I remember when I started taking Remicade last fall I had to start out with an induction or interductory dose or something like that, where the infusions were closer together...I hadn't been able to...
Oops, sorry about the rule break...just thought it was weird that something like that was on Wikipedia, but I guess I've heard that Wikipedia isn't a very reliable source and was curious if someone...
I was just skimming through the Crohn's disease article on Wikipedia, as I have been going through a LOT with my disease lately and needed a re-fresher on the basics, and it suggests that hormonal...
Nevermind, I called my surgeon today and asked him about drinking wine and having sex....and he says," oh you don't have to wait at all, you can do it now...in fact, you can do both at the same time"...
Two and a half weeks ago I had another bowel resection to get rid of a fistula (to the skin) that I'd had for a year and a half. After a week, right before I was about to be discharged, an abscess...
Hello all, I'm having my second bowel resection next week, I've had an abdominal fistula since my last one in October of 2008 and it's time to try and fix it! I've pretty much been told that this was...
Hello, I'm having my third infusion of Remicade this Friday, and then in November I'm going to be having a CT enterography scan to see if my abdominal fistula looks any better or not...If not, I will...
I mentioned to my mom earlier that I may go to the sauna at the local pool tomorrow...I've heard that it's good for detoxing the body and stress and such...But she seemed to think it was...
i read a lot about the MAP bacteria a while back and it seemed milk was the main culprit in that theory too...i know i drank a lot of milk growing up, but i wasn't breast fed. actually, when i was in...
i have an abdominal fistula, and just a couple weeks ago i ate a 'health bar' with dried coconut in it...and noticed a couple small pieces of it pass through my fistula...so i googled the nutritional...
I hadn't had a drink in about a year and a half, and hadn't been drunk in about three years...until last night. I read a lot of these posts about drinking with Crohn's and while on Remicade (which I...
CrohnieToo, if you can tell your surgeon you are a porn queen with a straight face, Do IT! haha... Marlowe, if I'm ever ballsy enough to get a tattoo, I would love for it to be something like yours...
yea, i really don't wear bikinis here in alaska...ever! but i do love vacationing in hawaii! i really liked your stories/advice tsitodawg. i think i'll go along with something about a bear attack...
This isn't something I'm considering just yet, I'm just curious if anybody that has had a resection has ever had a cosmetic or laser surgery to 'remove' the scar? If so, how did it work out, and how...
ahh, i almost dropped my laptop after reading a few of those! good stuff... and i actually borrowed my brother's DS for my last hospital stay! did you know they make a little version of guitar hero...
I live on an island in southeast Alaska and the only doctor I've seen since being diagnosed is my surgeon (the only surgeon in town). I don't even have a primary doctor anymore and there are no...
MAG:Go ahead and give me your e-mail! I had a resection in October, and a couple wound infections, then a fistula in January...although I'm thinking those 'wound infections' may have actually been...
The way I see it, pain is a way of your body telling you something is wrong, and that you should stop whatever it is that's causing the pain. But, if you know what is wrong (you have inflammatory...
Thanks for the input everyone! I really appreciate you taking the time to respond to a somewhat silly question :) I'm considering starting off with just one or two drinks to see how I feel...but I...
I don't know if you have facebook...but there are groups for Crohn's on there, where you can donate money and invite friends to join the cause ;)...
So I've read some posts on here before saying that most people avoid alcohol because it doesn't agree with them. Is that because of bathroom issues, or abdominal pain? I am lucky enough to not have...
I have tried a few different flavors of Teeccino...I don't recall having any problems with it. My favorite was one that was mint mocha or something like that......
A fistulogram is where they inject dye directly into the fistula then take x-rays to see where it's going. Yes, my fistula is from the small bowel to the outside of my belly, on my resection scar. So...
I was just reading through some posts and came across some comments on radiology imaging. I have had a small bowel follow through, a fistulogram, and a CT scan before...What other imaging can be done...
