I went in for Remicade today and got sent home without it -- 1 hour and 6 sticks, no IV access. My veins pretty much suck (this isn't news to anyone at the infusion center or the lab), but this is...
Thanks for all of these suggestions! I went to the doctor today -- turns out it's gingivitis (this time, anyway). I'm on antibiotics, so we'll see what happens *crosses fingers*...
It's great that you were able to get your infusion! Are you feeling better?...
I keep getting sores in my mouth . . . it's nothing new, of course, but it is getting extremely painful. One sore heals, and the next one pops up a day or two later. I have Remicade next week, and...
"You're too fat to have Crohn's, so it must be something else." "It's all in your head." "You're overreacting."...
Thank you for the suggestions! I'm going to do some research and see which ones my insurance will cover. I love seeing two recommendations for the same doctor -- Dr. Tadros really sounds like she...
I was diagnosed with gastroparesis two years ago. It comes and goes, but when it's bad, it's really bad. Reglan works miracles, though. I would love it if there was a study on the correlation between...
I usually don't eat breakfast (can't afford to spend hours in the bathroom when there's work to be done), but when I do, I shake up a bottle of vanilla Ensure and sip at it for 10 minutes or so....
Good luck with Remicade! I hope it does the job....
I went gluten-free for a few weeks and felt no difference whatsoever. My pocketbook, however, was much lighter . . . man, that GF stuff is expensive....
Any good GI recommendations? I live in the Orem/Provo area, but am more than willing to drive to Salt Lake if it means seeing a doctor who is competent and, above all, not a jerk :) I'm currently at...
Well, it's going on 6 months now. Fevers are still reoccurring, and: 1. I've managed to fully stump the infectious disease specialist 2. The rheumatologist has decided that it is Crohn's-related and...
Aw, man! I love cantaloupe. This only applies to the melons from Colorado, correct?...
I got sick (the coughing, aching, fever kind of sick) on 4th of July weekend. My roommate had to drag me out of bed so we could light off the $100+ worth of fireworks we'd purchased together. A week...
Aww, Nanners! I hope you feel better and are able to come home soon. *hug*...
I use this app every day on my Android. I love it, it's extremely helpful....
I eat things that are high in fiber to see if I can get things moving along. Raisin Bran, salad, wheat bread. If that doesn't work, I take Miralax....
Somewhere in between 5'3" and 5'4". I wasn't diagnosed until I was 22, but I've been having tummy troubles since I was 12. My family tends to be tall (most of my sisters are 5'8"-5'10" and my...
You didn't mention a HIDA scan -- that would measure the gallbladder's ejection rate, and can be really helpful if the ultrasound was normal....
I've had one every year for the past three years, but I don't think that's necessarily standard procedure....
I had my wisdom teeth out while on Imuran, and I was not required to take antibiotics beforehand. There were some problems during the surgery, but not due to meds (primarily, they couldn't get one...
I threw up almost every day from August to March, and my internist thought it was a Crohn's flare. Turned out to be gastroparesis, completely unrelated. You may want to check with your GI to see if...
I've been having a pretty heavy amount of both bright red and black blood in my stool, especially this weekend. I just had a Remicade infusion on Thursday, and my GI is a jerk, so even though this...
. . . They require bloodwork for Remicade? Wow, I always knew my GI was not the brightest crayon in the box, but . . . wow. What are they supposed to be checking for?...
I did this back in December, and it was very easy to apply for. One-page form, you fill out half, your doctor fills out the other half. About a week later, the GI's office called to say a huge box...
No changes in texture, but it has fallen out quite a bit....
I read on here before my last colonoscopy that sipping slowly through a straw after refridgeration was the best way, but it was dreadful. I managed to get the entire prep down by refridgerating it,...
Zofran is wonderful, and it doesn't cause drowsiness. Nauzene works some of the time, it's over the counter (you can get it for about $4 at Walmart). You can also try sucking on peppermint candies...
See, the urologist kept talking about intersticial cystitis during the cystocopy, but when it came down to it, he wouldn't give it a label. Just said that it was inflammation probably caused by...
I gained quite a bit when I first started having symptoms. Doctors refused to even see IBD as an option, despite everything pointing that way, because I hadn't lost any. Even when the tests came back...
I've been seeing a urologist lately for blood and protein in my urine, and I had a cystoscopy about two weeks ago. He found a lot of patchy inflammation all over the place, so he did a biopsy, which...
I take Ambien every night, and it is a godsend if you're lacking sleep. I tend to overreact to any and all medications, but surprisingly, I have not had any side effects at all from it. I take a...
I've been told because of medications, I can't donate, but when I went to ask last year at Comic-Con (they had a blood drive), Crohn's was listed in big letters as a condition that makes you...
I made the mistake of doing my first infusion in the morning, timed perfectly so I could go to an afternoon meeting with a client. I was so groggy and miserable the rest of the day, I decided to swap...
Yep, I've got a huge one going on. Hurts and itches like crazy, but I'm being a good girl and resisting. I've gotten them before, but not very often. This is the first in a couple years....
I'm on Remicade and Imuran, so I'm not-so-slightly paranoid about all the huge warnings about infections and lowered immune systems. Are cold sores worrisome and needful of a doctor's attention, or...
I was diagnosed with this in high school. They mistook it for pericarditis (long story about x-ray mixups), and I was looking at surgery, so I'm glad they got everything straightened out. Steroids...
Aw, that's sad. I never knew he had Crohn's. I think I remember more of his son being on-air than him, but I've read he was an excellent guy and weatherman....
You can still be having gallbladder issues without stones (which is what an ultrasound looks for). A HIDA scan will show the ejection rate....
Yikes! I'm sorry you're going through this. I hope they get everything figured out, and quickly....
Never been on Accutane -- never really had acne until Prednisone....
Pentasa does jack, as far as I can tell, but the GI's NP won't let me go off it. Imuran worked for a year, but then stopped. I was Prednisone twice during this last flare, and it didn't do the job....
She said my symptoms sound exactly like a kidney stone, but the CT scan I had a few weeks ago when this started was clean. Urinalysis showed protein again, so she checked my kidney function, and it...
I've had three Remicade infusions, and the last time I spoke to my GI, he said it was my decision if I wanted to keep going or stop. He wants me to stop, since he's not fully convinced I need it (his...
The center I receive Remicade through charges $5,320.00 for the drug itself. I'm in the United States. The total cost billed to my insurance is $5,749.00, which includes premedications (Tylenol &...
I had a UTI a few weeks ago. Blood in my urine was the only symptom. Urinalysis showed protein and bilirubin, and I took a course of antibiotics. The blood seemed to get worse, and was accompanied by...
I've had nausea/vomiting as part of my symptom set since I started having problems. I've recently been diagnosed with gastroparesis, and the treatment (Reglan 4x/day) has helped the vomiting...
If you didn't receive the COBRA paperwork within 30 days, you need to report the company. They are required by law to give you COBRA information within 30 days of a qualifying event (in this case,...
Mine's regularly irregular; the only thing I can count on is that I can never count on it. Some months it's late, some early, some not at all....
She was also on three seasons of Charmed as Prue. I'm really hoping she makes it far. I'm a big fan :)...