Hi , I have not been here in a very long time because I've felt great since my ileostomy back in 2010. Lately though, I've been feeling pretty crappy. Before my surgery back in 2010, my disease was...
Just recieved my 4 doses of humira yesterday and had a few questions? This is my second time taking it--the first time the gi thinks I was not in a flare for crohn's but irratable bowel instead so...
Okay, so my surgeon office called me today to move my appointment up from Aug.5th to this friday. He recieved my Ct scan which shows massive inflammation in the rest of my colon (I have a permenate...
Off to see the GI again on Friday and will discuss many of the options and then I am on the way to meet with my surgeon on Aug.5th. My surgeon is very much for anyother treatment first before...
I am afraid of the Disease going into my perfectly healthy small bowel and then we start all over again. I am just trying to see if it is at all posible to keep the colon....
Hi, I was wondering if anyone out there knows the answer to this question, I have a permenate colostomy right now and am in full blown crohn's in the rest of the large bowel. Is it all posible to...
I am so sorry for the pain you are having--maybe you should post a topic and see if anyone here has also had pain like yours. I know its hard but be positive!!...
Oh My - I had no idea crohn's could go into your back--I thought it was strictly gi tract to mouth? You hang in there too. I think god chose only the people who could handle this disease to have...
Worm's in my body doesn't sound too good--Have you ever watched the show Monsters in Me. I think I will skip that treatment. I am going to buy the book for the Maker's Diet and give that a try. For...
When I get bad leg cramps, it is my potassium level that is too low. Try eating one banana a day if you can tolerate it or get a supplement to help....
Pinworm therapy--don't know about that--never heard of it. I will definately ask about the temporary ileostomy and yes I am careful about what I eat. Thanks for you thoughts--the temporary ileostomy...
I am on 40 mg of pred and an antibiotic called metrodizo? right now to help calm things but alls it is doing is making me more fatiqued. As for the illi--I thought once you remove the infected part...
Thank you very much for your suggestions--I am not sure what TPN is? As for the Maker's Diet, I will look it up and get started. GI wants to try humaira one more try--he thinks that when I was on it...
Sorry, I am not yelling--just frustrated with this Disease....
HOW DO YOU HAVE A CLEAN COLON 4 MONTHS AGO AND NOW HAVE FULL BLOWN CROHN'S IN WHAT'S LEFT OF MY COLON AND THE ONLY WAY TO PUT ME BACK IN REMISSION IS TO TO REMOVE MY WHOLE COLON AND LEAVE ME WITH AN...
I posted this on the Crohn's site but maybe I will get responses from the IBS Site. I have Crohn's and IBS and a lovely irreversable colostomy. According to my last colonoscopy (6-08) my cd has been...
I have Crohn's and IBS and a lovely irreversable colostomy. According to my last colonoscopy (6-08) my cd has been in remission. I have lots of problems with the IBS--constant D. In the past two...
Hi, I've had my colostomy for 13.5 years now due to bad fistulas in rectum caused by Crohn's. Never had any major problems with the colo except for 2 years ago. Had my first parastomal hernia which...
My doctor said that there is a concern about the kidneys and all the pill clean out!!...
My PCP told me it was due to the dry air(winter at the time I spoke to him) - it is now humid like crazy and guess what? I still have these nose sores. They haven't gone away since last September. I...
I have a colonoscopy scheduled for next tuesday and they are making me mix miralax with gatorade. Has anyone ever had this prep? And if you have Is it as gross as the jug of s**t!...
fight with your insurance company--specify it is the only lab that does this test!! Don't take no for an answer--My insurance now pays for this bill with no questions--they know!! Good Luck!!...
I am seeing the new Gastro on Wednesday and the Surgeon on Thursday--as for twisting of the bowel-my first hernia I had about 2 years ago was all twisted in the bowel but I could not feel that one....
Hi!! For about 2 months now I haven't taken any medication for my Crohn's and my stools have been firmer and less frequent. I do have a colostomy, a large parastomal hernia and scarring in my small...