Having never tried either, but heading in the direction of choosing one or the other (for fistulizing Crohn's --have had a small bowel fistula to the skin for 6 months), does anybody have any advice...
I'm on 500mg of Levaquin once a day, 500mg of Clarithromycin twice a day, and 300mg of Rifampin twice a day (as recommended by Dr. Chamberlin). Also I'm on Flagyl (Metronidazole) 500mg twice a...
I think I'm going to read up on it today....
I also have a fistula right now, below my belly button, on my resection scar (that appeared the January, only a couple months after my resection)....I've been taking antibiotics and seen no...
I haven't tried any medications aside from what I'm taking now and Asacol....I'm hesitant about the more serious drugs. One doctor had told me there were side effects of blood diseases, like...
Yes, the anit-MAP treatment, as recommended by Dr. William Chamberlin....
Hello everybody, I have had a fistula to the skin since January. Right now, I'm taking the triple antibiotic therapy (started a month and a half ago) but have had no signs of improvement, and just...
Thanks to some very helpful people on this forum (and elsewhere) I was actually able to contact Dr. Chamberlin (as recommended by a few others on this thread) by e-mail and he provided the...
The only thing about being part of the trial, is that you don't know if you are getting the treatment, or the placebo....but, I guess someone has to do it in order to progress. I think the CEO said...
Thanks for those links, EMom. I believe my specimen is being tested at Quest Diagnostics, I'm not sure of the location. I just read the article posted by Reef08, and the Dr. Shafran in Florida that...
What's with that last post...?? It was "against the rules due to your vested interest"?? What does that mean.......
Hello Everybody. I had an ileocolectomy in October, and the lab is supposed to be able to test the specimen removed for MAP, although I requested the test about a month ago and haven't gotten the...
Yea, I have had food matter come out...I had a fistulogram a week ago that showed it was to the bowel. My doctor hasn't said anything about flushing it. Just waiting around for an appointment with a...
Well, I know that the stitches were supposed to dissolve, this is the second one that has come out. Both times I have been on Flagyl, a few weeks ago, and right now. They aren't black though, just...
Another inch of stitch came out last night!! My fistula is from the bowel to the skin....how is this other stuff making it's way through?? I thought the stitches were just on the muscle....I guess my...
Well, the doctor in Seattle isn't even in the hospital all next week and my cell phone decided to act up today! Now I'm playing phone tag with my doctor trying to see if he's got a back up in...
Okay, so it wasn't a staple...it was a "clip". Which the doctor said is for "bleeders" or something where they can't cauterize it so they put a clip on it...which means it's not from the actual point...
Sitka, Alaska (The Southeast Panhandle)...
When I had an abscess drained (the second time around,also) they left a drain tube in for about three weeks with a drain bag that I strapped to my leg so you could hide it under my clothes. The tube...
Yea, it's nice...as long as my problems trump everyone else...one man can only do so much. I am relieved to be seeing a specialist soon though....
Haha, I guess it's a good thing my office staples are teal colored, so I'd know the difference! The one that came out was sort of just bent in half like a ribbon, and thick and silver colored.... It...
I am feeling pretty well right now, and I would like to think that's all it is. I keep thinking back to the day I got home from surgery though, when I was taking Percocet for pain....I left the...
I posted the other day about my history and current fistula....about three weeks ago a piece of stitch came out it, which seemed somewhat normal...but today a piece of staple came out! I know for a...
My doctor decided to wait until I go south for a consult with a gastroenterologist before giving me a prescription for the fistula, something about him never prescribing infliximab here before and...
Thanks, everybody. I'm already feeling a little more hopeful. I guess I should just be happy I don't have outward symptoms! I just thought it was odd, and maybe secretly hoping it was a misdiagnosed....
I will try to explain my Crohn's History: In November 2007, I had my appendix removed. At the time, I had been sick for two months and the doctor I was seeing didn't know why, and after a CT scan,...