Hi John, I am sorry for the delay. I had a fundraiser on Saturday and I had to create the slide show in 3 days because someone didn't do there job and it fell on me! Yikes. Had a really good support...
Hi- Dr. Rubin from the IBD Center at the University of Chicago has an opinion about H1N1 http://messageboards.ivillage.com/iv-bhgendigesti...
Administrative Director I run Crohn's and Colitis supports groups, patient education programs, and continuing medical education programs for my doctors. Soon it will expand to web adminstrator for...
Hi Miss Cris- Where do you live? I help run a support group in Chicago and the CCFA has groups all over the US. I haven't missed a meeting in over 1 1/2 years. The people in my group have really been...
I recommend the University of Chicago they are ranked #6 in the country for IBD (Northwestern didn't even break the top 50) Dr. David Rubin (my doctor) Co-Director of the Inflammatory Bowel Disease...
HI! I had an ileostomy for 2 years but my rectum never healed so I had my rectal stump removed 2 years later when I was 34. It wasn't nearly as painful as having my large intestine removed. Since my...
I have never had any problems with the flu shot and my doctor urges me every year to get the flu shot....
I have my life back! I can eat what I want, I am able to go to the gym, and travel!...
Laura, Do you live near one of the top IBD Centers like Cedars Sinai, Mayo Clinic in MN, Johns Hopkins, University of Chicago? They are constantly having clinical trials on new drugs on which is is...
Yep top doctors....Since I started over the past year they have had: Marla Dubinsky, David Rubin, Russell Cohen. They have also bought in Marci Riess the founder of the IBD Support Foundation...
you know what I did instead of scar removal surgery? I got a tattoo of a semi colon since I don't have a colon anymore. I wear swim skirt with a bikini top to hide my ostomy but I love seeing my...
Hello! As you all know I have Crohn's with permanent ostomy but if you didn't there it is! I may have no colon but I have a tattoo of a semi-colon! I work for my doctors and I am in charge of the...
It's my understanding that all TNFs can assist with everthing but strictures. I had a rectal and vaginal (yeah talk about sexy) fistula and remicade assisted with the healing process they were...
What medications have you used before? Have you used remicade before? The reason why I ask is if you have had remicade then stopped and then started again your chances of having an allergic reaction...
Have you considered getting a second opinion at the cleveland clinic, johns hopkins, university of chicago? The reason why I ask is that (and you probably know this already) you can only move the...
We are cool I was having a bad day and I got a little defensive. I get called in to speak to patients about living with an ostomy and I have to be pleasant even if the patient or family members are...
Are they pretreating with benedryl?...
I gained weight too when I was on prednisone because I felt hungry all the time. Just be careful and think why you are eating. Also try drinking water before you eat it will help fill you up....
HI Magsguts Welsome to healingwell! Your question reminds me of another question that was asked Octobergirly 'Newly diagnosed with questions " to Dr. Rubin is one of the top Crohn's and ulcerative...
Do you mean Crohn's colitis? That's what I have it stays to the large intestine. I had a total proctocolectomy and I have been off all medicines since my surgery....
I love Dr. Rubin! He has been the best thing that has come out of this disease. One night around 9 pm I had a blockage and I emailed him. He emailed me that night! Told me first try grape juice and...
I'm not disputing what Dr. Rubin wrote because he painting a general overview of surgery for Crohn's disease not Crohn's colitis specific. The post was an answer to JBK1909 who wanted to know when he...
I am off all medication, I had crohn's colitis which means my disease was contained to the rectum and the large intestine. Once that was removed I have a a slim chance of having it reoccur since I...
I had remicade as a last ditch effort to save my colon but 2 weeks later it was removed. I have been off all medicines now for over 2 1/2 years! Just found out that my doctor is answering questions...
looks like Dr. Rubin answered your question http://messageboards.ivillage.com/iv-bhgendigesti...
Below is a link to a website where you can ask an expert, Dr. David Rubin from the University of Chicago Medical Center, about IBD (Crohn's and Ulcerative Colitis). He's my doctor and he is one of...
The difference between the regular GI and places like the Mayo Clinic in Rochester has is the exposure to clinical trials. For example there is a new drug that has enter phase three by Takeda that is...
I work with GI doctors and they always tell me to get the flu shot every year. One year I didn't get it and I dehydrated because I was so sick that I had to go to the hospital to get fluids. One of...
I work for a GI and I have Crohn's too. At our office we have a registered dietician that works with our patients on their diets. Food doesn't cause flares but it can exasperate it. In other words...
Not sure about the FL Mayo clinic but the Mayo Clinic is Rochester is one of the top programs in the country, along with the University of Chicago, Johns Hopkis, Sinaii in New York. I personally go...