Sarah, I am going to ask my Rheumy if I should go to a Hemo too. From what little I understand, we may need to be on an antibody inhibitor(plaquenil), as anticoagulants may not be enough. Ask the doc...
Kim, ( can I call u Kim? )that is good news on HBO! At least there is Something working! I was doing HBO for 20 treatments, blew my eardrums, & radiation treatments for cancer, all at the same...
Hi, Kimike, I am new to this forum stuff....it says you joined in March? I didn't realize you were new. I am confused too, both u & your husband have PG?? Even though I can't speak for anyone else, I...
Mark, I have had those little purple things too. Did the same thing. Are u taking any aspirin? Sometimes they did turn into ulcers & sometimes not. Enough to make a person rip out their hair! Willow,...
Hi, Sarah, I will try to make this short & only mention the most important. I have seen the Derm department from UCSF & UCDavis on their Grand Rounds. They all agreed it looked PG. As well other...
Willow- Iam VERY concerned about the 80 mg of Pred. Especially when u said u are now taking BP meds. I am afraid the side effects might get worse, adrenals, diabetes, etc., Maybe talk to another doc....
Hi,Sarah2435, Wow, someone else with APS! I was just diagnosed a couple weeks ago! I have been fighting PG since 2005 & now they(new Rheumy) tells me that it was APS all along. ( Antiphospholipin...
Hi, Kirei, I have been tested for RH,Lupus, HIV, Hep's,etc., & they still don't know what is causing the joint pain. I have no swelling or redness. No arthritis meds work, nor do ordinary...
Hi, Everyone!! Thank-you for the warm welcome!!! Hey, Miss Camper, Sounds like you are using Polymem Silver. If you don't have a problem with infections you could use regular Polymem which is half...
Hi,This is the first forum I have ever participated in. I am so glad I found others who have PG! Have felt quite alone in this nightmare, although I am very lucky to have a supremely supportive...