As per PB4's comment, definitely don't drink on it. I was advised that 'in the good ole days' they used to prescribe it to alcoholics to stop them drinking. Flagyl makes you violently ill if you try...
Not too sure if this would help, but I've noticed that before I get a flare, any photos taken of me look awful, my skin looks sallow, my eyes are sunken and I look positively skeletal in the face -...
Nice to know my routine is as 'normal' as everyone else's as above when not in a flare :) IE. wake up, go to the toilet, eat breakfast, shower, get ready, go again to the toilet and then ready for...
I haven't had bleeding for over a year now (yay!), but until I read this post, I never made the connection between not enough sleep and/or sex and an increase in frequency until it occurred to me...
Hey, I feel your pain - savlon can help but wouldn't know what it's called overseas. If I want to stop any chances of infections, I put iodine on it. Bluuuddddy hurts like hell and need to be near...
Perhaps I do need a road map with signage pointing the way! LOL! You should have seen (or perhaps not....) the sight of me looking for it while trying to hold a mirror, a torch, and a cotton bud with...
Are you drinking less water? Sometimes drinking less water makes everything harder and smaller to pass. BTW I'm sorry, but your description is quite funny and gave me a good laugh!!! :)...
Hi Ivy Well, I would much prefer to get him to repair it. I think if I just went the route of making an official complaint, it might 'blackball' me in the rest of the state. However, I told the head...
I can understand why everyone is getting up in arms with the word 'cure' by eliminating gluten products. I was and still am gluten and wheat free, as well as a number of other foods I cannot...
Too true! At least they have 'drug alert' all over my files as am super allergic- it's a case of 'what aren't you allergic to?". He knew I was more than peeved off. At least he had the decency to see...
The exploratory took place at one of Queensland's state capital's hospitals where they teach students - may the Lord protect the students....! 8 years ago in my hometown, which is a regional city, I...
Just having a rant and rave about idiot surgeons. Had an exploratory last year by a surgeon who tracked my RV fistula from beginning to exit. Had surgery on the 6 August this year with a fistula plug...
I've been taking 6MP since end February after massive blood transfusions, but also take 6 x 750mg of Colazide (mesalazine) as well. The colazide by itself at 4 a day weren't strong enough for me (a...
The weird thing is I can eat spicy food, ie, Thai, Indian but react to good old fashion meat and 3 veg. I LOVE my mother's Roast Lamb but I always pay for it afterwards...... I also miss being able...
Hi All Am posting this on both the Crohns and UC forums as it may be of interest to those looking for natural alternatives. Last night (Australian time) on one of the TV programs, there was a story...
Hi Jawink I too have a very strong sense of smell, can even tell when someone has just woken up and changed into their day clothes without showering beforehand......! I'm on Colazide which I think is...
Before I was officially diagnosed, I went to see an Iridiologist (diagnosis via the eyes). Interestingly he said I had a 'leaky gut', meaning I made noises after I ate as it was due to me not...
Hi Yadi Been offline as had had surgery for my RV Fistula using a new technique in early August (not for the UC) but it unfortunately failed and so ended up with a post op infection and now on...
I agree, everyone is different. I lose weight on pred as it suppresses my appetite. Had to go on it as am allergic to all non steriodals and my misdiagnosis by the GP saw me on super high doses on...
I also had the hereditary testing done which was negative. Your Dad was so lucky. Recently on the news here a 19 yo died 4 hours after fainting. She had only started taking the pill 4 months earlier...
Hey burnabygirl! I have to have more blood tests in November specifically for the GI (I think I should get a permanent tap in my veins from all the testing I keep having done) and they are testing my...
You would have to talk to your GI about surgery and what happens afterwards. For some people it's the answer, for others, not. Check out the Ostomies forum, a lot of people there have had or are...
Holy dolikins Chronicallyill, you've certainly been in the wars! Congrats on the baby. I too had a rough as guts nurse who initially whacked the stomach injection into me - the bruise only faded...
