Quick update. I've had the surgery, and am now home recovering. They took out about 3ft of bowel and 46 glands. The cancer had spread to 4 of the glands, which is bad news, but I guess better than it...
CT scan came back clear, it's not spread. That's all the news for now. Thank you for your kind words and prayers. Stasi...
I didn't really get to know any of you as well as I'd hoped, and you didn't really get to know me. I'd said in some previous posts that my doctors were considering surgery very early on, that I was...
Can the colon (and everything reachable with a colonoscope) be clear but the small bowel still have symptoms of a Crohn's flare?...
A friend of mine has had 100% "inconclusive" findings, but after three ER visits and hospital stays they've decided it is Crohn's (from his CAT scans etc) and are treating him for it anyway. He's so...
UK People! Have you been given any medication for pain? How did you get a prescription? Paracetamol is doing nothing for me :( I'm in constant pain with sharp stabbing pains in my lower right hand...
I too am sick of being sick after just 6 months. I feel so guilty all the time that my wonderful boyfriend has to be so supportive all the time. I just really want to be able to make him smile and...
That sounds a bit dramatic re-reading it - however you should mention this to a doctor you trust, as it sounds like you're having side effects that should be addressed by a health care professional....
I just did a quick google search, first link was: http://ibdcrohns.about.com/cs/prescriptiondrugs/p/medimuran.htm "Check with your doctor if any of the following side effects continue or are...
I'm really quite interested in the idea of the Modulen diet, but I've never been on it so couldn't give you information on it. I am however new to this disease, and as for telling people, I've just...
I'm not sure I really understand what you're saying, but wanted to post what might be my own similar concerns. Right now I feel like I'm trying to control an unknown disease. I keep reading that...
Thanks all. I'm asking around friends and family to see if I can find someone assertive who'll come along with me. My partner and I are both very timid and accomodating to doctors, so that won't help...
I've felt nausea every day for the since my symptoms started before xmas. I've taken a range of anti-nausea drugs. It's worse when I'm hungry, but generally bad all the time. Doctor's haven't tried...
The NACC says: "Patients on standard doses of immunosuppressant or anti-TNF therapy should not be exceptionally susceptible to Swine Flu, and are advised to continue with their treatment as the risk...
I was "diagnosed" by barium follow through xrays on 7th July, confirmed (I think) by a colonoscopy on the 14th July, though the results of the biopsies haven't come back, so I don't know if it counts...
I'm very timid around doctors, so it's been suggested I write down a list of questions to ask at my next appointment, then I can make sure I get all the information I need, instead of just running...
My treatment at the RIE started with me going to the A&E because I was forced to by my parents. I'd been waiting 3 months for a referral to a specialist and still hadn't received an appointment. In...
I do actually think the Pentasa I'm taking is having some effect. I've had much less D since starting it just over a week ago, I've not seen any change in pain though. I also stopped taking iron...
I'm in Edinburgh, getting treatment through the Royal Infirmary....
I *SWEAR* I remember reading someone somewhere asking about a dietician in the UK and how to find one, however searching through all the recent threads I can't find it anywhere. So I thought I'd add...
Thank you from me too :) I noticed that the link to: http://ibdcrohns.about.com/cs/mesalamine/ht/fooddiary.htm for some reason sends my browser to:...
I hope this won't be too long a post, but I can't find a way to link to the actual study. Review article: the evidence base for interventions used to maintain remission in Crohn's disease 129:...
I've been talking to friends and family, and I think I'm going to wait and see what the doctor says, but not be too easily swayed towards surgery. My symptoms only started about 7 months ago, just...
Thanks for the suggestions, I'll give them a go :)...
I'm in work and I've just had lunch, now I'm in agony :( I can't really go home because I've already had the last few days off, and my boss has had "a word" with me a couple of times about the number...
This may be interesting to some once the results are published, it's a clinical trial to visualise the effect of Pentasa (from what I can see this is the same as Asacol) on Crohns....
I've made my first, possibly lame, attempt at getting probiotics by buying some Multibinta multivitamins. http://www.multibionta.co.uk/faqs.htm I have no idea what's in them really, and not sure how...
I've found the information on the Mayo Clinic site to be very helpful and informative, perhaps you could get your Dad to read it and understand your disease a little better. A direct link to the...
I feel like a ticking timebomb now :( I mostly don't think surgery is needed, my symptoms really haven't been that bad. If I'm sitting down then I'm generally fine. Uncomfortable and a little sore,...
I had my colonoscopy yesterday. The nurses and everything waswonderful, but the procedure was awful. I had low blood pressure going in, so I think they were careful with the sedation (which lowers...
Thanks for the reply. I've been dabbing with wet toilet paper since it first started getting sore, but it's still getting worse. I can barely sit down after going. I was taking Omeprazole (proton...
Sorry for the new topic, but I've been searching through all the older posts on here trying to see if anyone mentions this, but I can't find anything anywhere. I am in A LOT of pain everytime I go to...
Well I'm doing the prep for my colonoscopy today... not fun. I've two sachets of Picolax to take, did the first but it made me feel really sick. Tasted ok and everything, just made my stomach feel...
I've read alot about diets and food diaries, though for all the time I've had symptoms they've been pretty constant. I can eat spicy/fried foods just as well as everything else, and have never seen...
I was diagnosed with Crohn's a couple of days ago, and since then have been reading pretty much everything I can find on the internet about it. My doctor gave me *NO* details at all about my...