Hi everyone, I'm begging for some insight because im pulling my hair out and cant find the info I need on the web. I'm currently getting Anti MAP treatment and my usual body pains are now out of...
im on rifabutin 150mg, clarithromycin 500mg, clofazamine 150mg, vancomycin 750mg daily but this is the introduction dosage and then it gets bumped up in 5 weeks. I have been getting lots of bloating,...
Ok, Thanks so much for the reply but i have to bombard you with a few questions. How long did you feel sick from all the antibiotics? and are you supplementing with extra probiotics? What have been...
Hi Everybody, It has been so long since i've been on here and when I needed an answer to this question, who better to ask than you guys! I have just started the anti-map treatment with Prof Tom...
Hi Everyone! I just thought I would pop my head in and tell everyone that I had my last scan today at 35 weeks to check on the baby girl and she appears happy and healthy! She is Just under the...
Oh I feel for you so much, I get chills when i think about my last experience with the prep kit. My motivation was that I wanted to finish all the drink and do exactly what they instruct to get the...
Hi Everyone, Just thought I would give an update on my situation and answer some questions while i'm at it :-) Im currently 27 weeks pregnant and while I would like to say I'm doing well, i'm really...
while I get both D & C the constipation is far more common and back in the early days was very bad, so much that i would often tear. Thats the thing with Crohn's, its different for everyone. My GI...
oh and sorry Ivy i'm not a member of the Crohn's association but did look up to join one day but couldn't find it so I will try to look again, thanks for the suggestions. p.s I found out yesterday...
Thanks again for your opinions and stories, I booked in an appointment with a new GI at a large hospital in Melbourne today (my sister is a nurse and got talking to him about me and offered to treat...
I have had conflicting opinions on whether I can get proper treatment for my Crohn's during my pregnancy. I am 18 weeks at the moment and my current GI wont treat it and i'm very unwell. I was sure I...
My diet is gluten free, dairy free and I strongly avoid sugar in every beverage but have the occasional desert (I am pregnant so I don't have complete control) I also cant eat corn, onion, and some...
I feel for you so much :-( and it must be horrible for you to go through having a young child go through this but all I can tell you is how I feel myself. I have such trouble with my guts and have...
Hi Aislin, I'm from Melbourne so howdy!...
Hi Everyone, Just an update I had tears or joy and sorrow today when i was diagnosed with Cronic fatigue syndrome. For the past 2 years I have been to over 15 different doctors because I knew in my...
I used to have a wonderful gut which was regular and never suffered discomfort etc and in the past 3-4 years it has become SOOOOooooo sluggish...to the point I cant eat anything hard because it drags...
Hey Pix thats awesome! see only we would know the crazy motivation to get back into it straight away even if your not nearly %100. I went into hospital on a Thursday and got out Monday morning in...
SydneyJo - When I fell in love with Muay Thai it became an obsession and like oxygen. Before started Thai boxing I was like a normal girl who would do an hour of exercise a week and be exhausted but...
My week involves taking care of my 2 year old full time, running our business paperwork and all the other stuff and teaching Martial Arts at nights and weekends if we have fight shows. When im not in...
I am lucky with friends and Family, I have actually banned everyone from asking how I feel because then I get 20 calls a day and get sick of saying "same as always"....
My husband and I have a Martial Arts gym and I'm an Instructor in 'Muay Thai' and also a fighter when not in a flare..or pregnant. I manage the accounts and paperwork and also have a 2 year old and...
Hi LMills, This exact problem is my constant problem! I am in the same state at the moment and I am basically bed ridden. I was so sick of trusting the doctors and in the past few weeks have been...
Ha ha ha I love that (a Crohnie can never trust a fart) Beca123 as you can see your not alone and you have to be able to firstly know your body and then learn to laugh about it...because you will...
Thanks FitzyK23 just what I needed! when I hear those stories I feel so much better. x x...
Thats interesting because when I told my doc when I was in for an iron infusion he didn't even look like he was even going to debate wether or not too go through with it, although...I wonder if that...
