I'm wondering if anyone here has tried Botox injections for migraines while also on Stelara? (I'm on Stelara for Crohn's Disease and also posted my question on the Crohn's forum). If yes, did you...
Thanks, NiceCupOfTea for your reply. I appreciate your suggestions. I've been researching, but haven't found any info yet. I've messaged my GI and am still awaiting a reply. By the way, so sorry to...
I'm wondering if anyone here who's on Stelara for Crohn's, has had Botox injections for migraine while on Stelara. If yes, did you have any bad side effects? In addition to having Crohn's, I've had...
Does anyone know around what year Pentasa was no longer considered effective for Crohn's? I'm curious because a friend of mine who also has Crohn's is currently still on it. She recently went to a...
Ides, thanks for your response. In general, I've always bruised easily too but never had bruising with my Stelara injections until recently. Even during blood draws I'm now bruising. I've also...
Hi, I'm wondering if anyone with Crohn's who's been on Stelara is having any bruising issues or problems during blood draws. I've been on Stelara since the end of 2016 and it has been working GREAT...
Thanks, Straydog. I did similar research before posting this and also couldn't find anything about any possible link between Stelara and increased lipids. However, this is a new medication for...
Hi, I've been on Stelara for about 1 year & 2 months. On the plus side, Stelara has been really helping with the healing process. On the negative side, I've noticed my lipids have skyrocketed! My...
Stelara has been successful for me so far, as my last colonoscopy showed major healing with only a couple of very tiny erosions. Over time, however, I've noticed that I start becoming symptomatic...
Barbz---"permanent" numbness in partial areas of both feet and in one finger. Thanks for commenting....
Hi, I have Crohn's, but wanted to share this with your forum. I had a colonoscopy a few weeks ago; and was excited (yet apprehensive) about trying a new prep called Prepopik. It's the BEST prep I've...
Hi fellow Crohnies! I just wanted to share with you some info about the best colonoscopy prep ever (in my opinion)! I had a colonoscopy a few weeks ago; and was excited (yet apprehensive) about...
Hi mirowpl, Yes, the way your doc describes remission makes perfect sense. From what I understand, remission means that there are NO signs of your disease being active. The best way to determine if...
JustcallmeD--- Glad your surgery is over and that you are at home. I had my first (& hopefully last???) resection exactly 2 years ago today. I experienced gas, bloating, some minor cramping etc. for...
Stripey---If I were you, there's no way I'd go back on the Humira!!! I was on Humira for 2 years, and it worked wonders for me. However, I began getting weird pains & numbness in one finger and in...
Hi Rider Fan, Yes, unfortunately Cimzia is also an anti-TNF. Oh well----let's hope that research comes up with more meds. Or better yet, a cause and a cure for Crohn's!!!! :smilewinkgrin: Is Humira...
Hi all, Just an update as to what's going on. BUMMER!! I'm off Humira; possibly permanently! I'm bummed because I'm allergic to all the other Crohn's meds, which means no Crohn's meds for me!!...
Hi Fairy16, I too get joint pain in my fingers/hands, but it's particularly noticeable a few days after my Humira injection. Did your joint pain begin after you started Humira? Do you have it all the...
Thanks for all your responses. I've seen several doctors, and none are sure what's going on. My B12 level is fine (598 per a recent blood test). My neurologist will be doing a nerve conduction study...
Hi, I'm wondering if anyone has experienced this strange occurrence. Various small areas of my body are starting to go numb ~ about 50% loss of sensation. It started several months ago with my big...
Hi songstress, Sorry to hear about your fevers and night sweats. You should definitely contact your doctor, particularly since you are on Humira which suppresses the immune system. You could have...
Hi Redjeep, Are you by any chance on an immunosuppressant medication for your Crohn's? If so, your body's ability to keep things like yeast "in check" may be compromised. You should definitely see a...
Hi corn, I had a pretty severe reaction to 6MP. About 2 weeks after starting it, I had flu-like symptoms---achy, diarrhea, nausea, fatigue, fever. I also had reddish bruise-looking lesions on my...
Riesasmom, When I learned that children even as young as 1-2 years old have gotten Crohn's, it throws a lot of theories (and blame) out the window. Researchers are constantly trying to find out the...
From what I understand from my GI doc, those sounds are normal. The sounds are caused by the contractions occurring in the intestines. Some people have this more than others. I know this can be...