Hi, I have splotchy brown skin discoloration on my neck that started after taking mesalasine/salofalk and now colazide, and it gets worse or better according to the dose I have to take. I had it...
Hi Sara I agree, everyone is different. I was told by the GI that my immune system no longer was seeing my bowels as self as somewhere along the line my sleeping T cells were woken. I find that being...
I agree. For some reason people have heard of Crohns but not UC. I end up telling those who I have to, that I have Crohns as it's the most easiest way. People also confuse IBD with IBS..... My elder...
Hi again Yadi Being a female you learn to cope with period pains. I try to think of bowel pain as that too and just sit still and breath through it (if it's just pain and not a toilet run)....
What sex life!?? I feel like a vestial virgin. Funny thing is that in the last 3 months I've had to do 3 pregnancy tests as am on a clinical drug trial and had surgery (failed) to repair the RV. Kept...
Hi! Mine range in size, from very small pin spots and flat, like the ones I have had on both arms for a couple of months, to ones that are bit bigger, more raised like a blister, and then disappear...
heheheh YellowRose, that bought tears to my eyes from laughing so hard, I suppose it also bought tears to the eyes of the people in the lift..... ;) I know I have a warped sense of humour but it...
Ah Southpaw33 Being a female, you made me laugh out loud re the menstrual cycle episode!! I just had visions of what their faces looked like. My recent bleeding episode was in Feb this year when...
I've experienced NHS when in England many many moons ago and found it to be good (although misdiagnosed!!). The same with the service here. I know Australia is having a medical crisis re the number...
Hi Taylor and Burnabygirl A flare up is going heaps of times to the toilet. Oh lucky us. THe only *Good* thing about having this thing is that people comment on how lovely my skin looks, so...
Hi Yadi Everyone is different. I have allergies and so can't take sulphur which is what sulfasalazine is. I originally was put on mesalasine and pred. I've taken pred on and off in the past when...
Although I'm officially diagnosed with UC (at one point they called me TYpe unspecified as have a fistula), I am part of a gene testing trial (drs love you when you let them experiment on you or take...
Hi Southpaw33 Drs can be so insensitive. I'm sure if he had prostate and had to have his testes removed, he wouldn't appreciate it if you told him to be a man and to deal with it. Also people (my...
Hi Burnaby girl Get yourself to a Dr or to A&E. Blood is never a good sign, especially if it's every day AND being on warfarin GO TO THE HOSPITAL. Flareups make everyone predisposed to getting...
Hi! Due to my allergies and adverse drug reactions, Keflex is about the only one I can tolerate. I find that I pass the drug 'smell' when go to the toilet, even to urinate. I've never had it make...
Hi Yadi I know, it sucks but at least you've been diagnosed. I had to wait 20 years before keeling over in 2005 and having to have a blood transfusion before got a correct diagnosis. I think the...
Before I was diagnosed I used to have copious amounts of mucous. Now rarely get it. Blood is far more serious, especially if it's that really dark colour and weird smell (once you've smelt it you...
Don't you feel like whacking the Dr when they say something as totally insensitive as that! I understand the embarrassment. You're happily sitting there and then get up to go somewhere and...
Hi Libby My INR kept bouncing around due to the pred as everytime I weaned down to a lower dose, the INR smashed. So after 2 months they started to get my INR right and I only had to go once a week...
Because of the 6MP we are suppose to have regular blood tests to check liver function, and possibly have our uric acid levels tested. You can also experience some hair loss which I noticed about 3...
Hi there! I see you're on 6MP - that is one of the side effects. I usually get them on my forearms. They raise up like a blister sometimes. Other times it looks like I must have hit my arm or...
I'm surprised that your Dr or even the Pharmacist didn't mention the side affects of 6MP. I'm in Australia and plastered on the bottle is 'Avoid excessive exposure to sun and sun lamps'. Plus the...
Hi Libby! I've been diagnosed with UC BUT being the unique person that I am (according to my mother), I've had blood clots AND a current fistula for 8 years to which a new surgery using a plug failed...