I had a resection about 3 months ago now, was slowly starting to feel better - until last wk - pain was easing, was getting more energy, diarrhoea stopped, etc. then last wk i suddenly started to get...
I've been on humira for 3 months now at one injection a fortnight - for the last month i've been on one injection a week & all this time been on steroids - & any drop below 40mg of steroids symptoms...
I find it hard to believe that taking 2 tablets of entocort a week is having any effect on crohns in my opinion - i don' think thats in the prescribing guidelines - my dr was big hater of steroids...
this is great - i never fully explain fatigue to my dr - yet if i think about it its the first symptom i get of a flare - so its prob really important i explain it - though looking at this - i think...
oh yea i'm on it every week too - i leave the injection out for at least 45 mins - get it too room temp & its not as painful...
oh thanks thats a relief that its happened to others too - yea i figure it would have spilled if i didn't give it right - which happened once - i rang humira & they said they'd never seen it before!...
i had the same symptoms - did scopes & had severe inflammation - if theres risk of an obstruction they can do an x ray & ct first to check before doing a scope. - the inflammation you mentioned - is...
Ok so I injected with the pen in my thigh the other day - I've done it before & I've never seen this happen before Held the pen down firm - as i felt the stuff going in - on a bit of skin away from...
i'll let u in on something - i'm on gi number 5 - please don't get too tired to fight on it - you may have just come across a few drs unsuitable for you - you have something going on now & if they...
if you dont want to go the drug route ask your dr about a liquid diet - works well for some ppl - basically drinking ensures & no food for a period of time...
personally pred is 10 times the better drug for me compared with entocort - i was a disaster on it - but i've upper gi crohns so it wouldn't have worked for me for that reason - once your sure your...
I'm in a pretty similar situation to you at the mo - honestly I'm asking for surgery if I can get any hint that it may help - have a review this week! for me the pain is interfering with my day to...
yea totally agree with leaving out the injection for a fair bit before hand - defo easier...
oMG - i've watched ppl giving it on you tube too - i dono if they are actually injecting it half the time - to me they look like they're doing it wrong - some of them don;t hold he plum top thing...
you've just wrote my story!! i've upper gi crohns though so those symptoms are the norm for me - where is your crohns? also i've a long stricture too - which gives those symptoms too - time to get a...
yup love it too - at the high doses only though - it does crap all when i lower it - i'm beginging to wonder what is life like without steroids (been on them 2 yrs & counting)...
black bms can = upper gi bleeding - if it happens again bring a sample to ur dr and ask to check for blood...
ok regarding the biopsies - where in your gut were they taken from? from personal experience I've had colonscopies done & biospies not taken from the terminal ileum & sent home saying your grand & i...
oh yea - anything ibs related wont cause nocturnal/night symptoms - night is a good indicatior of ibd...
if its not showing on ct he could have inflammation - but not as severe as he had - so that may mean humira is working - just not 100% or depending how long hes on it maybe it needs more time. cts...
yea i get them too - a bit of a mystery i must say - they burnt themselves out fortunatley!! Do you get migranes by any chance? I was getting sinus migranes at the time which caused some of the...
if you have have have to take it - take something to protect you stomach - i dont know the generic names of these drugs - the brand names are zoton, nexium - think the class of drugs they belong to...
Hi Penny - thanks - your not alarming me at all - i'd rather an honest answer! - i had the same thing in my mind - i just wanted someone to confirm it!! I actually presented to hospital (not the one...
i was told the same - i didn't need maintenance meds - i get where your wife may be coming from - from my own perspective - i can look back now i say this! It was freaking me out - i didn't realise...
hey - heres the gist of me & my crohn's at the mo!! I've got thickening on my ct scans in the terminal ileum some active crohn's in various parts - colon , term ileum ,duodenum i'm on pred - and...
ireland if that counts :)...
yup - why do some drs leave you till you get so bad - another thing is they think malnutririon is just malnutrition in isolation to crohns - well my gi did anyway - almost tube fed me & caused an...
Thanks everyone for your replies & support! Got my bloods done & turns out i'm low in iron - i thought this was strange for someone supposed to be ok. Also have discovered inconsistencies in reading...
Please be careful when you are eating again with regards to eliminating foods - i did that and was exculding loadsa stuff i shouldn't have been- my diet wasn't at all balanced so make sure a...
I think its individual - i couldnt toleralte 6mp at all but was ok on imuran for a few yrs. so could be worth a go - at the end of the day they are not the same med otherwise they would b the same!...
my meds are outa date there - i havent been on here in ages! I'm only on entocort at the mo. They said the thickening was crohns but not active crohns???- they keep changing there minds & are...
hey - i totally get yourfrustration - i'm quite peeved off at the momyself- so am maybe not the best person to be dishing advice!!! things are also having a huge impact on my day to day life. i...
Hey- Any advice much appreciated (& needed!) /community/emoticons/rolleyes.gif Ok so I've Crohn's for the past 4 yrs. Recently - I've been increasingly tired, if i do anything I'm exhaused to the...