Forgive me if you already mentioned this, but like someone else here stated, I wonder if your ENTIRE small intestine has been checked. Typically, the EGD only checks down to the duodenum (1st part of...
Very interesting, Bammer! Prior to my 1st small bowel resection 9 months ago, they discovered I had a liver lesion (likely benign) during an ultrasound. The doc now alternates between ultrasound and...
I've been using Humira (pen type) for over a year, and it absolutely hurts & stings more than when I first began it. Although the stinging is pretty intense, it's over for me as soon as the injection...
I'm curious if anyone who's on Humira has experienced hip/groin pain. I've been on Humira (every other week) for 1 year and 4 months and have recently become aware of this sudden-onset pain in my...
Hi Rider Fan, Post surgery healing is going well. I'm even able to eat things like popcorn now!! Things high in fat bother me, though. But can't complain! Will see my GI doc in mid-March. Am curious...
I've been on Humira now for 14 months. For the first couple months or so after starting Humira, I had various symptoms---overall body aches, joint pain, fatigue, night sweats etc. Over time, however,...
My Vitamin D level was at 17, so my GI doc had me take 1000 IUs per day. Over time my level was slowly increasing but not enough or fast enough. So my GI doc increased it to 2,000 IUs per day, and my...
Wow, all the GI docs seem to do things differently, and there doesn't seem to be any standard! So glad this subject has come up, as I had a small bowel resection in 7/2009 and will ask my GI doc...
Hi Rider Fan! Geez, I can't believe it's been one year already!! Seems like just yesterday that you posted about starting up on Humira. I'm so glad to hear that you're doing so much better!! Like...
Vitamin D may not have anything to do with causing Crohn's, however, it's known that Crohn's patients are typically Vitamin D deficient. I never imagined that I'd be low in anything (except iron),...
Wow dunny2 ~ so sorry that you had to have surgery again so soon after your first one. That's also too bad about not being able to stay on maintenance meds. Glad that you have steroids to fall back...
Generally speaking, fiber is good for everyone. However, this is not advised if you have stricturing of the small intestine, even if it's a fiber supplement. Years ago, my GI doc was having me take a...
Here's some further clarification about one type of anastomosis. The side to side method is also called the "functional end to end" anastomosis, not to be confused with a regular "end to end". The...
Octobergirl, When in a flare, being kind to your intestinal tract (by eating easy to digest foods) is very important, as raw fruits and veggies can be hard to digest. Once your flare has settled down...
Hi Carnival Huckster, Was going back & reading your original post here, and am wondering if you've had your surgery yet! Hope you're doing well....
Silverandblue, Personally, I would get one heck of a good work up to see what's going on with you. The fact that you're getting worse and not better is certainly justification to have a COMPLETE...
:idea: Hey dragonfly, Do you think it could possibly be the high fat content in the cheese, rather than it being the lactose or dairy itself that's bothering you? I offer that suggestion because...
Re-posting as recently noticed that my posting was in HUGE font--- Glad for you that you're home! Crohn's meds in general, is that some are good for "kicking" you into remission, and others...
I can't compare Humira to all the other Crohn's meds, as I'm allergic to the others. I've been on Humira since December 2008, and so far have no major side effects. I inject every other week, and...
Hi, So sorry to hear about your recent rupture and ending up in the hospital. Your situation is quite complex, so I'll comment as best as I can. I don't know much about strictureplasty except I...
Hi NY-CD, Just curious if you have any symptoms that go along with a high ANA. Hopefully your doc will run other tests to try and narrow down why your ANA is high and what you might have. You may...
The first time I ever heard about Olestra (even before I knew I had Crohn's) and heard about the possible side effect of anal leakage, I couldn't believe that it was even approved to be put on the...
I agree. You should definitely talk with your doctor. I had a small bowel resection on 7/30/09 and went back on Humira 8/30/09. The 4 week wait to resume Humira is to give the body a chance to heal a...
Hi amytupelo, I have been on Humira since Dec. 2008, with no bad side effects so far. It certainly wasn't my first choice, but as you can see by my signature, I was allergic to everything else! I...
Hi gumby44, I would definitely have your vitamin D level checked. After finding out I was low, I also began taking it regularly (I now take 2000 IUs per day as my Dr. recommends). It seemed to help a...