Thank you everybody for your inputs, it really helps. I would like to clear a few things up: I have been, and still are, going to clinics in a hopspital called UCLA. Obviously as much of you probably...
Thanks guys, but I've already tried Suboxone. It helped wonders just like it does for you guys for me at first, but I was waaaaaaaaay too drowsy, and it being a while now that I haven't taken it, I/...
Today at the Emergency Room they gave me 3 DOSES OF 8 MG/ML (forgot whichever a shot is worth) injections...and IT WOULD BARELY HELP MY PAIN!!!!! WHAT IS WRONG WITH ME? WHY HAVE I ALL OF A SUDDEN...
Cns, you take Remi infusions too? How do those work for you??...
Hi Sera Smiles, I am not new to this forum - I was in the crohns area, but I was just dx's w/ Fibro AND found out that biposies show I DONT have Crohns, so I switched to here! :) anyways, Sera, all I...
Hi, I've been a regular here at the Chrohns area - wrote a topic about extreme unexplained pain that I had been having. My docs threw around a bunch of things it might be, and finally I was...
Thanks for that Ivy..a little confusing hehe but SO interesting and definitely a lot to take in. I don't get it..I thought that BEFORE any of my illnesses started - and I've been told this by the...
Yes, I definitely did Ivy. But i had no idea that that had anything to do with Fibro. I have an auto-immune dissorder. Cause of that I've had Ulcerative Colitis, Polyarthritis, Anxiety Disorder, and...
I dont know if some of you remember, but a few months back I wrote a topic here about extreme unexplained pain that I had been having. My docs threw around a bunch of things it might be and had...
Dave, I don't quite understand what you mean by the "precipiated withdrawls." I mean, I'm on methadone right now, and supposing my insurance approves me taking Suboxone, than I will stop the meth...
I've been on methadone for my chronic pain for about 3 weeks now. This past weekend my aunt took me to see a "hollistic" (naturalist/nutritionist) this past weekend, and after running a few of his...
Ahh Denim, Kinda scaring me there! I have been through and am still going through a lot. I have come to the point where I have been on and off, on and off all these meds for different things - my...
My docs pretty much give me two options to these types of meds: Methadone or Suboxone. Right now I am on Meth, and we are in the process of seeing if my Medical will cover Suboxone or not with Doctor...
Me and PJs, thanks for all your advise. What vitamin do you take?? I don't know whats safe and whats not with the methadone. My docs said that there was no cure for my pain so that pretty much...
turns out it was constipation...i think. I still feel the pain but difinitely not as much as last night. I know 5mg twice a day is real low, but if that is causing mr THIS much drowsiness, (can...
At the moment I am having EXTREME stomach cramps. Its so easy to say that there is no way this much pain could possibly be normal - it feels like I'm being ripped apart inside - and yet some part of...
I take 1 5mg tablet twice a day. My docs were willing to let me go up to three times a day too if it wasn't helping much with the pain, which honestly, at this point, I'm confused on. The pain I...
My doc just put me on methadone for my chronic pain. I thought it was gona be the answer to all my problems but I feel kind of sick on it..and real drowsy all the time. I'm really hoping this is just...
You have no idea how much this information has helped me..i want to thank you all! I got a remicade infususion today (take it for my joints and Crohns/IBD) and of course the pain has doubled today. I...
I just had a remicade infusion today and of course the pain is even more than the usual with all the pain from that as well. I complained about my pain to them and asked them about their opinion on...
believe me Vin, I've been all around and back. There are no more answers. They can't even find WHY I'm experiencing the pain I currently have anymore! I thought it was from the Remicade infusions I...
My doc told me the other day on our visit that I am defiantly a "Chronic pain" patient (which we always knew, but somehow was more confirmed to him now) and that my body is addicted to, and really in...
I have had bad experiences with vitamins so I'm always careful on what I take. One time I took one (I remember it was "Coral Calcium") on like a half-empty stomach and I almost ended up in the ER....
Hey now thats a smart idea - to actually juice the spinich first before filtering and actually throwing it in soup! You know, I figured most of us wouldn't do too well with juicing but its just as...
