Where abouts in the UK are you?...
Hi Kaylea My advice is get someone to take all the food in your house away so there is no temptation. The first 3 weeks are the hardest but after that I found the thought of food didn't really appeal...
Hello everyone Haven't posted for a while so thought I would give you an update. I am now on a mixture of food and drinking the modulen. I am still symptom free (been this way since end of Feb) and...
Well I never thought I would see the day. I saw my doctor today and he said the magic "R" word! I had an MRI Scan and all the fistulas in the colon have healed, th inflammation has gone and so has...
I have a colostomy. I have had it for nearly 7 years and had the opertion when I was 17 so feel free to ask any questions as I have had to live with it whilst going to university etc. Hope I can help...
No Problem Remicade and Humira didn't work for me. Prednisolone only works on a very dose and i have osteoporisis in the hips because of it. The nasty flare resulted with me being in hospital. I had...
Hi Annie I have crohns in the colon, and rectum and have had a colostomy since 2002. I have always thought food could be a key factor of a flare but it has been very difficult to go back to scratch...
I started on 2000 calories a day and this has now been increased to 3000 calories. It all depends on your weight. I now get through 1.5 cans a day. The dietican worked out my recommended daily...
A number of people are talking about Modulen on here so thought I would give you an update on my experience with it. I am now on day 21 since I last had food. I went and saw my consultant today and...
Hi Leah I had a small bowel resection in 2005. The next day I had the same crohns pains but no-one believed me. I then spent the next month begging doctors to listen to me! Eventually they agreed...
I am allowed to suck ice but not allowed teas. All i am allowed is the Modulen and plain water.... I am on Modulen due to running out of options. Colostomy in 2002 which sorted out the crohns in the...
Thanks for the messages guys. I am seeing my consultant a week on Tuesday and will ask to start to come off the steroids. I have only just come out of hospital after a nasty flare so don't want to do...
Hello everyone I am now into day 13 of the Modulen regime (no food eaten since Tuesday 24th February....) I am really struggling today as I am craving food. I am on 40mg of Prednisolone which isn't...
I was 17 when I first had symptoms. Everytime I went to the toilet it was incredibly painful, blood and mucas. Once I had been to the toilet I was then sore for the rest of the day and spent the day...
Hi Caz81 I started on Infliximab in 2006 and it was a huge success to start with - it then however wore off after 10-12 months. I thought that was the last drug available but then hey ho I changed...
Thanks Writer - that may help as Ihave been drinking it fast! I will slow down and see if it works!...
1 week gone without food and I am feeling better which is a good sign! However I have got very bad diarrhea today - having a colostomy makes it quite difficult to cope as it leaks through and I seem...
Remicade was also my wonder drug but over time i found the effects wearing off quicker and quicker to the extent that after 6 or 7 months it didn't work at all. I was then put on Humira which ended...
Hi everyone I am new to all this and live in London. I was on Humira for about 6 months last year and had mixed success. Have now had it stopped and am on Modulen to see if it will sort me out Humira...
I am on steroids at the moment and have nearly lasted a week which I am pleased about. All the stomach pains have gone which is an encouraging sign....
Thanks for the reply. It seems that the hardest part of this diet is sticking to it! I think my specialist is going to go along the lines of reintroducing food groups one at a time. The good thing...
As my specialist has prescribed it, it means I get it on the National Health Service whice is free in the UK so hopefully it will be successful...
Hi I am a 24 male from the UK who has had Crohns since 2002. After 2 operations, countless spells on steroids and azathioprine, trials on infliximab and adalimumab - all of which haven't worked, my...