Yep - diagnosed almost two years ago now. I go on Potassium Iodide for my flares - few and far between now. I had it so bad my ankles were swollen for two months and it was very painful/difficult to...
After 5 venofer infusions early this year, I ended up with a port. It's be the BEST thing in the world!! I've had over 30 infusions this year, and it's SO easy - no digging - get it on the first...
I had one last year. For about a month or so. While it's not "comfortable", it does it's job. Mine drained really well for about 2 weeks, then just slightly daily after that. It grew out, so I had a...
Keeper - The derm recommended the SSKI to me. Like I said, it's been a lifesaver! Hope it works for others....
Ask for SSKI (super saturated potassium iodide) - dosage is 0.3ml three times daily - mixed in about 6 ounces of juice or water. It's taste is HORRIBLE - but it WORKS! I was finally diagnosied by the...
You'll definately need to call the Dr if it doesn't pass by Monday. You'll have to go in for an x-ray to find out if it passed and you didn't notice, or if it's stuck. I'm a Crohnie with a...
Tony - Glad your transfusion went well!! Good luck with your Venofer infusions. After 20 weeks - I'm done for now. I go Wed for bloodwork to see how I'm doing. Crossing my fingers that my HGB stayed...
Be ready to be there most of the day (at least 6 or so hours). When you get there, they will draw some blood to type-and-cross you. Then, you'll have to wait a while (this is the longest part, or so...
While no one in my family has Crohn's disease, my family is prone to other autoimmune disorders. My mother, her mother, and my aunt all of thyroid disease (yes, this is auto-immune), my father has...
I had one in last year, it stayed in for about 4 weeks. It's designed to work itself out, as the abcess heals from the top down. So, the "tail" on your drain will continue to get longer. If need be,...