I live in massachusetts and was denied the first time on my own--second time hired a disability lawyer and contacted my state representative and was awarded the disability. It took me a little over a...
Hi!! Fellow ostomy and crohns patient looking to find anyone with a parastomal hernia. This is my second one in 2 years. First one was large (but was not visual) and had my bowel twisted in it and...
Hi!! I make jokes about it!! I have a permanent colostomy because of this disease so I really need to joke about it. I do have a supportive husband and 3 wonderful children which help me cope--they...
Hi everyone, I'm hoping there are some fellow chronnies out there from the worcester MA area that can help me find a good new GI doctor. No fallon clinic--looking more towards umass or memorial!!...
I had my first Cimzia shot on Thursday and I still feel funny!! The day after I felt very tired, my arms and legs felt like I had a ton of bricks on them and my chest felt heavy and I can't stop...
Thanks, I will be calling him tomorrow to find out more of what he said. He did not mention doing anything--but I may push him to find out what is going on....
When I was in pain like that, I spent my life in a very warm tub. The water soothed my rectum and the heat from the water soothed my belly. I would litterally sleep in the tub. My husband would come...
Has anyone been told that they could possibly have an intestinal loop? If so, could you share how you felt inside. For the past 2 months, my stomach blows up like I'm 8 months pregnant after I eat...
I had my gallbladder out last august. Since then I have had worse D. I have crohn's and a colostomy. The surgeon removed it via laporscopy. When he was backing out the instrument, he sliced my small...
Hi!! I have crohn's d now for 20 years--and a lovely colostomy for 12 years. My question is how can you tell if you have a stricture or if you have narrowing of the itestine. I know what a blockage...
THANKS FOR THE INFO--I AM FROM MASSACHUSETTS...
I was wondering if any one here is on disability for their crohn's and if they have had a review? This is the first time I am filling out paper work without an attorney. Anyone ever have it taken...
Thank you Ides!! The information in the link was very helpful--it most definately sounds like me--and my doctor has tried cholestyramine and when I stopped the medicine--the D came back!! I still...
Hi!! I was wondering if I could get some help from everyone? I am 44 year old mother of 3 with CD since I was 20. I also have a colostomy for 12 years now. I am on remicade every 8 weeks(still havent...
I felt better from the pain after having a colostomy but you still have to deal with the bag!! Is this your last option. I was told if Remicade was around when I had my problem, I would have never of...
thanks for all the reply's but I feel I led everyone on the wrong track. I have no intention of suing the surgeon-I knew there is a chance with any surgery. My concern with the mees up is the small...
Hi!! I haven't posted here in almost a year. I still read all the posts because they are a great comfort (not that we are all sick, but) to see that I am not alone!! A week this friday i went in to...
Do you have gallstones?...
Try the remicade first!! Remicade was not an option when i developed my first rectal fistula so I had to have a total rectal removal leaving me with a perminate colostomy. My rectum was too far gone...
Has anyone taking remicade ever gotten an itch as a reaction? I just had my 4th remicade treatment for my crohn's on Jan. 25th--2 weeks prior to the treatment I started getting this itch. It first...
Hi, Just had surgery to repair my hernia on Dec.3. I did not have the mesh--I was told that with crohn's the mesh is not a good thing. They made an incision around my stoma and removed the hernia and...
I am having my surgery Dec. 3. Very nervous. And yes staying on soft foods helps with the passing of the stools and the pain. They also have me on a very stong antibiotic. On top of all this, my...
I will answer my own question so everyone will know what it is. A parastomal hernia is a hernia below the stoma. The hernia can sometimes become quite large and show on your abdomen. Sometimes the...
Has anyone had a parastomal hernia? If so did you have the surgery to repair this? THanks for any info!!...
Hi!! New to this post--usually post at Crohn's site! To make this short, I have had crohn's for 22 years (42 years old) and have had my lovely colostomy for 11 years. Lately I have had BAD pain when...
It took my 17 year old daughter about 4 days to really start to feel better. She also had alot of oozing mixed with blood coming from the incision near the belly button. She had her laposcopey done...