Hi there, I haven't been on this forum for months and came upon your post today so sorry for the late response. You may already have come to a decision. I know what you are going through. I tended to...
I had spotting on and off for about 2 months. I started gaining weight around 4 months. About a pound a week until I gained almost 10 pounds and because I am 5 foot 2 and my husband had a vasectomy...
I had the Mirena inserted in September 08 and just had it removed in Feb. I flared really bad shortly after insertion and again after removal. But in between it was awesome! No problems with crohns...
I use 9mg of entocort and have been for almost 3 months now. But I also take 6mp and Lialda. And when the flare started I used canasa 1x per day and cortifoam enemas 1x per day for about 6 weeks. I...
Hi Jen, I hope you find a medication that works for you. I saw that you are from Michigan and was wondering what area. I am in Kalamazoo and have a wonderful doctor but I am also familiar with the...
Since starting 6mp 3 years ago I have not had inflammation in the Ileum. I only noticed side effects when taking it while pregnant. Who knows why and I don't really care. I just stopped it. When...
I took entocort instead of predinsone for the first time in October. You have to follow a similiar taper schedule as pred. in that you can't just stop taking it but I didn't have to take it as long....
Thanks Sarah! I for the first time in 6 years was ready to just throw away all of my medication. I was finally only taking 100mg of 6mp and now I am right back to 7 pills a day and using canasa 2x a...
I know how you feel! We camp on friends property without running water or facilities. Every morning I would go out in the woods with my coffee shovel and toilet paper and dig my hole before I had to...
I took asacol 2 sometimes 3 x a day about a year ago and found that I was missing more doses then it was worth so went off of it. My doctor said Lialda is the same except you only have to take it 1x...
Went to the doctors today and now I am being treated for symptoms of UC since my last colonoscopy showed a UC pattern. He wants me to take Lialda and everything I read says it is for Ulcerative...
I had lots of that bright red blood in the first trimester with my second born. I would barely have anything else after pushing forever but lots of blood and mucuous. I went in for a sigmoid and was...
I nursed twins while taking Entocort (8 week duration). They were 11 - 13 months while I was on it. All involved in my care and theirs didn't have an issue with it. I take all my medication in one...
Kalamazoo Michigan...
I just had the mirena removed. Not due to crohns. Had a horrible flare shortly after it was put in but otherwise fine. However, I wanted it in to help control hormones more than anything and the...
I am going through the same thing too. Strange how I actually can start missing going to the bathroom. I haven't gone in 5 days. I will have urgency and go on the toilet and basically feel like I am...
I had to pay 75$ for one month in the US. Needless to say, I had 3 days left of my taper and ran out and was not about to refill it! I guess it is quite a bit more costly than pred....
Hope that maybe you feel yucky because of pregnancy hormones. I had a minor flare in the 1st trimester with my 2nd and canasa did the trick in about a week. Otherwise I never flared until right after...
Entocort worked very well for me with my last flare. No moonface but did notice while at 9mg I was tired and had a slight headache. Was fine once I went down to 6mg. I love it compared to predinsone!...
My husband soaked our venison steaks in milk for at least 12 hours and then fried it in a cast iron skillet really quick on both sides in butter. We used it for fajitas but most of our guests were...
Just wanted to add that I do not do my medication research on the internet but with my doctors and pharmacists. The internet can be a very scary place. Try to relax and have your wife work with the...
Hi Mike, I take 6mp and although some on here would have a fit I even nursed my twins for 13 months while taking 100mg. I highly doubt my pharmacist, OB, 3 different pediatricians, my GI, my...
Oh my you sound exactly like me when I flare up. I always tell people that I never get to comfortable because you just never know when a flare is going to come on. I know how you feel about taking...
Hang in there pb4. I feel for those who suffer with IBS but I really really can't stand when people pass or mistake crohns symptoms for IBS. I hope you get in to see a specialist soon. Sally...
