad that the pain wraps around to my back and i can't sit still , lay down or do anything. I have Crohns in the terminal...
My flares used to be shorter and simpler with obstructions, 5 days in hospital and would clear up, no problem. Now I get pain and it goes on and on and I can't eat, sleep or function. I end up flat...
Remicade has helped me a lot the last 2 years. It worked pretty fast for me. Recently it has started to feel like it is wearing off before my next infusion. So because of that my doctor will up the...
What are ESR or CRP levels ? I have what is probably moderate to what feels like severe Crohn's and have had a pretty good response to Remicade. I have mostly had strictures in or near my terminal...
I have been on Remicade every 8 weeks since Oct 2005. My GI is going to increase the dosage at the next infusion in Oct. I had been having some feeling of it wearing off a few weeks before I would be...