Steven has had his thyroid checked as well as blood sugars. He has no adrenal gland function at this time. Until we get him off all steroids we will not no if the gland is permanently gone or not. We...
Thank you for your replies and prayers. Your prayers are appreciated more than you will ever know. Laura...
Hi, I haven't posted here in a few years. My son (diagnosed at age 11) has Crohn's and adrenal insufficiency. We cannot seem to get him off steroids without him becoming very ill. That is not why I...
I am so sorry to hear about your seton. I have never had one but my son did at age 12. While he was hospitalized they gave him a perinium bottle to spray the area clean with and then gently pat dry....
Those were my thoughts exactly! I did talk to his regular physician today and told her my concerns and she agreed with me. Steven will be doing bloodwork in the morning to check for possible adrenal...
He has been takin Entocort for 9 months....
My 15 year old son's Dr. decided that he should quit cold turkey due to possible adrenal insufficiency. Quitting cold turkey can be a cause of adrenal insufficiency. I don't know what to do, but am...
Thank you all, we are not near an IBD center, and our insurance is Kaiser. I don't think that they will offer to pay for a consult and unfortunately, I don't have the cash to do it myself. Thanks...
Thanks for both of your replies. Our original Dr. did'nt believe in elemental and food elimination, so it wasn't offered until after my son was taken off of all food for 5 weeks without I.V nutrition...
[tr ][td ] <!--159564{-->[2]I am looking for any ideas that you may think will help before I call the Dr. back. The Dr. actually told me that we could try Tysabri or maybe we should just take...
Thanks everyone, Steven has normal b12 and has been taking the Allopurinol for over 2 years with no fevers. Of course you just never know. Nanners- I also felt like the abscess went away a little too...
Thanks for responding. Steven lives on a low residue diet and his active inflamation was in the mucosa of the sigmoid colon as well as every biopsy showed high eosinophils to the point they have to...
Hi, I haven't posted here much lately. I usually post at Dragonpack for pediatric Crohn's, but that sight is a little slow right now. I was hoping for some opinions before I call the Dr. tomorrow. My...
I was having a similar problem with my son earlier this year and they decided it was just IBS and started using Elavil to help mask the pain. When we started seeing a new Dr. he did a fecal...
Hi,y made it feel better My son had a seton placement for about a year. The string ran through the abscess/ fistula into the rectum and out it was tied on the butt cheek near the fistula hole. It...
I was wondering if anyone else has received biopsy results like this and if so were they told that it might be eosinphilic gastritis? He was diagnosed with Crohn's in 2005 andf has had abscesses...
Thanks for all of your responses! I too think that the iron infusions would be best, but I am not sure why the Hematologist doesn't want to do it other than he feels it should be reserved for...
Hi, I haven't posted in a while. I was posting about my son (Steven age 13) and his fistula last year, now I have a concern about my daughter Jenny. She is now 18 and was diagnosed with Crohn's in...
Hi, I have never posted here before. I usually post on the Crohn's forum. Both of my children have been diagnosed with Crohn's disease. My son in 2005 and my daughter last October. I have always...