Dr. Marcel Behr speaks about Crohn's as an immune deficiency, and Mycobacterium paratuberculosis as a potential pathogen exploiting this deficiency, specifically mutations in the NOD2/CARD15, ATG16L1...
exactly smallrobeson, and check out pubmed.gov too. happy to hear you are doing well! he has a website saying so...
www.youtube.com/ibdvideos www.crohnscanada.org www.crohns.org Borody's CDD in Australia (they may be phasing out phone consults) William Chamberlin in US, Texas (may need to visit in person)...
Okay. Best of luck....
Your daughter had a good colonoscopy result after taking AMAT?...
Yes, it appears that he will be working with Chamberlin in Texas...
katmom, do you have a contact at the university, please?...
Dr. Chiodini, for those who have followed the MAP debate, is well-known. He has been retired from research for a number of years, but he is coming back for another shot at finishing what he and a few...
Hi Kathy, Bummer to hear it hasn't stopped the bleeding. For me the bleeding miraculously stopped the next day. That said, i know some say that it can take a little bit to get better. However,...
Rio in Maryland, what clinics in the US are doing HPIs? Thanks...
UC21, your doctor obviously does not know what he is talking about. Even the most 'mainstream', well-respected doctors, ie William Sandborn or Balfour Sartor, do not state that the MAP theory has...
That is great. Any reason i particular why, when going to the CDD where they have a donor bank, are you using your brother rather than their combined donors? I have tried E Nissle. Never enough for...
Echoing the others, great post mastersmom. I had been on Rifabutin, Clarithromycin and Clofazimine for 3 years and 10 months up until this past fall when i stopped during a mild flare (with...
Similar to cassiecurly, i have just done six infusions, after following the CDD's protocol (although i only took flagyl/metronidazole). I am too busy now to post a full update and history, but hope...
Currently not on it; stopped it about a month or so ago when i ran out. Used it in combination with a lot of other supplements and meds; it surely would not have been enough on its own to keep me...
Great news. You can order it already in Canada; just have to have it shipped from Germany. I have used it for years. Could have been helping, but wasn't enough to prevent me from flaring at times....
Hi Burli, no worries! I get the ABX prescription from my family MD. It is obviously necessary to have a doctor prescribe them. Although a GI is not prescribing them, I do have a GI, which is also...
Hi Burli, I am doing it at home. ABX is referring to antibiotic prep, yes. I am taking only flagyl; two caps per day, I forget the exact dose. In the Borody interview he briefly talks about fecal...
Amygrace, what are some of the infusion techniques you have needed to improve; what works, what hasn't with regard to getting it in and throughout the colon as high as possible? How closely are you...
Any scientific data on the length of time it takes for the anaerobic bacteria in the stool to start depleting, and how long it would take for a significant amount of the beneficial ones to parish...
Dr J That's awesome news. Who was the coordinator that called?...
You're right Amygrace, you are supposed to do colon washout with home infusion. Cheers...
Great post. I hope things keep working well for you Amygrace and everyone else using FTs. I may be joining you all shortly. Comment/question: i think the suggestion in the protocol to fast the day...
Glad you enjoyed the videos jpnutritionfirst. There is an association. Meta-analyses have demonstrated this. Is the association causative? Other data also suggests that it is. Although, at this time,...
Just bumping. Also, my opinion on why patients should take an interest in MAP. 1- It causes some cases of Crohn's. So maybe your case of CD is caused by MAP. 2- Antibiotics and other anti-MAP...
Just posted presentations from the 10th ICP online at www.youtube.com/ibdvideos (the "i" in IBD standing for infectious of course :) Easiest way to view the videos would be to go to the playlists...
have you ever seen how they diagnose some diseases? They slather a person in mud and have them sit in the sun and dry out... kinda an absolute joke But, echoing LMills, more research would be great....
and all those cows have crohn's, haha...
The video is called The Crohn's Connection: A Threat to be Reckoned With found lower down on the page under Epidemiology...
or visit this url = http://www.johnes.org/presentations.shtml#...
Dr. Collins Presentation Great discussion of incidence and how Crohn's IS caused by an environmental trigger. Meaning, genetics play a role but they are NOT the biggest player....
it might not change the medicines at all; that is, at least in the near term. what it hopefully will change, though, is the research direction towards therapies that actually target the underlying...
Notice his comments on how CD has never been formally demonstrated to be autoimmune. http://crohnscanada.myfastforum.org/about100.html...
By taking human fetal intestinal cells and injecting them into mice and then injecting the mice with MAP and finding MAP to have been able to invade those cells, the researchers were able to (at...
sorry, you mean he thinks you cause your disease, not that you aren't sick. disregard the above. although those suggestions are good for proving to people that you are actually sick....
two ways to let him know: 1) don't flush 2) poo your pants while out in public...
watch out for L Rhamnosus; it has been shown to potentially make IBD worse and it is in a lot of so-called good probiotic brands. A good probiotic is not necessarily always good for IBD...
It is an older movie, but google it to get an idea, and if you can watch it. I had to get it from the library but maybe some movie stores carry it. Makes you wonder about some of the foundations and...
Hi Broomhilda, Yes imuran could affect the results of your MAP diagnostic test: Drs. Greenstein and Collins have shown that the 6-MP affects MAP in vitro. I have asked a microbiologist the exact...
I hope your son continues to do well EMom. Probably some of the best advice to him when going off the college is to try to still eat well, sleep lots and not party, and if possible don't get stressed...
Right. And those targeted 'blockers' are equally as brutal. These things they turn off aren't just involved in the process of IBD, thus the cancers, infections, etc. The article stating that this...
Thanks for posting Reef. Stupid logic though. If genetics are involved in making our colons less fortified, then why does the inflammation not occur everywhere the bacteria touches the genetically...
http://www.physorg.com/news147973325.html...
Yeah DocGonzo, he is a GREAT. EMom, yeah that is me conducting the interview. I have Crohn's, diagnosed when I was fifteen after a year of having a perianal fistula for a year - unbelievable medical...
Hi Sniper, The Professor Borody interview is layman's. I conducted it with him this August, and I am a legal studies student. There is a good section where we talk to one of Professor Borody's...
A an absolutely must watch one on one interview with Professor Borody regarding MAP and Crohn's, and fecal transplants. http://www.youtube.com/profile?user=IBDvideos&view=playlists Simply select...
This guy is really inspirational http://www.youtube.com/user/UCVlog...
Also, you could try: -Anti-MAP -Trichuris suis or other helminths -Low-dose Naltrexone...
Good luck with the Cimzia. Something to consider if you ever need to try another treatment option is Cortisol. It is another steroid but is bio-identical to the cortisol produced in the body, so at...
I think it allows too much honey because too much honey will feed bad bugs just the same as will too much white sugar, albeit not quite as much. I personally generally don't eat dairy (or casein),...