Hi Minnietoty, I don't know of any such thing as a place that sells safe food for crohns. I'm not sure that's possible when you think of all the foods that work for some people but make others ill!...
Hi Char My heart goes out to you. It may or may not be Crohns but you are totally right to consider it. I have Crohns and have had several abscesses which were drained with a needle or surgically. I...
Hi pez I think Judy has the same diet as me. I have Crowns and need a low fibre diet as I have a stricture. But the diet they gave me looked as if it would give you diabetes if you don't have it...
it's so great knowing you're not alone. For some reason Libraries and supermarkets are the places where I suddenly need to go urgently. I have several trollies of abandoned shopping when I just...
Dave Thank you for making me laugh out loud - I want to go on that CD Pride march, I'm already thinking up slogans for us to shout....
Hi there, I have never tried this but many people on this forum take LDN which I think tries to build up your immune system rather than reduce it. I have tried elemental food which I found very...
I have had a stricture for several years now so part of the bowel is very narrow and if it gets inflamed it swells up more and can get obstructed. I avoid foods that I know cause inflammation, for me...
Hi there I had a recurring abcess and they wanted to do a resection but I said I wanted to avoid surgery if at all possible, and they were not happy but I was treated with drainage with a tube, and...
Bosnianboy I know how you feel I had a horrible abscess like that too and it was drained one time with something like a vacuum cleaner and another, less painfully they scooped it out by hand. (nice...
Firefighter I will tell you what NOT to eat, and that's mangoes. Even soft ripe ones. They are extremely fibrous and have long sugar molecules which make them worse my doc has just told me! I have...
hi meagain sorry to reply twice like that i didnt realise it had worked. best wishes again...
hi NCOT you asked me where my cd was located well it is in the terminal ileum and I got abscesses which were very painful and had to be drained but they wanted to do a resection which I wasn't happy...
Hello there NCOT I spent several weeks on that very same elemental diet and I got that metallic taste and found it was better chilled. I found it was constipating as theres no fibre at all and...
Hi there I have not had a resection but if I had to I would try elemental food, such as E028 which is a liquid food containing all the nutrients you need but no fibre. Thn eafter a few weeks you can...
Steggy, did you know you can get Activon, which is medical grade Manuka honey? It's made by a British company called Advancis medical. I think you can get it on prescription here, I don't know about...
Hi there I had several abscesses drained in my abdomen as they came back after a few months .seems to have cleared up now. yours have been dealt with quickly which is hopeful.. I was not let out of...
I use one called Elemental 028 extra. I have been using it for a year and for the first month or two it was my sole diet, including when I was in hospital having an abscess drained. I found it...
Yes I got numb fingers and toes after taking flagyl for 6 months. I was warned it was a possible side effect but when I got this peripheral neuropathy they did a load of blood tests to eliminate...
Dear NCOT I think you are so right to bring this up it makes life such a misery and like you say its very painful. Yes the D is vile too you are allowed to object to both! I get C much more than D...
Daisyrambler: you can have all kinds of fistulas. Its just an unnatural connection between two parts that shouldn't be connected, so you can have a fistula between your bowel and your bladder for...
I had similar experiences and in my case it was a partial obstruction. food would get stuck then the gut would try to force it through which caused the waves of pain. then sometimes when there is a...
why dont you try and get a CT scan or an MRI before considering what if any surgery you might need. or even another barium meal, something that will tel you the state of your strictures now. Good...
Ari - I would want to know a bit more before going for surgery. Once its done, its done! I would want to know how long and how narrow the strictures are, and to know if they are coused by...
I have just had an MRI and I had to drink about a litre of liquid, didnt taste too bad, and then have an injection during scan. the main thing that surprised me about the scan was the noise! it is so...
Yes Sniper, ALL THE TIME. I think you do have to consider effects of medication. Also you can start thinking up ways of making it less likely that you will lose stuff. Like have you got a wall of...