Hey everyone, hope you're all trying to hang in there w/ the cold and all /community/emoticons/scool.gif . So I have a question. We just got a new juicer and my borther and dad have gone all...
As I'm decreasing my Pred more and more (now down to 2 and a half mg) I'm leaning more towards the theory of the Pred being behind the body aches..at least most of it. Whats been happening is I get...
I've been going through something similar ever since my colon was removed. I was diagnosed w/ UC, suffered for a few years, and then finally got so sick that my entire colon had to be removed (it was...
So you're saying that the pain was actually from the remi infusion?? The pain is just so horrible today. I woke up with what seemed to be my entire usual body ache all in my head! Then as I felt more...
I have dissability and I'm only 22...had it since I was 18 when I started having my surgeries. Sometimes I don't even know if its worth it cause its a HUUUUGE help, but in ways it kinda messed up my...
It really IS worth it Miguel. I know its wierd to hear me saying this after all my complaining, but trust me, I learned the hard way that Remi is the only real med out there that puts me in remmsion...
Vin, have you seen your GI since all this has happened? What does he/she have to say about it? Its been quiet a while since I've had flares that bad - especially with the whole blood-gushing thing -...
Ultram/Tramadol and she thought it was a great idea and prescribed it to me. It works great, I've been having to take it everyday though for the past week and a half...
actually..my mistake..it might have been Celebrex (I guess thats not a word beggining with an N) /community/emoticons/blush.gif And I just read up that Celebrex is an nsaid. Great..way to go doc. And...
For me its all one big cycle anyway. Stress causes pain and discomfort which in turn are the causes of my flares and the medication for that as you all know is way worse than any painkiller. True,...
I worked as a medical assistant in a gyn office for a short time, and thoes are the exact symptoms that all the ladies with endo would tell us pretty much. Ever since I was diagnosed w/ UC I have had...
I think you're right broomhilda. I defiantly don't feel the Remi is into full gear yet cause I still have quite a bit of joint pain. But it has gotten a bit better, and the swelling has disapeared...
..Don't have a colon..so cant be from that! :P And honestly I reeeally don't feel like I'm having a flare at all right now. Thats what makes this all strange - cause trust me, during flares, NOTHING...
Whats been of real concern to me lately is my lower back pain - it just won't go away no matter WHAT I do. The high doses of Pred I was on seemed to make it tolerable for a while but now that I'm on...
I guess as you can see from this poll - its different for everyone. Every time I would tapper off the Pred my body would ache with the flue-like feeling, headaches, chills, etc. It would normally...
I had been diagnosed with Duodenitis a few years after having been diagnosed with UC AND after having had my colon removed (j-pouch surgeries). They had determined this either through the camera-pill...
My docs have been prescribing me Tylenol Coedine for a while now and that seems to do the trick most of the time, but lately shes been saying how she hates me taking too much of it and doesn't want...
Julie, my doc also lowered my dosage of Remicade recently because of the flu-like symptoms I would get as well. I was on Remicade for a year, and although it was a miracle worker towards my joint...
What type of auto immune disorder?...
It helps so much to know all this..thanks guys..its starting to make much more sense to me now. I'm just so scared; out of all these years and all the times I've taken Pred, I've never been so scared...
What does your GI say that you have? I don't think its always about what you have exactly, but whats going on instead. They just know to treat whats happening at the time being. I think they're...
Well I went down from 10mg to 7.5mg today and I feel ok today - for the first time in the afternoon (the am was full of aches and shaking had to take tylenol 3) I actually felt a little bit of my old...
I'm pretty convinced at this point that it is. The only thing I feared is the joint pain being the actual joint pain from the flare that I had which is what put me on the Pred in the first place. I...
You know I've been feeling maybe thats been the reason for it but Its already been so hard to get my docs to understand just how badly the pred messed me up this time and if they're not going to or...
Thats what I'm confused about as well - I've been on Prednisone countless amounts of time before and I don't recall pain THIS bad. My back and head are pretty bad all day long throughout the whole...