There is a good colo rectal surgeon in Seattle WA...
I had an anal dilation and while they weren't able to do as much as they wanted to, it definetly helped me. I had a very low stricture in the anal/rectal area. I had been in so much pain and was...
Thanks, yes I did read some of your posts and appreciate that you are willing to help. Jan...
Thanks, I did Goggle and got lots of what I wanted. Jan...
oops! The link didn't work for me....
Thank you very much Jan...
I was on this message board in the spring of last year and found people who also had PG. I am trying to locate those posts and wondered if they are still available to read? There was a special thread...
Hi, First off I would like to say I am sorry your son has Crohn's. It can be a challenging thing to deal with. Is the Dr you go to a specialist (GI Dr). Those docrors are more informed about Crohn's...
Sorry, I haven't been on for a while, was in the hospital for a different problem ( I had an eshophagus stricture that took 3 procedures to correct). Been told I will have a very sore throat for...
Hi everyone... Oh, I am in sooooo much pain, I can't believe it!! Quick question.... Have any of you had silver hydrofiber and hydrocolloid used together as a dressing? I went in to my wound care...
Thanks Kim. I had PG ten years ago and then was fortunate enough to go untill this May to have it come back. I was diagnosed with Crohn's 14 years ago....
Mark......"Pyroderma" - buring skin, really fits!! Even with all the resources we have now, PG still is so NOT understood! Kim..... I think it was 2 or 3 years ago that I had that meeting and it was...
Willow, I must say, you sure have a way with words!! Your sweet and kind comments sure made my day, thanks so much. Have you ever considered being a writer? Penny, Good for you standing your ground!...
Glad you checked back. I am so sorry for the awful experiences your husband has had and certainly feel his pain. PG sure is a difficult problem to fix, that we all agree on. I hope the colonoscopy...
Had a wonderful time having lunch with Penny and Willow! It was so nice to have been able to meet in person, but it also seemed like I already knew both of them, through our posts! We talked and...
I sent my number off to you Penny. Look forward to meeting you and Willow....
Norma, The phrase that iritates me is "sometimes you just don't have a choice!" If I think about it, there are probably many more!...
I also have swallowing problems, two different kinds. The first is lower, above the breast bone area and is from my very large hiatal hernia. The other is right in the high throat area, where I have...
Kimike, I am so sorry your post wasn't answered. I find it a little difficult to catch all the posts and make an answer before another comment or two is made. Because all of our comments are made on...
Penny, I thought I had your e-mail address from a post of yours before, but my note to you came back to me. Would you mind posting it? If you would rather not, I can post mine. Thanks. Jan...
Hi Mark, good to see you back posting! How nice to have improvement in your sores as to not having to do the nightly dressings. I can't wait for that to happen. Hope no new ones pop up for you. Neat...
I meant to say Tacoma Mall!! Right off the freeway....
There are a lot of restaurants close to Tacoma that we could meet at for lunch, if that would work for you and Penny. I could do Monday. Jan...
Penny, I was so pleased to read that you are feeling better, hope that continues and improves daily!! Good news on the sores getting smaller, whatever the reason, how nice to finally have happen. I...
Sarah, I do have Crohn's too, but they say many have no detected underlying diesease. I sure hear you about the Prednisone!! I was on that awful (but helpful to many) drug for 23 years straight, for...
Willow, I would like very much to meet up with you and Penny. I am about 20 minutes from Mc Chord, and could travel your way to meet somewhere, in between our two areas. Hope everyone gets a good...
Oh Penny, I understand how you are feeling and I would really recommend a change in wound care! The nurse I go to also wanted to scrape and debride my sores and I told her about the information I had...
Oh Penny, My heart goes out to you, so sorry you have been so sick. You just don't need to add being so nauseated to your list. It is so hard to function. Sleep is good, but you need to get something...
Thanks for the picture, bad as it is. I feel for you, but now know, I have the same type of sores. Mine are in different spots of the leg, so less big in size, it appears. Sorry if you already said,...
I have been trying to find any of the pictures that were posted in the past of their PG wounds, but no success! Can anyone help me to find them, thanks. Jan...
Penny......Thanks for the pain medicine information. I might just ask about the patch. Glad you got some sleep, it is hard to deal with everything, without losing sleep as well. Hope you enjoy a nice...
Thanks for the pain medication information. Sorry you also have so much pain, sure not fun. Hope your system gets used to the Cyclosporin and the sick feeling, and not wanting to eat goes away. Glad...
Willow... I actually have 12 grandchildren! Thank goodness for them, they are my day brighteners! :) Reading comments from this post has made me feel that I am no longer a wimp, thanks everyone. The...
I was wondering if any of you have found a pain medication that helps ease your PG pain? I have trouble getting to sleep becaue of the pain and wondered how others are dealing with it. Thanks for any...
Thanks for the welcome! I am on Remicade, started back in 2000, off for a short break last year. They used Protopic, but it didn't help, just made the legs sting more. Right now I have what they call...
I think I replied to the main forum, but meant to write here! I also have PG and was pleased to hear that others feel the same about how intense the pain is! Good to know I am not a wimp! I have...
How do I find the PG thread again, seem to have lost it? Thanks for the welcome....
I have PG and am so pleased to find others who totally understand the intense pain that goes along with having PG! It sure helps to know, I am not a wimp!! I have Crohn's and had PG ten years ago,...