Hey! I have been pregnant 4 times with my first being a first trimester miscarriage before I was diagnosed with crohns. The baby had trisomy 9 which is that something freakish happened when the...
I always itch at first when taking vicodin. I always joke that I look like Ray Charles in Ray. I usually only itched when I had to have it every 6 hours. But soon as I started to decrease the itching...
Good Luck on your interview. Let us know how it went!...
Hey! I too begged not to be on predinsone with this last flare and if we could please please try something else. Lucky for me the colonoscopy revealed inflammation from the rectum and a straight...
Hang in there! On mornings when I am walking my son to school with 3 other kiddos, a double stroller that takes 10 minutes to get through any door and about 3 other mothers with their kids and I of...
I have not ever been on Remicade before but know that there are many mothers here who have. I am not sure how you look up old posts but if you know how, there have been tons of posts on this topic. I...
I have followed your posts and am very happy to hear you are at home. Sally...
My OB always says I should be a surrogate because I feel so awesome while pregnant. But boy have I flared HORRIBLY about 3-7 days after giving birth every time. I have only taken asacol while...
I hope you find a way soon to get the treatment you deserve. My GI doctor is awesome even if he won't agree with me that pregnancy and hormones bring on my flares . . . hee hee (He always says if you...
I am so sorry to hear of your little one going through so much right now. I am really surprised your nurse said that! It actually really bothers me. I took penicillan for 7 days when I was in high...
I am so sorry to hear of your loss. I hope you find this sight very healing. You are in my prayers. Sally...
Hi Jo, I have always gotten pregnant with one try but did have a miscarriage with the first pregnancy. I was not diagnosed at the time and always wondered if it could have been linked to me not...
Hi! I am 34 and was diagnosed with crohns when I was 28 about 5 weeks after the birth of my first son. I have gone from full time to part time to now relief status, working as an Exercise...
I nurse my 11 month old twins and take 6mp. My GI, OB Pediatricians and lactation consultant do not see a problem with it. I take 100mg before bed so for the last 6-7 months the twins sleep at least...
Hey, I was unable to take 6mp while pregnant as it caused me to have severe headaches for some unknown reason. After giving birth to my twins I began taking it again and have been nursing for 11...
I just had a really bad flare and asked to please please not have to go on the predinsone again! He put me on 9mg of entocort, canasa and cortifoam enemas and I feel like a million bucks already...
I think the two is enough. I know what you mean though about the wanting to be clear. I took one phosphosoda last week and had clear and than kept on going blood and blood clots. I called the next...
Hey Jeny, My friend nursed her baby and took morphine in the hospital after her c section and took some narcotic (not sure which one) for a short time when she got home. Her doctor never said she...
My doctor prescribed me vidodin with this last flare. He gave 50 pills with 5 refills! The colonoscopy must have shown some pretty bad inflammation because he never gives me that much. Not that it...
Hey! Didn't know if you were still thinking of the mirena but wanted to give you an update. I just went into one of the worst flares in the 5 years I have had this disease. The only time I get this...
Hope your days are getting better. This disease had me in tears last week too. I couldn't afford the 75$ co pay for one of the 5 medications I was prescribed. It all worked out in the end as Im sure...
I took Iron tablets when I was pregnant with twins. I just remember that I had to be sure not to take it with my prenatal. I did not have a problem with constipation. But I remember I did with my...
Thanks Nanners, I have a call to my GI and did talk to one of the ob docs at my docs office. She seemed to think I should give it some time before I have it removed. But I failed to mention in my...
Hey! I am being treated for a severe crohns flare (the worst since I was diagnosed). The inflammation is not very high and has a uc pattern. Normally my doctor puts me on predinsone but this time he...
Oh my! I have my 3rd colonoscopy on Oct. 2nd and after reading this I am going to make sure they really put me out! I have always thought to ask if I woke up during the procedure! The first one one...
Thanks for sharing! I really liked the info on hypnosis and stress! Sally...