Well actually I missed my period for the first time and after a couple of days I took a test for that reason because i knew I had tests coming up and was on lots of pain meds but it came up negative...
Hi guys, I took a test yesturday after I had some nausia (which also came with that gut feeling) and it came back with two blue lines....and after I had a blood test to see how far along I am it came...
Hi Everyone, Just got out today after going in thursday. I had had enough! I was in so much pain and was sick to death of patching this disease with a liquid diet and too many painkillers so i went...
Featureless!!!!!!!!!!!!!!!! yessssss thats it....sorry I was trying to research something from my small bowel follow through and I wasn't having any luck, but knew if I used the technical term...
When I've had 2 small bowel follow through's with the barium and they looked at the diseased part of my intestine the specialist used a special term for it and it was in relation to the way it...
I don't have any answers but would also love to know. I get terrible joint pain and painkillers don't seem to do too much...any suggestions for suitable pain meds?...
So sorry for the late reply guys my laptop died and have been offline a few weeks. Hi ivy6, My brother is doing well and lucky to be alive seeing as his neighbors perished in the fires. I flew over...
Yeah thanks guys I cant imagine what you have all gone through. I have lots of pain with the usual cramps and reaction to food but I honestly find the joint pain unbearable at times. I spent a whole...
I have had shocking trouble the last 2 years with my guts including CHRONIC constipation, i throw up everything I eat, fatigue so bad I don't work quarter of what I was and i'm completely...
Oh elexis :-( Im so sorry and you have truly inspire me to keep my head up because you have it so tough. I believe that everything happens for a reason and that includes my disease. When I went into...
thanks guys, It may have gone down a bit from being on the antibiotics and did think that but wasn't sure why the pain would be the same if it had gone down????...also the surgeon is a great idea i...
For the last 2 weeks I have felt pressure in my bum EXACTLY like an abscess. its in the same spot as an old one, it gets worse when i'm on my feet for a long time and it is there all day every day....
Thanks for the advise janicea I do try to make more nutritional liquids but even thick drinks bother me and I have to drink them slowly and sip sip sip. I cant eat yogurt but do try on a good day to...
Thanks so much for the reply :-) I had a moment of courage and rand my GI to make sure he orders more testing but as usual he was away on holidays for the week and will be back Monday. Has anyone...
Hi Guys, I am at my wits end and need mostly that people can relate to me because I feel like such an alian these days and its because I just cant tolerate ANY food! I was diagnosed with CD in 2000...
oh my gosh, FINALLY something that has been looked into fatigue! It is my biggest problem and I did more than enough hours trying to research myself to find NOTHING!!! I felt crazy for so long...
My cramps feel like period pain, even with the lower back ache does anyone else get the back ache too?...
Celey, i can completely understand the guilt and disappointment with yourself but I think the one thing about this disease is that it is so unforgiving and unpredictable. The one thing I have learn...
HA HA I was just about to go write on the jello thread about that corn issue...you chew and it comes out whole ha ha ha another lady had mentioned that you chew gummy bears and they come out whole....
sip sip "Amen to the black gold" sip sip I watched an episode of LA INK where a guy was getting a tattoo in loving memory of cheese due to Crohn's. I would get one of a bread roll and a cup of coffee...
HA HA he he Celey that will make me laugh all day...and a little curious, make have to make a trip to the shops to grab some gummy bears. Ha Ha!...
Put your hands up for the following foods that bother you. Gluten - I know that this is widely spoken about but how many really cut it out due to bloating and pain or just because its recommended?...
anyone noticed that eating blue foods (in my case bubblegum ice cream and blue liquior cocktails) equals green bm's ha ha after the ice cream it wasn't just me but my toddler too, ha ha strangely...
I had fatigue and nausea so I took 2 before bed 100mg and now it doesn't bother me. I have wondered if it is more effective in the morning? any thoughts or is it same same no matter what time you...
bloating...