Well I'm a couple of years on... My hair has grown back (I wore a wig for about 18 months which wasn't very nice). I had to go for regular treatment at the dermatologist which was difficult whilst...
PS I am also a member from the Crohn's forum....
I hope you don't mind me bumping this thread, but I wanted to see if you are still using the forum Sam and if so how things are going for you? After a year of bad psoriasis (3.5 years on infliximab)...
Hi Shelly There's a link here which talks a bit about the rationale. http://thefoodielist.co.uk/wp/the-low-fodmap-diet-for-ibs-sufferers/ Your dietician should be able to order the detailed booklets...
Thanks for the reply, it would be great to hear how you get on. I will post updates as well in case it's useful for anyone else....
I was just wondering if anyone has tried this diet and had any success with it? My gastro has brought it over to the UK after developing it in Australia. I'm only a couple of days in so would be...
Could it be a lack of B12? I have B12 injections and take iron tablets and am still tired all the time so I feel for you!...
Entocort has much fewer side effects, but it didn't work at all for me. Went onto it twice when in severe flare and it did nothing so ended up back on pred. Congrats on your upcoming wedding!...
PS welcome to HealingWell!...
I can't answer all your questions, but I've been on azathioprine for a year and the only real side effect I've experienced is hair loss (not loads, but I notice more coming out when I brush and wash...
Oh and definitely check out the NACC website - they have loads of useful information. I think they also have a helpline if you want to talk to someone, I've never used it though....
Hi Stasi Sorry you've had to join us here but you've come to the right place - you'll find so much support and information on this site. I wish I'd known about it when I was diagnosed! I live in...
This happened to me after my resection. Are you eating yet? When I got home I think I was too ambitious with food (my boyfriend was trying to feed me up too fast) - I ate a massive bowl of soup and...
Hi isergodur I have experienced something similar, when I started azathioprine nearly a year ago I noticed more hair than usual was falling out when I washed or brushed it. Since I started Remicade a...
Hello I had a resection 2.5 years ago. They took 9 inches and did a lapro operation, so I have a small scar on my belly button (about 2 inches) and three others that are about half an inch wide,...
uklass - I would think that you'd have difficulty absorbing B12. I only had about 23cm taken from my terminal ileum in my resection - my doctors said that usually you need a lot more than that taken...
I've just started Remicade too - I'm having my second infusion tomorrow. Still waiting to notice any difference, hope it works for me!...
Yep I live in London....
I had my first infusion yesterday too. I am so exhausted today! I'm sitting at my desk in work nodding off. No other side effects so hopefully the benefits will kick in soon... In terms of tanning I...
I went to Thailand in November and felt so well when I was there! Only drink bottled water, be careful of street food and don't eat any salad etc that has been washed in tap water. And avoid spicy...
I didn't have to do any prep for my surgery (a terminal ileal resection) except for drinking those horrible Fortisip drinks. Good luck with it arrowslinger....
I've never heard of bursting but would be interested to hear what your doctor says patientspiders... I am tapering at the moment and went back up to 15mg today from 10mg as I was really suffering....
Thanks very much for all your replies - it's put my mind at rest a bit. Ivy, I will definitely check on the number of infusions, thanks....
I think you should get a second opinion too - you shouldn't have to suffer with unbearable pain....
Hi all Went to see my consultant yesterday to discuss my treatment options as I'm almost at the end of my pred taper. My recent sigmoidoscopy showed that my colon is clear of disease so my flare up...
I agree with Nanners - I went back to work 6 weeks after my resection but it probably took me a good 3 months or so to feel I was really back to normal in terms of eating. I was definitely bloated...
Hi, I would second hspenser - unfortunately most people don't just go through one surgery, and it is highly likely that (a) the disease will come back at the site of the surgery and (b) that you will...
Thanks. I am a bit confused now, as all the paperwork says that it is a barium enema I am having, but the description of it sounds more like a fleet enema from what you're all saying! The...
I work full time in the voluntary sector. I've been in my current job for two years, but in my previous two jobs was off each job for 4-6 weeks (due to initial diagnosis and then surgery). Thankfully...
I've taken it a few times, and because in the UK you're told to eat low residue foods the day before the prep, not much tends to come out! The prep has always worked fine for me and they can get a...
I've done the barium follow through before which was bad enough. Thanks for all your replies. I'll let you know how I get on (my test isn't until 10th Feb)....
Oh no! Thanks for the honesty, at least I know what to expect/dread now....
I didn't know that BC pills could cause relapse. Is that well known? I know that women who take the pill have a slightly higher chance of developing CD in the first place, but my doctors have never...
Hi all I'm having a sigmoidoscopy in a couple of weeks which I haven't had before. Usually I have the full colonoscopy and have to do the prep with senna granules and Picolax (yuck). Just wanted to...
I'm sure you'll be fine if you drink plenty of fluids. No point making yourself sick, especially since you got the first drink down which will probably have cleared you out! Good luck with the scope....
Hi, I've only ever taken it for 12 weeks twice starting at 40mg and tapering down 5mg a week. Not sure what will happen if it doesn't help when I get down to the lower doses as azathioprine doesn't...
About 4 or 5 usually (more at the moment because I'm in a flare). But I've had a resection....
Yes absolutely! I've spent plenty of time shivering on the loo in the middle of the night recently as I'm currently flaring. I second the advice on making sure you're drinking lots of fluids....
Hi, I would classify a flare as being incredibly dehabilitating. So, more cramping, pain and D than usual - to me, when it gets to the point when I feel too sick to go to work, that's when I need to...
I've been in a bad flare since Christmas. I'm now on pred and hoping that that will clear it up - I'm on an 8 week course. I also take azathioprine, as the 5-ASAs just didn't keep me in remission....
Good for you! Long may it last....
I've had one resection, it was done laproscopically and I was still in hospital for 10 days. My doctor had said I'd probably be out in 5, but they wouldn't discharge me until food passed all the way...
Poor you, dreamer06. It sounds as though you have a lot on your plate, what with the move (which is always stressful) and still going to school every day, especially if you're not eating properly....
Ha ha thanks a lot guys! Obviously my pill taking technique needs a bit of work. I also threw 8 of the pred pills down in one go this morning which probably didn't help either!...
Hi all I've just been put back on pred, as Entocort isn't working for me. I last took pred over 3 years ago. I'm starting at 40mg for a week and then tapering down 5mg every week. Well I took my...
Thanks Nanners :-)...
Hi, I've just been put back on Entocort because I'm flaring. It hasn't worked for me in the past, but my doc wanted me to give it a try first before putting me back on pred, which has much worse side...
Thanks all. Well my doctor thinks it's just a bad flare and has put me back on budesonide. It didn't work for me before, so if I'm not better in a week he's putting me onto pred (bleurgh). Have to...
I live in London so can't help, but I just wanted to say I know what you mean. My doctor is a consultant in a large teaching hospital here, but even so he definitely takes a 'one size fits all'...
Thanks so much for your replies, I appreciate it. This place is a mine of information! I don't know anyone else who has Crohn's so it's great to have people who understand. The other thing I forgot...