I have had 8 infusions and they are working was going about 20 x a day. But now about 5 x and sometimes I am a normal person!!! lol It has changed alot of my symptoms so I am lucky It just sometimes...
I was really worried about being put on the infusion, but it has saved me from surgery and I could not go through that again...I Have had some unusual symptoms, like feeling manic afterwards for two...
Hi everyone, Have been on infliximab now for 9 months, Now on it every 7 weeks. They reduced the dose a little as I was manic for two weeks and that has helped, however I thought I was just picking...
Got food poisening once abroad, thought I would never stop getting sick. I know for me if I get a bug it takes me a long time to get my full health back, but that is just me. I can get a cold and my...
I am at my wits end. Went to see my team of Docs and as the third one is not working they are going to scope me and see if Imflamation is still there......If it is they are stopping the Remicade and...
I am well impressed with your diet, if that helps you with your surfing I might manage 20 mins of a walk and its bloody cold where I live. Thanks Crazy Harry. But if I am eating it and cooking it...
Gonna have to make the leap again into trying these diets. I agree it is hard, I am barely eating again and I am scared that between my cooking and a diet I might stop eating !!! although that would...
A stricture can occur even in your oesophagus, but I have had one and it was like someone dragging something through and down my body, it was a year of hell before I got diagnosed. Mine was in my...
Have they checked Liver Function Tests ? I\m not talking Liver Damage Just it can be a sign of Liver results being a bit off...
Thankyou so much for getting back to me so quick, I have had a crap day, even starting crying at the dentists.....Sad I know I didn't even manage that as a child. I tried to tell myself I was not...
Have Had 3 doses of Imfliximab and the first two apart from weird side effects, but no one had seen me so well for 13 years, MIRACLE !, but after the third one nothing in fact I feel I am going...
No 1 always get a GI you trust and are comfortable with............Even if you have to change evry now and then to get a fresh opinion, I have had to do that. I sometimes find they get so used of you...
None of my surgeons over the years will allow NSAID s, not only do they cause the irrtation to the lining of the bowel, they change the flora. Patrick Holford's website in UK has some interesting...
I know the feeling walking on the beach after my first lot of scars I never had so many people looking at my tummy in my bikini.... mow a few years later I now have a few scars that look like I have...
Tramadol is synthetic morphine so your pupils should be small, it does make you sweat and pred can thin your hair. ( sister a hairdresser). Also stress can cause your adrenal glands to produce too...
When Remicade was not available in my country and I was so ill after resections, I had no idea what to do and was sick to death of Doctors I ended up having acupuncture 2 times a week and ate fish...
I had yjat pain and thought i was dying! It ended up to be where my fistula and abscess was but they thought initially it was an infection in a muscle on one of the muscles on the flat of my back and...
Well after being called annie rexic as a joke for the last few years, the thought of gaining that much weight is kinda scarey, as if I gain 40lbs in a year no one will know who I am. I was never that...
Thanks everyone for replying, cos this is not going away and last for two weeks after every infusion. Its hard..........
Yes had to take time off school it was so bad..............
Hi evryone Just a quick question, How much weight do you put on with Infliximab???????? I suddenly feel like I am putting on weight by the hour which feels very strange after being so thin for so...
Any one experienced a manic reaction on remicade with lots of tears and muslce twitching, felt very tired initially with concrete arms and legs but the tiredness and heavy limbs went. still...
Hi Have just had one dose of infliximab and very tearful, bit manic. Having twitchy muscles feel crap emotionally, My Doctors have never seen this and have postponed the next infusion till they find...