My 10-yr-old son has lived with his takedown for a month now, and he's doing great. The very first poops were somewhat formed, and our experiments with imodium has him nearly normal. j-pouch.org is...
Oh yes, every thing that even *might* be related to our condition strikes the core of me as, "Is this the THING?" or is it something more normal. Managing that anxiety becomes as important as...
Flagyl did work for me, but it also caused the alarming wateryness you describe. And you can get dehydrated before you know it, so keep with what your Dr. says about preventing that. The advice above...
The bladder fistula is a BIG DEAL. Listen to Dr. and loved ones on this, for sure. Surgery is also a big deal, but not as debilitating as it used to be. My 10-yr-old son had his small bowel turned...
Hang in there. Many of us go through long bouts with this depression that no one seems to understand, as it seems from the outside that nothing is "wrong." Diet shifts and moderate exercise make BIG...
I've been dealing with Crohn's since 1991. Had part of ileum removed at that time, done very well since. Relatively mild attacks - pain, all the icky stuff, but goes up and down for 2-4 weeks, then...
I agree that you need to make this decision with your doctors and loved ones. I had surgery twenty years ago, when I was 26, and it saved my life. I had no choice, it had gotten so bad. I suppose it...
Thank you betsaronie - this helps very much!...
Thank you for the heads up on the ostomy forum!...
My 10-year-old son is having severe cramping pain with his first poops after takedown today, too much like battling UC several months ago. The poop is pudding-like, where I expected watery with the...
Hello Friends, Charlie's sleeping a bit now, 945pm. He had what will hopefully be his final surgery today, to take down the ostomy and reattach his bowels. Last July he had the 2nd surgery to create...
Thank you all for the good wishes, and Sue, thank you for the advice. We've had a shorter road than most with UC, but quite traumatic. We will keep the long road in our minds and hearts....
Our 10-yr-old son has his takedown Monday. He had sudden and horrifying UC last Oct-Dec, was hospitalized for 6 weeks Jan-Mar, with colon removal Feb 15, and 3 weeks of problems after. Since then,...
Yes, of course, Charlie came home on March 6, not in May. I'm really having trouble getting my head back in the game. Many little mistakes at work, over and over. Good thing I'm not a nurse or a...
Hello Friends, Charlie is home and doing well! We came home Sunday, May 6. Yesterday he woke up with a severe allergic reaction to something; we don't know what. His lips were very swollen, hives,...
The notes you all send help so much - thank you! Charlie has been up and active every day, including THE DAY of surgery, nearly 2 weeks ago now. The day of the latest setback, last Saturday, he had...
Charlie's episode was Saturday night, not Sunday, sorry. Sunday noon he went back to the O.R., where they found his ureters and bladder to be fine, thank goodness. They found more poop in his anus...
Charlie was progressing nicely. Then, Sunday night, sudden extreme pain, heart rate shot up, blood pressure dropped. Looks like one of his urethras was knicked during initial surgery to remove his...
Charlie's abcesses seem to be draining, NG tube removed, trying some clear liquids. Pelvic area still very swollen, still with catheter. Some guarded optimism....
Yes, abcess drain seems to be working, and they do think it will positively afffect everything, including the bladder. He's alert today, but no big turnaround yet. They just put in the drains...
You all give us hope, and we can't thank you enough. CT scan today found 2 abcesses, which will be drained with a procedure tomorrow, hopefully. Thanks again....
Almost a week after surgery, and Charlie keeps having one complication after the next. Now he has catheter, stomach tube thru nose, oxygen, and getting new blood. The tell us "this takes time," but...
3rd day after surgery to remove his colon, and Charlie is doing much, much worse. Started out fine, but never was able to pee. Catheters in and out. Stoma started to produce, but now bowels have shut...
Surgery went without a hitch today. Done laproscopically, so less of a recovery. Surgeon said that the colon looked awful, giving us confidence that we made the right decision for our boy. Much...
Thank you all so very much. He has surgery tomorrow to remove his colon. I don't have an illusions about this being magic, but it seems his best chance. He is in very good spirits. Thanks again....
Thank you all so much for your generosity and support. I'm sure you realize how much it helps. Our son is in pretty desperate circumstances, so any "alternative" means are probably beyond us at this...
My 9-year-old son was diagnosed with UC a month ago, but it's been working on him for at least 2 months before we knew what it was. Now in extreme flareup, entire colon, 2 weeks in the hospital....
The 4mg for Pentasa seems like a very low dose - I'd ask my doctor about that. It targets the small intestine. I'm prescribed four thousand mg per day. On my own, I also take omega 3 fish oil, bee...
This usually happens to me when I've eaten something that irritates the intestinal linings. It looks like little bits of clotting, but is actually bloody mucous that another poster mentioned. For me,...