I have been using enteral nutrition since i came out of hospital at the beginning of this year with yet another abscess. one of the best things about it is that you can start by just taking the...
Janicea I am so glad I'm not the only one, I had to wear braces to hold up one pair of VERY loose trousers and not in a stylish way. We all have to find our own solutions in fashion as well as food!...
The problem is that strictures can be caused by scar tissue from previous inflammation, or by inflammation on its own or both. If its just inflammation then it can go down, but if its totally scar...
Dear Nanners I wish you the best for your surgery. If they know about the adhesions and still think they can do it laparoscopically you will probably be all right. whatever happens you have to give...
The best question I asked was when I was first dx'd and the doctor told me I had terminal ileitis. So I said am I going to die then? and she said oh no hahahaha thats a good one. And she went...
Very sorry to hear what you went through. Just a couple of thoughts:- yes you could have a stricture, caused either by scar tissue or inflammation or a combination of both. Then the only thing that...
Thank you Nanners yes it tastes like rotten milk mixed with chalk and I cant stand it. Glad you can still do diet without. I did try fruit fools, which are fruit youghurt and cream but I think the...
Having read all these posts, I have just sent off for the book on digestive health - thank you I have two questions one is, is it true that sprouted breads are made from wheat sprouts, so its more...
chronnie too i was so interested to hear your experience. I had the same thing where i felt the surgeons were telling me things that were untrue to get me to have surgery. i did feel that they were...
I have been using VSL#3 for over a year and found it very good, I cant say it was any better than yoghurt because I've never been able to tolerate it. BUT I'm not sure I would recommend it now; since...
Are you seeing a gastroenterologist in a hospital?mine always says to phone if theres a problem and you can make an urgent appointment with him/her. Also at my hospital there is an IBD nurse maybe...
Thank you very much writer for explainign that i shall go back to th liquid gunk more happily. I hadnt realised most of the problem bacteria were in the large intestine. i ws picturing them damaging...
Thank you writer thats so interesting but coul you expand? when you say there is no plausible way elemental diet could cause growth of bad bacteria, is that because you dont believe in the whole idea...
I am on an elemental diet and finding its very helpful in resting my bowel. I have just had an incision and drainage for an abscess so I want to get a chance to heal rather than having any problems...
I am very interested in this, I use VSL#3 and its excellent. I have to say that the last batch was not as effective. It tastes different, not so sweet. also they have changed the packaging, its now...
hello me again just thought something else check up on the difference between soluble fibre and insoluble fibre, they are different and are absorbed differently. best wishes again!...
hi there ihave a problem with fibre as i have a stricture and too much fibre causes a bliockage, especially if there is any inflammation as well. what i do is blend vegrtables into a mushy soup...
I am very interested in this as I have been on a liquid food diet since having an abscess and have found my crohns is fine tho I have definately put on weight so my body is absorbing the nutrition....
I have just had three abdominal abscesses. A t first I didnt know what it was, I had a pain like a stitch in my lower right abdomen and my right leg wouldnt lift properly. I didnt even think the two...
Thanks for replies. Patientspiders- sorry to hear yr abscess experiences . The odd thing is mycrohns seems ok, no probs with BMs.As for TPN, sounds just what I need but drs are so fixated on surgery...
I had an abcess on my bowel which they tried with antibiotics but it got worse and they drained it with a needle 2 sites.They refused to do a surgical drainage as they would only do that cobined with...
woolfie:- very glad you took trouble to explain all that. I hve some more questions for you. When you came out of the op did you have a naso gastric tube because that is something i am terrified of...
Pearl I am in such a similar situation to you and I also cant decide! The questions i have are: how much bowel do they want to remove, because if they take away too much you will have absorbtion...
I wish you good luck. Is there any way you can find out if the stricture is narrower because of scarring or because or inflammation - because inflammation can be brought down. Also I have found that...
thanks again for replies I feel better now. One thing is that It does seem like a last resort and at the moment I do not have an obstruction in fact fairly normal BMs. Also I have realised that with...