Thank you for responding! I'll pass your input on to my son....
Anyone out there with Crohn's in the mouth area, specifically swollen lips? I've lived with CD for about thirty years in my small intestines (ileum), but my son went to a specialist recently because...
I started this post regarding surgery which I found helpful. http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1585793#m1588451 I have since met with a surgeon who summed things up by...
In reading the posts, I can't help but think the experiences with sugar and carbs lend credence to the SCD Diet. The hypothesis is that both refined sugars and starches are complex sugars which are...
I thought i had made it clear that my colon appears free of any disease to date. As best we can determine, the disease (stricture) is in the terminal ileum. Thanks for the info, Ozonehole. Your...
Thank you all for the thoughtful responses! One thing you've taught me is that there are no definitive answers to this complex and confusing disease. I just got off the phone with my GI and she...
Actually, I have had a colonoscopy which showed my colon to be clear and the barium test which showed my upper to empty although slowly. The last procedure was the capsule/camera which got stuck and...
Thanks Mike - When I was first diagnosed at 35 the doc, at the time, recommended i avoid surgery unless absolutely necessary because the disease was known to often reoccur. At 65 i look at things a...
It has been a little over 2 months since i had a 2nd hospital stay for a blockage. Originally diagnosed with CD 30 years ago, but apparently it's been in remission, or maybe the CD was doing it's...
I've not heard of the dilation procedure . . . will check with my doc. Hope all goes well with you and please report bak to us....
Thanks for your input, Mike. Well, i did do the camera procedure a couple of months ago. The problem was the camera got stuck and i ended up in the hospital for 6 days before it passed. I avoided...
Has anyone had the double balloon enteroscopy? My doc has scheduled me for the procedure next month at the Mayo. I need to be sure it's worth it as I have to pay 50% co-pay because the Mayo is "out...
To be more accurate, my taper went from 40mg for 2 wks, then 30mg for 2 wks, and now i've just started on 20mg which i'm to stay on for 4 wks. Then i'm to go on 10mg for 2 wks, 5mg for 2 wks, and...
Thanks for responding! Meds: Pentasa, Flagyl, and Predisone (tapered from 40mg, 30mg, to 20mg. Doc wants me to start on Humira and have a double balloon enteroscopy in the next month. We know the CD...
Hospitalized twice in last 4 months for blockage, the second time when the camera capsule got stuck! I passed it and opted out of surgery at the last minute. Since being home i've been real careful...
Had a capsule get stuck on 8/8, didn't know it when i turned in my belt and stuff, went across the street and had two cheeseburgers. that night the cramps started, eventually so bad went to er and...
Originally diagnosed with CD 25 years ago. Had frequent problems with diarrhea, but too keep the story short essentially managed with lots of immodium. Now I’ve hit the wall! Went to the ER at end of...